Crohn's and loss of eyesight?

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RightOutStraight02
New Member


Date Joined Jan 2009
Total Posts : 15
   Posted 1/14/2009 8:49 PM (GMT -7)   
Has anyone else experienced a decrease in their eyesight as a result of any medications???? My GI came out of the blue and told me to get my eyes tested at my last appointment, and I have noticed lately that maybe it is on the decline. I am on 6mp and prevacid right now, about to start remicade. I was on heavy doses of prednisone in the fall...which, if any of the meds can do this? eyes
20 years old.
Dx'd with Crohn's at the age of 13.
Dx'd with Fibromyalgia at 15.
Currently taking 6mp and Flagyl.
10 inches of my small intestine removed October 2008.
When will remission come?!?!
 
Best regards to everyone here, bless you all.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 1/14/2009 9:20 PM (GMT -7)   
The steroids can sometimes cause blurry vision and long term use can increase your risk of cataracts. Chron's is also associated with uvititis which can cause vision loss if not treated.
Also, as you get older your eyes get worse.
Just see a good opthamologist-don't go to an optomitrist. Have a slit lamp exam and maybe retinal photography to provide a baseline.
I get the joys of having my plaquinel eye exam on MLK day.
Yeah Me!

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/14/2009 10:12 PM (GMT -7)   
Prednisone for me. It was a MUST to use reading glasses to read my books, or read anything, really. I first noticed it when I was having trouble seeing my CHECKBOOK! When I came off the steroids, I found I returned to being able to read my horse magazines without glasses. However after having to go back on pred and taper off several more times, my vision has not improved. I did see an opthalmologist and he said my vision is fine and to just use readers. When I have to use stronger/stronger readers, come in and see him.

I see distances fine, though I cannot read the hwy signs from as far a distance as I used to be able to. Anything close is beyond me, pun intended. :-p Computer, books, checkbook, recipe books, grocery labels...MUST have glasses. I have glasses 'seeded' around the house:
1pair with my checkbook
1pair hanging from the kitchen pot-rack
1pair in the office (computer)
1pair at my sewing machine
1pair that stays with whatever book I am currently reading

...man. That's a lot of glasses! *laughs* I have recently accepted that I need to bring "eyes" with me wherever I go.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/14/2009 11:38 PM (GMT -7)   
I had really blurry when I started taking bentyl and sometimes with the prednisone. It went away after a while though, and drinking water helped..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 1/15/2009 6:32 AM (GMT -7)   
For sure go to an opthamalogist and have your eyes checked. If you are unlucky enough to have uvitis or worse scleritis be prepared to seach for college professor level opthamalogist because most others will not know how to treat you.
I have been fighting posterior scleritis of the eye for two years now. Even though rare, it's an autoimmune disorder which can be associated with Crohn's just like arthritis or asthma. I detached my right retina twice and my vision in that eye dropped to 20/400 (blind). Worse, it was starting to attack my other eye! I was looking at total blindness!
My symptoms were blury vision in that eye when I read. I found myself reading with that eye closed. Then there came a lot of pain that resembled a severe sinis headache. Then complete loss of vision when the retina detached.
I won't scare you any further unless you HAVE scleritis then we can discuss it further. GET YOUR EYES CHECKED!
Read my bio.
Dave D
Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/50. 11/08 had reaction to Remicade; trying to keep going with Imuran and Pred. Need corrective eye surgery and fitted for prism lense to correct that eye from turning out.  Life looks fairly good (literally) today.
Married with 4 grandkids.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/15/2009 6:45 AM (GMT -7)   
Yes, definately get your eyes checked. Like everyone else said it can be the disease alone that makes your eyesight worse.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 1/16/2009 7:03 AM (GMT -7)   
Hi, I'm new but I wanted to let you know that Prednisone can cause changes in your eyesight. I was on it for about 6 months and I could hardly see.  I am doing much better now.

indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 1/17/2009 5:51 PM (GMT -7)   
I just went to the eye doctor today to get my lens prescription updated and they were surprised by how much my vision has changed. I have been on pred for nearly a year now AND I have Scleritis in one of my eyes--most likely a combination of the pred and the disease that led to the changes in my vision.

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 1/18/2009 4:43 AM (GMT -7)   
Re: Scleritis
If you read my above post, you know I've had it for several years. I would be happy to share my research, ideas, and experience if you would like. That way you may not face some of the issues I faced.
Dave D 

Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Thought eye was healing and started taking Entocort counting on the residual (non-systemic portion) as treating the eye. Wrong. In October eye was not stabilized. 11/07 Started Remicade to try and reduce the ocular inflamation of the Scleritis since I had been requiring more and more Prednisone to keep the eye quiet. 12/07, retina tares and detaches again. Started Remicade every 4 weeks plus 20mg of Prednisone per day. Six months and seven infusions later, good eye is back to 20/14. Bad eye is 20/70. Had cataract surgery on June 05 on bad eye. Eye returned to a correctable visionary level of 20/50. 11/08 had reaction to Remicade; trying to keep going with Imuran and Pred. Need corrective eye surgery and fitted for prism lense to correct that eye from turning out.  Life looks fairly good (literally) today.
Married with 4 grandkids.


Chris Broad
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/15/2009 5:44 PM (GMT -7)   
Do any of you get your glasses for free, i get my prescriptions for free but havnt tried to get glasses.
 
Im guessin you should get free glasses if there is a link between deteriation of eyesight due to Crohns Disease?
 
Cheers Chris

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 6/15/2009 5:51 PM (GMT -7)   
yeah I don't know but I have always been drug free and in early 30s. Crohn's for about 10 years .Still no glasses or issues. I do get dry eye issues in the morning sometimes but nothing extreme. So i dunno...
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/15/2009 6:04 PM (GMT -7)   
My medical insurance covers all of the costs associated with my eye exams due to the autoimmune disorder and the high risk medications I am on. They do not pay for my glasses.
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