Sorry things are so terrifying right now, newbie. Having crohn's can really suck sometimes, but it is NOT the end of the world, or of your life. You learn to roll with the punches.
As far as I know, there has only been ONE person on this forum who's diagnosis of crohn's has been retracted. Most of us are stuck with it. Mine was diagnosed by symptoms, and confirmed by a biopsy that was taken during a colonoscopy. Was your diagnosis changed after you had biopsies taken? If so, then I'm not sure how much wiggle room you have for hoping that it is wrong. THat being said, stranger things have happened around here, that's for sure.
I understand the denial issue. I go through phases where I feel completely and utterly betrayed by my body. People think they understand what it's like just because they've had the stomach flu or something, but no one without IBD can understand... no matter how good their intentions. When I'm feeling betrayed by my body, I tend to go a little wacky and start researching ALL KINDS of other possibilities, drugs, therapies, and symptoms. It's scary stuff, no doubt about it. All we want is for out bodies to function the way the darn things are supposed to function. It seems like such a simple request... or like it should be easy to fix, but it isn't.
Give yourself some time, newbie. Reach out to the people here, just like you're doing. We've helped eachother through some wickedly bad times, and we've also shared a ton of laughs. Stay connected to people, it's important I think.
When you go to the doc, ask him to explain to you exactly what confirmed the diagnosis of crohn's: was it bloodwork, biopsy, visual assessment? Ask him flat-out what the error margin is for whatever method was used. Ask him if he's ever diagnosed someone with crohn's and been wrong. These are ALL fair questions to ask your doc. HE is YOUR employee. Make him work. Make him answer every possible question you have before he runs off. If you leave that appointment feeling worse than when you walked in - it's time to find a new doc. It took me 6 or 7 before I found one that communicated with me the way I needed him to.
Best of luck with your upcoming tests. And don't forget, we're here if ya need us!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."