I personally haven't been on Tysabri, but my best friend is. She has MS. Her treatments started off well, but as time went on, she got sick for a couple days afterwards. She was on it for about a year and a half, and they took her off it because the drug hasn't been studied on people over the two year mark. Those who have stayed on the drug past two years have suffered PML, which is a brain infection. I'm not sure if your doctor told you that Tysabri does break down the blood brain barrier, which protects your brain from bacteria and viruses from getting to it and causing infection. PML is not curable. I'm not trying to scare you, just trying to lay out the facts. She was off of it for about a year, and now recently went back on. I hope that Tysabri will help you or put you into remission! Sorry I couldn't be all that much information, but I hope it helped a little!
-Heather, 23 yrs. old
- Crohns disease since 1995, officially diagnosed in 2003.
- Bowel resection in Dec. 07, Crohns reoccurred July 08.
- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Prednisone taper