My Wedding in 26 days and so so sick!

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Regular Member

Date Joined Sep 2007
Total Posts : 182
   Posted 1/19/2009 11:28 PM (GMT -6)   
Hey All!

I hope you are all doing well or at least what us living with Crohn's consider "okay".

I just sort of wanted to blog on here a bit. I am very sick (and have been for a very long time). The doctors can't do anything for me, but I am still seeing them on a regular basis (gastro, natural doctor, blood doctor etc.) because of the hope I have. I am very very scared as my wedding is in 26 days. While most brides are hoping and praying that things go smoothly @ the ceremony and or reception, I am worried if I am going to be in pain, running to the bathroom, sick, etc. I just want to feel "okay". I have an amazing attitude and can make an okay day a good one with no problem. But being in a beautiful wedding dress, sick, is a very scary thought. Please send well wishes my way. And if you have any secrets or miracles (that would be nice huh?) please send them my way! Gosh, what a scary thing. BUT besides this (severe pain, D 10-30x's a day, a ton of blood, etc. etc. ya know all that comes with it, my life is amazing.... It really is!

Thanks for reading!!!

*** LOVEPINK ***
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 1/20/2009 12:02 AM (GMT -6)   
I know where you're coming from pink! Everything will turn out just FINE, it always does!

I had a wicked flare right before my wedding last April. The doc ran all kinds of nonsensical tests - nothing showed, and nothing he gave me worked... until the Nortriptyline. He Rx'd 50mg tablets to help me sleep at night. This is a med usually rx'd in much higher doses for psychiatric reasons I think, but at 50mg - it helped me sleep like a baby, have fewer bm's, and get through with less pain. It was NOT a long term solution for me because we wanted to get preggo right away, but I kinda miss that stuff to be honest. Maybe worth asking your doc about?

Good luck, keep your awesome attitude, and roll with it. You'll do fine! :-)
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 1/20/2009 1:01 AM (GMT -6)   
lovepink, i understand what your saying.. only as a guy it was differant.. i got out of the hospital a day or two before our wedding, and barely made it through the ceremony. i was white as a sheet. and dizzy. day after we spent at home and i went back in the hospital the next morning . so hang in there you can make it through. it may be delayed, but it will happen if you want it too. just dont give in.

Regular Member

Date Joined Jan 2009
Total Posts : 126
   Posted 1/20/2009 2:29 AM (GMT -6)   
All I can say is good luck and God bless .... everything will be wonderful ..... o and congrads .... try not to think about cd just you wonderful, handsome, husband to be ... it will be the best day of your life no matter what happens ...
> 27 year old female < 
 > Diagonsed with Crohns disease in 2000 <
> In 2009 I was told my Crohns is Crohn's Colitis ~ they said the cd in my rectum, colon and all through my small intestine I was told that on a scale from 1 to 4 mine is a 4 i about cried ..... I dont feel that sick : ( <
 > Medication - pentasa(4000mg), imuran(100mg), prednisone(40mg for one more month then i get to tapper), potassium, vitamin C, multivitamin, and iron plus i will start humira in about a month <
> I thank the Lord for my amazing husband and wonderful family <

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 1/20/2009 9:49 AM (GMT -6)   
I just wanted to wish you luck and hope that you have a beautiful wedding!! I wish I could be of some help...just make sure and rest when your body tells you to, and don't overdo it(which I think must be difficult right before a wedding).
I'm really happy for you!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

Regular Member

Date Joined Jun 2008
Total Posts : 125
   Posted 1/20/2009 9:58 AM (GMT -6)   
I just got married in October, so I totally know how you are feeling. I was in a flare before my wedding too. Like you, my life was wonderful, but the disease was awful.

Here is what I did and what worked for me. Obviously, I am not a doc - this is just MY experience:

First, I deal with a lot of anxiety, so about a week before the wedding, my doc had me start taking Ativan to calm me down day to day. This helped take away some of the jumpy/anxious feelings that were landing me in the bathroom even more than usual.

Prior to the wedding, I told the priest about my disease and let him know that I may have issues during the ceremony. He was so wonderful and reassuring. Just knowing that he knew and there was no added "pressure" of having to be be perfect helped.

Second, the day of the wedding, I ate a light breakfast (english muffin with peanut butter) and some milk (I tolerate dairy with no prob). I drank some gatorade and water. After I pooped, I took 2 Immodium. about an hour to two hours before the wedding, I did not drink anything.

Oh yeah, and I wore one of those big overnight pads, in case there was any small accident :-)

I was just fine during the wedding. It goes by sooooo fast! I did not have any issues all day. I ended up dancing the night away!

