Dysplasia or pred-dependence with crohn's colitis: colectemy?

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Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 1/20/2009 2:25 PM (GMT 0)   
I seem to be pred-dependent, with UC that may possibly be crohn's colitis (only 90% or so sure it is UC, due to some ambiguity), and was wondering what is the consensus out there for crohn;'s colitis if you end up pred-dependent and/or turn out to have dysplasia.  Does one go through with a colectemy then and "hope for the best", namely hope that crohn's doesn't invariably then start showing up outside the colon and putting you right back to where you started (except now without a colon)?  This dilemma has me trying more desperately to try for radical alternative cures (of course that could possibly get me off pred but woulnd't solve the dysplasia issue), though I have not batted well with them to date... but given that there is nothing else out there for now.  Also, while pred- dependent (mostly fairly low levels) to avoid full flaring, I do fairly well compared to the quality of life many report.... but this is still no life,
 
 


Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm, TSO again
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 1/20/2009 8:37 AM (GMT -7)   
Well, dysplasia is pretty much universally regarded as a primary indicator for colectomy, given that it is basically an irreversible process that is likely to proceed to malignancy at some point. So that would be the number one reason for going ahead with the surgery. Also, your uncertainly of diagnosis between UC and CD certainly makes it somewhat risky that Crohns could crop up elsewhere post=surgery, though if it is UC that would not happen. Basically, the pred issue is a non-starter on this if you have dysplasia. That should probably be the deciding factor, as you are talking abuot potential loss of life versus possible loss of lifetstyle/

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2831
   Posted 1/20/2009 9:08 AM (GMT -7)   
Thanks. Still negative for dysplasia, but biopsies lean towards UC as opposed to crohn's colitis... just not more than 90-95% deifnitive with some ambiguity.


Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm, TSO again
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 

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