Humira = NON prefilled syringes? Anyone get them that way?

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Aimee =)
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   Posted 1/18/2009 9:39 PM (GMT -7)   
A friend of mine is a scientist for a major pharmaceutical company, his wife has RA. She has tried Humira in the past and knows how bad it stings. He said that she switched to non prefilled syringes. He says that the sting comes from the preservatives that are put into it when prefilled. If I fill the syringe myself, it will be virtually painless. He told me to just ask my GI to write the script that way next time and try it.
 
I haven't done that yet (have 3 months of syringes on hand) but thought about it. He swears it's not much work to do it yourself.
 
Have you ever heard of the non prefilled syringes? Or used them yourself? I thought the medication itself hurt and he said no, it's the preservatives they put into it.

straydog
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Total Posts : 13478
   Posted 1/19/2009 12:31 AM (GMT -7)   
Yes, you can get them in syringe form. One of our members here gives herselgf her shot. I on the other hand get the pre-filled pens and I have found them to be less painful if I pinch up some skin where I will be injecting and above all have them at room temp. I even rubb the pens in my hands for a bit before using them. Susie


teddybearweiser
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Date Joined Oct 2004
Total Posts : 3042
   Posted 1/19/2009 2:21 AM (GMT -7)   
Hi when I start Humiria I am choosing the pre-filled pens. I wanted something easey to use. I already
use a syringe for giving myself a B-12 injection.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


MMMNAVY
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   Posted 1/19/2009 7:01 AM (GMT -7)   
I switch from the prefilled pens to syringes.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
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All suggestions/options/opinions are caveated with please consult with your local health care provider...


Julia Hill
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   Posted 1/19/2009 9:41 AM (GMT -7)   

Hi,

I prefer the syringes over the pens also.  I find sometimes when I use the pen the medicine runs down my belly if I am not holding it at the right angle yet it looks perfect.  My syringes are prefilled, I didn't know until reading your post that you can get the medication separately.  I would check to ensure that if there is more than one dose of Humira in the vial that you can keep it in the fridge and use it next time.  I know with my MTX you can only use the vial once then throw the rest away.  All the best to you on Humira.

Julia

 


broomhilda
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   Posted 1/19/2009 2:34 PM (GMT -7)   
Aimmee- I get the prefilled syringes. According to my packaging it's SUPPOSE to be preservative free! Could you double check with your source to see if Benzene is on that list of preservatives? I am hyper sensitive to all forms of that perservative and if that has been what has caused some mini-flares for me...it would be nice to know! I assume most doctors prefer the prefilled dosage to insure the patient is not drawing the vials incorrectly or possibly not following proper hygiene procedures when giving themselves an injection. Julia has a good point too. If her senerio is correct then it seems it would be more costly an Rx and then there's always the possibiltiy that the insurance company dictates what form the doctor can request.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


Aimee =)
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Date Joined Jun 2004
Total Posts : 1020
   Posted 1/19/2009 11:01 PM (GMT -7)   
broomhilda said...
Aimmee- I get the prefilled syringes. According to my packaging it's SUPPOSE to be preservative free! Could you double check with your source to see if Benzene is on that list of preservatives? I am hyper sensitive to all forms of that perservative and if that has been what has caused some mini-flares for me...it would be nice to know! I assume most doctors prefer the prefilled dosage to insure the patient is not drawing the vials incorrectly or possibly not following proper hygiene procedures when giving themselves an injection. Julia has a good point too. If her senerio is correct then it seems it would be more costly an Rx and then there's always the possibiltiy that the insurance company dictates what form the doctor can request.

I get the prefilled syringes, too. Have used them for 2 years now (tried the pen once, never again!) but they still hurt.
 
I will ask him about Benzene. It's truly all greek to me, but since he 1) is a scientist for a med company and works with these things from that end and 2) his wife actually used the non prefilled syringe of Humira while she was using it for RA, I thought he may know what he is talking about. But he may not, too ;)
 
Good point on the doctor and ins. My GI may not want the possibility of it being screwed up but it never hurts to ask! I'll ask my friend for some more info (pref from a credible source that I can pass on) and update the post.
 
I think some of the posters misread my post and thought I was comparing syringe to pen - I'm comparing prefilled syringe to NON prefilled syringe. I assume no one here has them prescribed that way?

jan2003
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Date Joined Jul 2004
Total Posts : 92
   Posted 1/20/2009 11:17 AM (GMT -7)   

Aimee, perhaps your friend's wife used Enbrel for her RA, which is also an anti-TNF drug, similar to Humira. You can get Enbrel in a form that you mix up yourself, without preservatives. The prefilled syringes and auto-inject forms of Enbrel also sting like the dickens; maybe that's where your scientist friend got confused.

Unfortunately, the one and only study of Enbrel for Crohn's showed questionable benefit, so Enbrel isn't prescribed for Crohn's. But I do know of some IBD folks who use Enbrel for their arthritis, and they say it helps their IBD as well.

Good luck,

Jan


Aimee =)
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Date Joined Jun 2004
Total Posts : 1020
   Posted 1/20/2009 3:46 PM (GMT -7)   
jan2003 said...

Aimee, perhaps your friend's wife used Enbrel for her RA, which is also an anti-TNF drug, similar to Humira. You can get Enbrel in a form that you mix up yourself, without preservatives. The prefilled syringes and auto-inject forms of Enbrel also sting like the dickens; maybe that's where your scientist friend got confused.

Unfortunately, the one and only study of Enbrel for Crohn's showed questionable benefit, so Enbrel isn't prescribed for Crohn's. But I do know of some IBD folks who use Enbrel for their arthritis, and they say it helps their IBD as well.

Good luck,

Jan

His wife was my college roommate, and we have discussed our "ailments" many times - she tried Humira before I did, so they both know the two drugs and was not confusing them. She took Enbrel, too, for a time (and Remicade). We always compare notes on the various meds ;)
 
I will do some more research. If Enbrel is available to be mixed on your own, I don't see why Humira wouldn't as well?

jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 1/20/2009 5:46 PM (GMT -7)   
Ok, good that no one is confused regarding Humira vs Enbrel. I just mentioned Enbrel since that's the only one I know of that you can mix yourself. I agree with you that it would be nice for Humira to come in a form to mix yourself.
 
I did some quick googling and searching on Humira. I found nothing that indicates you can get it in a form other than prefilled syringes or pens. There's a link on Humira's website "If you have any questions about Abbott's HUMIRA.com Web site that have not been answered click here." Maybe you can contact them and ask about mixing your own.
 
Good luck.
Jan
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