Please hang in there and know that you will be surrounded by people who love you. Good luck and keep reminding yourself that you are marrying the man you love - THAT is what counts!
35 year old female (newly married) - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Zoloft, Seroquel & Ativan as needed

Regular Member

Date Joined Nov 2008
Total Posts : 192
   Posted 1/20/2009 10:03 AM (GMT -6)   
I also know how you are feeling. I got married last summer while I was in full flare. My advice is to eat very little, don't drink and have fun! I ate too much at my rehearsal dinner and ended up having to leave early (how embarrassing) and I was horribly sick for the rest of the night. On my wedding day, I just had a little bit of toast and drank a lot of ginger ale and Gatorade, and at the ceremony I had some mashed potatoes. I was still able to dance and enjoy every minute of my wedding -- I didn't even feel hungry. So, my advice is to try to relax as much as you can, limit your food intake the day before and the day of your wedding and have a great time!
Diagnosed with Crohn's Disease; Meds: Entocort & Asacol; female in late 20s.

Regular Member

Date Joined Sep 2006
Total Posts : 181
   Posted 1/20/2009 2:04 PM (GMT -6)   
I was in my friends wedding during a full flare, we made sure I had a clear bath to the bathroom during the ceremony (out a side door) that helped calm me. I ate toast and gatorade about 6 hours before the ceremony and then ate or drank nothing until it was over. When I got married I had a similar plan but I was not flaring as bad, overall I am pretty open with my CD so I figured if I ran out, everyone would be like "ahh, she is running for the restroom..surprise, surprise."
33 year old Female
Diagnosed with CD 2006, had suffered long before 2006.
CD Meds: Remicade every 7 weeks & Imuran 50 mg,
Also have seasonal allergies, milk allergy, and asthma.

Regular Member

Date Joined Nov 2007
Total Posts : 68
   Posted 1/20/2009 3:02 PM (GMT -6)   
Congrats! It will be wonderful.. Just do what you can to keep your nerves down.. I know for me when i was ready i went to the bath room one last time before i walked in to the church and took an immodium to hold me through the ceremony.. after i got in there i was so caught up in the moment i forgot i even had crohns.. you will be so happy when you start walking down the isle, it will be wonderful :). Good luck!
24 year old female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; B-12 vit.-stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love *There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.*

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 1/20/2009 3:16 PM (GMT -6)   
I hope you have the most wonderful wedding day ever! Take 2 immodium (if it works for you) and wear a big pad like the others suggested. Then you will be covered for any possibilities. Have your maid of honor or mother or someone ready. Let them know that you might need to race to the bathroom and that if you take off they should follow to help you with your dress, etc. Take a little bag with extras (undies, pantyhose, wipes, whatever) so that you're covered if you need it.

You won't need ANY of it. BUT, your mind will be at peace knowing that you don't have to stress about the "what if's". The only time I ever have an accident is when I'm not prepared for one. Go figure. It's gotta be the mental stress. Enjoy your day!!! I'll be sending good vibes your way.

Regular Member

Date Joined Apr 2007
Total Posts : 22
   Posted 1/20/2009 9:50 PM (GMT -6)   

First of all congrats!

I am getting married on March 28 so i know what of stress you are going thru. As of right now i am in remission but as we all know things can change very quickly so i'm alil worried about that. But i have found if you think positive things will work out for the best. I know it will be the best day of your life and you will never forget it and once again congratulations!

28 yr old male, father of 3yr old daughter and 17 old son.
Dx'd in 1998 w\ chohn's
resection of TI & stricturoplasty on Feb. 26, '08
MEDS: Remicade every 4 weeks, Pentasa 2000mgs/day,entocort 6mgs/day,Imuran 100mg/day, 1 multivitamin a day and fosamax once a week, nexium 40 mg/day, imuran 150mg/day

Regular Member

Date Joined Jan 2009
Total Posts : 64
   Posted 1/22/2009 5:35 PM (GMT -6)   
I was so scared of this before my wedding too. I loaded up on the Immodium, had my bride's maids keep some Immodium on them, didn't eat much before the ceremony. I also got a massage a few days before the wedding to help the nerves. I didn't drink any alcohol at all before the wedding and was very careful at the rehearsal dinner. All my brides maids know about my Crohn's so they were all prepared if they had to help with my dress so I could use the bathroom... everything went fine, I had no symptoms at all. I did have symptoms on my honeymoon but that wasn't a big deal... I was just happy I was ok on the wedding day!

I hope everything goes really well! Good luck!

Regular Member

Date Joined Jul 2004
Total Posts : 114
   Posted 1/26/2009 10:03 AM (GMT -6)   
Cut out all dairy, wheat products, juice, and fruit/honey.
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