I spend alot time on here, and therefore read alot of posts. I post alot myself, but rarely respond to others, as I try to leave that up to the experts here, and ones with considerably more experience with this disease than I have.
I'm responding to yours though because I'm truly very saddened by what you had to say. Particularly that you feel that you've lost control of your life to the disease. That you feel ripped off, and disgusting. It actually makes me sad, and angry, that life can be this way. I wish there were something I could say. I can only say, that there are some truly good people here, that I hope will offer you some advise.
I hope you get some answers, so that your life could be restored to the standard you're expecting and deserve. Prayers coming your way.
wrbeachbum--I am sorry to read you are having such a tough time right now...I just wanted to ask if you have had any scopes recently? If so, what have they said?
I buy a small can of Lysol at Walmart (usually by the cashier) or even breath spray...spray in the toilet before I go...that can usually conceals the smell.
I hope you can find relief soon.
well in regard to that sudden urge, bananas slow things down and so does iron and b12.
i know how you feel..its constantly on my mind, even more so in social situations when i cant drink like everyone else and when i avoid certain situations because im afraid of you know what...
Have you noticed the "resource center" in the menu to the right of these posts? Sometimes low residue or carb and starch restricted diets can slow transit time and/or help prevent some of the gas. Sometimes I fast for a few days on the soup from Jordan Ruben's Restoring your Digestive Health. It is called Brasco Broth (Google Brasco Broth for a recipie) and helps me gain control of my symptoms when things get out of order for me. I do not add the chicken feet, but they are good for adding healing collagen. I often fast on the strained broth for a few days to let my system calm down. I have managed to avoid the diapers so far with this and eating a organic black spotted banana when things get to fast to make it to the little room. I have had a little of "that kind of laundry" though.
As you already know, it is extremely important to get enough rest. I take half a dose of a good bone builder like Jarrow Bone Up at dinner time, then a Nature's Life Magnesium Malate at bed time to help me relax and sleep better at night. I started this when I was sleeping about 45 minutes a night , and it has helped.
When my sleep patterns were really bad off, and now if my energy levels drop, I use 1-2 Co-Enzyme B-Complex made by a company called Country Life in the morning an hour before I put anything on my stomach. Crohnies like us do not always utilize B vitamins well because of malabsorbtion and lack of intrinsic factor. B vitamins control our nervous system, including our sleep patterns. This is a full B-Complex, and I started using this after sub lingual B-12 worked well for me and I realized that I needed the full range of B Vitamins to be as well as possible. I think I absorb this well, and several of my Crohnie customers in the natural foods store where I work report that it works for them.
In my work enviroment I am in a position to try many things having co-workers who practice reflexolgy, and medicine from the far east. Sometimes they do seem helpful.
Post Edited (Margie11) : 1/18/2009 10:13:01 AM (GMT-7)