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kristines
Regular Member


Date Joined Aug 2004
Total Posts : 245
   Posted 1/18/2009 11:49 AM (GMT -7)   
My gastro recently suggested I take metamucil once or twice a day, to relieve my bile salt diareah. I tried it, only a teaspoon full two days in a row, and it caused massive gas, bloating and sudden afternoon D. Has anyone else tried this and been successful in relieving thier D? re these just initial effects that go away? I have had a flare up since, and I am not sure if that caused it. Any one have any experience with this, please share.
Kristine
Live, Laugh, and Love!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/18/2009 12:10 PM (GMT -7)   
Yes, my GI also told me to take fibre supplements daily and indefinitely (it's been about 4 yrs now that I've been taking it everyday)...

I was severely gassy and bloated and had only semi-formed BM's which is why he recommended it to me, initally it added to my gas and bloating but this is normal, it's just your system adjusting (took mine 3 months but was well worth it) that's why it's important to start with a small amount and increase only if necessary by small amounts...once my system adjusted, it gave me completely formed BM's, cut daily BM's down and mucus too, got rid of all my bloating and cut my gas down to very minimal.

Key is to stick with it daily and drink lots of water with it (as a CDer we should be drinking plenty of water daily anyways).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 1/18/2009 3:31 PM (GMT -7)   
I have used metamucil for two months and it has made a great difference. I read it from one of you guys here. Thanks a millions for that. Stools more formed, gas less, bloated less. I take it twice a day but I started at about one half a teaspoon and worked up to one teaspoon. Has really lessened rectal bleeding too. Too bad it can't cure the whole thing but it has given some relief.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/19/2009 1:59 AM (GMT -7)   
TRigirl... how long did it take YOU to see improvement? I know PB4 went through three months of ick before it kicked in... was your experience similar?

I'm working up to this metamucil thing... I just need to know it really is worth it because MAN does it suck whenever I try to start it.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/19/2009 4:02 AM (GMT -7)   
Acacia is a fiber that does not thicken. I can take it just fine. I had to start out slow with it also, but it is much easier to adjust to. It costs more than Metamucil, but you can sprinkle it on/in food ans it is hardly noticeable. Heather's Tummy Fiber is the product that I have been using, designed for people with DD. I love this and I can get my grown children to use it also. I am for anything that may slow the progression of this DD for any of my children who may have inherited this DD.

              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/19/2009 6:59 AM (GMT -7)   
What fiber suppliments have people used and what do you recommend?
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/19/2009 8:33 AM (GMT -7)   
I've used metamucil in the past. I started using again last October but then had a big bleed in November so I stopped. Does anyone know if metamuciil can cause bleeding or was it a coincidence?
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/19/2009 12:17 PM (GMT -7)   
Rider Fan, I'd guess it was a coincidence, unfortunately with this DD bleeding can come and go whether you have D or not but if you have a lot of D or not formed enough stools then fibre supplements is a good choice if you cannot tolerate eating fibreous foods (which I could even before using the supplement but it would give me excess gas and bloating) now I can tolerate fiberous foods without getting all gassy and bloated.

So long as you don't have issues with strictures/blockages then fibre supplementation can most definitely aid with CD symptoms.

I use Prodiem bulk fibre therapy caps (which is available in some US states) not to be confused with prodiem laxative as they make that as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/19/2009 1:08 PM (GMT -7)   
I actually have very formed stools, and my bleeding was upper GI (black stool), not red.

Does that make a difference?
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 1/19/2009 2:04 PM (GMT -7)   

 Forum,

   Most of my co-workers in the supplement industry would never suggest psyllium (the active ingredient in Metamucil) for IBD suffers. It is known in the industry to cause "plugging" in the GI tract. In other words it can cause temporary blockages, sometimes in healthy people. I suppose it could contribute a bleed, if it plugged in the wrong place (like near existing scaring or ulcerations) and distressed the gut. There is a good amount of info at the following link, but keep in mind that this web site sells Heathers products, and may not be very objective. 

http://www.helpforibs.com/supplements/sol_fiber1.asp

That said, my personal experience seems to fall in line with this, and my customers with Crohn's, UC, and other GI issues swear by this product. We discontinued this at our store and had to bring it back by popular demand. 

  Any dietary fiber can and will cause plugging if you are deficent in Magnesium. Magnesium is necessary to draw moisture to the bowel. I have sold colon cleanse products to customers who have returned them because of bloating and gas combined with "C". They swear to me that they are drinking the 6-8 glasses of water a day that the products require. Some take the products back home with them, and add a Magnesium tablet at bedtime then do fine. An apple every day is a good choice for anyone who cannot or won't use supplements. 

     



              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11

Post Edited (Margie11) : 1/19/2009 4:52:10 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/19/2009 3:41 PM (GMT -7)   
Rider Fan said...
I actually have very formed stools, and my bleeding was upper GI (black stool), not red.

Does that make a difference?

I still doubt it would have been from fibre supplements, but you know, anytime you have bleeding from high up that's dark you should report that to your doc immediately as that can be a dangerous sign.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/19/2009 4:20 PM (GMT -7)   
Oh don't worry, I did! I bled for 3 days and needed a blood transfusion...

I will try re-starting the fibre, thanks!
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/19/2009 7:42 PM (GMT -7)   
Good luck, and remember take it daily and start with the smallest amount possible and increase slowly (after your system has adjusted) and drink lots of water (which you should anyways as a CD to avoid dehydration).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/19/2009 8:40 PM (GMT -7)   
thanks!
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


kristines
Regular Member


Date Joined Aug 2004
Total Posts : 245
   Posted 1/25/2009 8:40 PM (GMT -7)   
Thank-you for all the replies, I'm trying it, but having a hard time. I have a new job, and can't spend all day in the bathroom. I take a small amount, 3 hours later I have extremely loud stomach gurgling, and then D. That goes on for awhile, and it seems the metamucil goes through me in 3-4 hours. I don't have the guts to carry on trying, and a weekend won't do it. Is this how it starts for you guys?
Live, Laugh, and Love!!

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