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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/15/2009 2:55 AM (GMT -7)   
I think Remicade has started to work :)

I had my first infusion last Friday and i am getting the next one in a week..
I am so looking forward to it, i feel so much better and i sure hope i wont get a allergic reaction to it :)

it still bleeds a little but i don't have to go a 20 times to the bathroom anymore, i only went twice yesterday a real breakthrough ..

I am slowly coming of the steroids only 11 days left, i think 2009 will be a good year for me, hope it will be good for you too :)

And my face is slowly coming back i hope, hate the moonface..
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 1/15/2009 3:14 AM (GMT -7)   
dont get discouraged if it does not work right away though.. it takes a while for some of the medications to start working..
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/15/2009 5:01 AM (GMT -7)   
Hi Way to go ,sounding good that must be a big relief for you and hope that moon just gets smaller. Good news for sure. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/15/2009 5:54 AM (GMT -7)   
I'm so glad to hear something is giving you relief!! It really is a wonderful feeling to have even the smallest amount of respite from these symptoms..keep us informed on how it works.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 20 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/15/2009 7:36 AM (GMT -7)   
So glad to hear the Remi is working well for you. Hopefully you are right and 2009 is the year of remission for you!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/16/2009 7:12 AM (GMT -7)   
Update: for the first time in one and a half year i made it for 24 hours with out going to the toilet to do nr 2 :)

i cant believe i could be so happy about not going to the toilet :) hehe..

This is so great..
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 1/17/2009 3:08 AM (GMT -7)   
24 hours! id be glad if i could go 1 hour sometimes.. the day time stuff doesnt really bother me anymore but the night time, well its kinda bad waking up 2-3 times in the night.. takes a lot out of you, sleep wise .
randynoguts 



     http://www.geocities.com/randynogutsweb/


Benisone
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 1/17/2009 5:12 AM (GMT -7)   
I want to start remicade. Has the cost been a factor for you? I have insurance. Can I take it for a while and discontinue and have results stay effecive?

Post Edited (BENISONE) : 1/17/2009 5:15:50 AM (GMT-7)

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