Nana, you have asked for advice, so I'll not beat about
Sounds to me a bit like you are taking the traditional Crohnie's river trip...along De Nile !
Mark you, we have all been there, and let's face it, it's a natural part of being ill.
But like it or not, the fact that tests don't show anything, and your doctors don't understand, says more about
the tests and the doctors, than it does about
what may be going amiss chez chateau bellybutton. I kept getting colonoscopies that detected no inflammation - when every day I passed blood from my gut. I stopped trusting colonoscopies, I didn't just give up on looking for a good treatment.
Wolfie's story is absolutely the norm with CD. Typically, you get a year (or more, if you are lucky) of grace when the drugs work, then suddenly things go wrong again. But if you don't, you will often get less time well, and go much worse when a flare happens.
Having been down the "try this, try that, does he really have Crohns" road, and seen so many others stories here, I doubt that anyone can give you a surefire winning treatment. Crohns comes in different "flavours", what people find possible or impossible to eat safely seems to vary, over time and from person to person. (I reckon it depends on what types of bugs are affecting your gut. Someday docs will use genetyping to tell them what flavour you have - but not anytime soon, I fear.) Personally, I found most of the drugs I was prescribed at best useless, at worst causing the same symptoms they were supposed to improve ! The lesson there was, don't wait a month to adjust the dosage, and be prepared to make your doctor state his suppositions and treatment options.
I don't know if this will help you, but what seems to have worked best for me is avoiding gluten and dairy, eating organic food and eating probiotics yoghurts, which are my "foody firefighters" for inflammation and diarrhoea. The nutritional therapist who eventually proposed a diet that radically improved me, suggested that my previous high wheatflour, high sugar, high alkali diet had left my stomach vulnerable to infection by bacteria by reducing acidity and harming the immune system, which eventually after my adrenals became stressed led to my gut becoming hypersensitive to all sorts of chemical residues; given that she was able to accurately predict what my previous medical symptoms would have been without my telling her, rather than ignoring them as the doctors used to do, I was inclined to put more faith in her diagnostic model. I cannot say I am entirely well - after twenty years of untreated Crohns I am still too fatigued to work, but after three years on this diet my gut is usually fine, and I am entirely medication free.
Whatever you do, don't do nothing. Stress is an everyday part of life, it is always there in some form or another, and it will never entirely go away. If it is making you ill, or contributing to your illness, then usually that is a sign that your body has failed in its coping mechanisms, and needs to be helped. (Heck, you know that, or you wouldn't be here, right ? ) And as we all know, if your stomach doesn't work right, it is all too easy to end up malnourished in one or two nutrients very quickly indeed, which is a whole new set of other problems. You really don't want to go there.
Is it just me, or would everyone else here rather be surfing curtain-making forums or some fun thing, rather than thinking about
this d**n disease ? !