Need some help please!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Nana CC
Regular Member


Date Joined May 2007
Total Posts : 121
   Posted 1/18/2009 7:52 PM (GMT -7)   
I visited here a lot back in 08 the beginning. I had moved to Texas shortly after being diagnosed and was having difficulty finding a Gastro doc like the one I had in Indiana who was great. Well, I never really did find a doctor who was able to tell me why I was having so much pain and stuff and test came back looking good and all that. I finally decided if there was nothing wrong with me then why in the *#* was I taking all the medications. So I weaned myself off and actually went back to feeling like my prior self after a short time. Well to make a long story not so long, in the last few weeks I have started having problems again, cramping, pain (abdominal) and of course diarrhea. I have been living on immodium and have gone back to eatting what I was doing alright with when I was sick before. I believe it was brought on by stress. What do I do now? Do you think if I can get myself in a calmer position and keep eating the right stuff I can get over it on my own? I dread going back into the medical scene as much as I dread the way my stomach feels right now. Are there other options that I can do myself? To make matters worse I'm on a temporary assignment in CA and not scheduled to go back to TX until the end of Feb. so I really don't want to go through the whole doctor thing again out here.
Thanks for listening and I'm open to hearing what ever anyone has to say!
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/18/2009 8:01 PM (GMT -7)   
Hi Nana!

Sorry you are having so many problems. Sad to say but it sounds like you need to get with a doctor and get back on meds again. Your Crohn's may have been quiet before and it seemed like you didn't need drugs, but obviously it was still brewing. It is so sad that we have a chronic disease that just doesn't go away!!

I don't have your symptoms, so I don't have any suggestions on what you can do now to calm your symptoms. I'm hoping others with experience will weigh in soon.

Can your old doctor's office help you find a new doc in Texas??

I hope you get relief very soon!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/18/2009 8:10 PM (GMT -7)   
All I can say is that eating a healthy diet(depending on what you CAN eat) and regulating stress levels to the best of your ability has helped me tremendously so...I'm sorry you're going through this...I hope you find something to help you feel better!! Keep us posted.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/19/2009 1:43 AM (GMT -7)   
Could you maybe find an "alternative" type of doctor just to get you through your time in California? For short-term flare help sometimes just going to accupunturist worked for me... They tend to be cheaper/out-of-pocket type of scenarios that often can provide a lot of temporary relief... then when you get back to texas you can get back with your doc and figure out what you need to do for the long haul.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."


Nana CC
Regular Member


Date Joined May 2007
Total Posts : 121
   Posted 1/19/2009 7:20 PM (GMT -7)   
Thanks for all your support. I do think maybe I'll try to find an accupuncturist to help me out right now. I used one in the past and it did help. Thanks for reminding me. All and all I'm not doing to bad, nothing I can't deal with anyway.
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/19/2009 7:40 PM (GMT -7)   
If you're dead set against oral RX maybe you should at least take some natural anti-inflammatories, I'm either allergic or non-responsive to tradtitional oral RX so I use bee proplolis, chamomile tea, probiotics (called primadophilus reuteri made by natures way), omegas 3-6-9, vitamins A, C-Calcium ascorbate, B12 and fibre supplements (which were suggested by my GI)...I also altered my diet (no junk or processed foods/beverages, fast-foods) and I exercise regularly...I take the above mentioned on a daily basis...if you decide to give it a go then start with one thing at a time so you can see what is helping (if at all) but I strongly suggest a good probiotic daily regardless if you see results or not.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/20/2009 4:55 AM (GMT -7)   
I too was feeling really good and I thought why am I taking this expenxive medication for.I'll try eating good along with a few natural pills.Well next thing you know,I'm in the hospital with an obstruction.
I learned my lesson am now taking my medication as prescribed by my doctor.

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/20/2009 6:03 AM (GMT -7)   
Nana, you have asked for advice, so I'll not beat about the bush.
Sounds to me a bit like you are taking the traditional Crohnie's river trip...along De Nile ! eyes Mark you, we have all been there, and let's face it, it's a natural part of being ill.
But like it or not, the fact that tests don't show anything, and your doctors don't understand, says more about the tests and the doctors, than it does about what may be going amiss chez chateau bellybutton. I kept getting colonoscopies that detected no inflammation - when every day I passed blood from my gut. I stopped trusting colonoscopies, I didn't just give up on looking for a good treatment.
Wolfie's story is absolutely the norm with CD. Typically, you get a year (or more, if you are lucky) of grace when the drugs work, then suddenly things go wrong again. But if you don't, you will often get less time well, and go much worse when a flare happens.
Having been down the "try this, try that, does he really have Crohns" road, and seen so many others stories here, I doubt that anyone can give you a surefire winning treatment. Crohns comes in different "flavours", what people find possible or impossible to eat safely seems to vary, over time and from person to person. (I reckon it depends on what types of bugs are affecting your gut. Someday docs will use genetyping to tell them what flavour you have - but not anytime soon, I fear.) Personally, I found most of the drugs I was prescribed at best useless, at worst causing the same symptoms they were supposed to improve ! The lesson there was, don't wait a month to adjust the dosage, and be prepared to make your doctor state his suppositions and treatment options.
I don't know if this will help you, but what seems to have worked best for me is avoiding gluten and dairy, eating organic food and eating probiotics yoghurts, which are my "foody firefighters" for inflammation and diarrhoea. The nutritional therapist who eventually proposed a diet that radically improved me, suggested that my previous high wheatflour, high sugar, high alkali diet had left my stomach vulnerable to infection by bacteria by reducing acidity and harming the immune system, which eventually after my adrenals became stressed led to my gut becoming hypersensitive to all sorts of chemical residues; given that she was able to accurately predict what my previous medical symptoms would have been without my telling her, rather than ignoring them as the doctors used to do, I was inclined to put more faith in her diagnostic model. I cannot say I am entirely well - after twenty years of untreated Crohns I am still too fatigued to work, but after three years on this diet my gut is usually fine, and I am entirely medication free.
Whatever you do, don't do nothing. Stress is an everyday part of life, it is always there in some form or another, and it will never entirely go away. If it is making you ill, or contributing to your illness, then usually that is a sign that your body has failed in its coping mechanisms, and needs to be helped. (Heck, you know that, or you wouldn't be here, right ? ) And as we all know, if your stomach doesn't work right, it is all too easy to end up malnourished in one or two nutrients very quickly indeed, which is a whole new set of other problems. You really don't want to go there.
eyes Is it just me, or would everyone else here rather be surfing curtain-making forums or some fun thing, rather than thinking about this d**n disease ? !

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 1/20/2009 7:26 AM (GMT -7)   
 I just want to say amen to that!!!
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/20/2009 8:37 AM (GMT -7)   

But Snohare!  It is such a lovely river cruise!  So nice and pleasant .... until the waterfall smhair    And crocodiles shocked

I've pre-booked several trips.

 


Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/20/2009 6:18 PM (GMT -7)   
nono Ah, but a rapid way to go downhill currently, FC, you could bank on it... devil

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/20/2009 6:34 PM (GMT -7)   
Yes, I will be all washed up, and will drown in waves of self-pity.
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 9:47 AM (GMT -7)
There are a total of 2,732,999 posts in 301,075 threads.
View Active Threads


Who's Online
This forum has 151228 registered members. Please welcome our newest member, Acro1010.
346 Guest(s), 14 Registered Member(s) are currently online.  Details
JayMot, PeterK, Michael_T, Serenity Now, NiceGuyEddie, smlafleur, Paxton, NiceCupOfTea, Melg, SharonZ, Gbryan, Mustard Seed, Meshawmama, snowboat


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer