and one last thing..
a lot of the current research states that using more aggressive treatment from the start of the illness prevents surgeries and leads to a better long term prognosis...this makes the case for MTX.
Thaks so much for yoru responses. I think we are actually leaning on useing Pentasa only for a while, tapering off prednisone and seeing what happens. With all the side effects, we are just going to take it slowly. Should she have a relapse we will follow the doctors orders, but until then we are going to research some natural remedies.
I don't blame you a bit for going the route you are. These medication choices present a scary proposition, especially considering you're making decisions for your child. It's one thing to have a bad reaction to a medication that you choose for yourself, but to do that to your daughter is difficult to live with.
You and I are in similar situations, with daughters about the same age. You have more experience with all of this since you have been coping with the disease personally as well.
I too, would like to keep my daughter on Pentasa, after this current round of Prednisone. We did that for the last 2 yrs., but looking back, I can see that the disease was brewing during that time. But none the less, she was apparently healthy and thriving for that 2 yrs. Hopefully, you can do this with your daughter, as it's a very safe medication. You just don't want to accelerate the cycle and have to contiuously resort to Prednisone to get things under control. That's what I'm wrestling with right now.
I'm not sure yet which route we're going to take, (they want to try Imuran/same as 6MP).
How is she doing now on Prednisone? When my daughter first went on it, I thought it was a miracle drug, but of course I realized quickly that you have to have alot of respect for it. I seem to remember that you were worried about her size. If it's any consolation, my daughter is still growing. Two yrs. ago she looked like she should be in Grade 3, now almost 5'6". I understand that this is very typical, so I don't think you have to worry. Good luck with everything.
Thanks for your honest response. I am just so confused. I don't want her to become infertile or get Cancer from these meds if she is lucky like me and can just use pentasa. I will think and pray about his and appreciate your honesty.