Could I have chrons?

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oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 4:17 PM (GMT -7)   
Hello
 
My name is Paul, I am 22 years old and have been suffering from medical problems for the last 2 and a half years! Before my problems started I was in perfect health, went to the gym atleast 3 times a week and played 5 a side football and had a manual job.
 
It all started in september 2006 when I went to University, it was freshers week and had drank alot all week. I woke up on the Friday of that week feeling very unwell but put it down to a bad hangover and put my feet up. The feeling did not pass that weekend and carried on so I thought maybe flu or a virus? My symptoms were feeling sick, genrally run down, a swollen throat with white pathes at the back, loss of appatite and stomach pain and then within 2 weeks of initial symptoms I had a discharge from my penis which was a thick white colour and it hurt to urinate etc.
 
At this point I decided to go to the doctors who said go the the GUM clinic. I went and they said I had NSU so I took the antibiotics they gave me. Within days I felt 100% better and discharge had gone. However within 2 days of stopping the treatment, my symptoms came back. Since then I have taken numerous amouts of antibiotics but now seem to make things worse. I have been back to the docs more times than I can remember and have seen numerous specialists and had every test under the sum done! Been to the GUM clinic 10 times and only 7 of those times have said its NSU but never pinpointed anything.
 
Over time, other symptoms have developed such as constant phlegm at back of throat, pain in left side of chest and aches and pains down my left arm and left leg. Still got nausea problems which are worse in the morning
 
My pathetic doctor thinks that it is chronic fatigue syndrome even tho I have never read anything about someone with this constantly having discharge problems for no apparent reason
 
Tests I have had done are:-
 
Endescopy
Camera in colon
Camera down penis
barium meal
Numerous x rays
scan of kidneys
 
My eyes hurt when run down which is basically all the time. I feel depressed by it all, working for a day or being in uni all day really takes it out of me and my throat swells up again and I feel like I have a virus all the time!
 
 
Any advice by anyone would be much appreciated. GERD, Chronhs have also been mentioned

cbk
Regular Member


Date Joined Apr 2007
Total Posts : 134
   Posted 1/20/2009 5:12 PM (GMT -7)   
this sounds nothing like crohn's, i recommend that you see an infectious disease specialist.
22 Female, currently on MTX. Previously on Imuran, Remicade, Pentasa, etc. Ileocolic resection in 2006.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/20/2009 5:17 PM (GMT -7)   
wow you have alot going on I think you do need to have more blood work done.
a barrium swallow might be something as well
But I am not a doc, but this sounds like an infection to me...
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 5:40 PM (GMT -7)   
Thanks for your responses! Went to see an infectious disease specialist just before xmas 08. They said they didnt think it was chronic fatigue and that they thought it was best to see a urologist which I also saw for the 2nd time just before xmas to check my prostate again and they said everything seemed normal with the prostate. Both had done blood tests of which I have heard nothing and from past experience know they will be fine. I have also been to see a haemotologist who discharged me as bloods were basically normal. I have thought all along it may be an infection but most docs steer clear of that as they say it would be unlikely to last that long

FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 1/20/2009 5:40 PM (GMT -7)   
I agree with CBK. Infectious disease specalists are like detectives. They are very good at figuring out strange symptoms and finding solutions.

I hope you get help soon!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 1/20/2009 5:44 PM (GMT -7)   
Def. does not sound like Crohn's. See an infectious disease doctor and get a good primary doctor that really listens and someone you trust! Sounds like an issue that you need to get taken care of ASAP. Please keep us all posted.

LOVEPINK
I have had Crohn's since I was 21 years old and I am now almost 28....

I am currently on Prednisone and have tired literally every drug available.

Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!

Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/20/2009 5:53 PM (GMT -7)   
I would definitely go back to the infectious disease specialist now that you've gone to the urologist like he/she recommended. Sounds like this is one piece of the puzzle, and with this information, the infectious disease doc can explore other options. I agree you need to go pronto.
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/20/2009 6:43 PM (GMT -7)   
No, it really doesn't sound like Crohn's...we generally experience abdominal cramping, blood loss through stool, frequent diarrhea and/or constipation, nausea, the consequent fatigue, and so on.
This sounds like an infection that is being difficult. But if your doctors think the symptoms you have indicate Crohn's you might try a different doctor >_>.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 6:47 PM (GMT -7)   
LMills said...
No, it really doesn't sound like Crohn's...we generally experience abdominal cramping, blood loss through stool, frequent diarrhea and/or constipation, nausea, the consequent fatigue, and so on.
This sounds like an infection that is being difficult. But if your doctors think the symptoms you have indicate Crohn's you might try a different doctor >_>.

I constantly have abdominal cramping (not severe) and my bowels are strange, one day constipation with only small stools and the next day loose type stools that dont look properly formed and sometimes contain dark blood patches in them and blood from colon has happened but also blood from penis aswell

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/20/2009 6:53 PM (GMT -7)   
If that's the case then perhaps the abdominal related problems should be explored more in depth separately? It sounds like you've had a lot of tests done for both in tandem...I'm sorry you're having them at all though..
There isn't a possibility of kidney or liver problems is there? Concerning the bleeding from the penis..I know that some people will lose blood in urination because of kidney stones for example.
I just hope you find out exactly what is going on so you're able to fix and be well soon. This doesn't sound terribly fun. Then again, I guess these kinds of things rarely, if ever, are. I do enjoy the hospital popsicles that come with it though..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 6:59 PM (GMT -7)   
LMills said...
If that's the case then perhaps the abdominal related problems should be explored more in depth separately? It sounds like you've had a lot of tests done for both in tandem...I'm sorry you're having them at all though..
There isn't a possibility of kidney or liver problems is there? Concerning the bleeding from the penis..I know that some people will lose blood in urination because of kidney stones for example.
I just hope you find out exactly what is going on so you're able to fix and be well soon. This doesn't sound terribly fun. Then again, I guess these kinds of things rarely, if ever, are. I do enjoy the hospital popsicles that come with it though..

How else can they be checked out though? I feel like knowone really takes it serious because when I go to the docs I dont exactly look really ill and im young and they say im not going to die so they fob me off thinkin im fine but its ruining my whole life! I really want to find out whats going on more than anything.
 
My kidneys were checked in an ultrasound scan. Never has a test done on kidneys but I doubt there is a problem ther! I search and search for what it could be but so many things come up. I cant bare to live forever like this without any treatment. I cant do a days work without being really ill for the next 3 days, like in bed most of the time! Just about managing to cope with that at mo as im at uni but what the hell am I supposed to do when I work full time. I have had H-pylori and bacterial overgrowth if that means anything?
 
Thankyou for your responses by the way, great site :)

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/20/2009 7:09 PM (GMT -7)   
I know what you mean...that's one of the 'great' things about certain illnesses like this is that you look normal so you MUST feel absolutely fine right? At least that's what people think and many doctors too unfortunately. There are many members on here who were told by their doctors that their illnesses were all in their heads.

There has to be a doctor near you that will be able to take what is going on seriously though...how many GI's have you gone to? And you might try asking some of the members here if they know a good one in your area if they live near you.

I just hate to hear that this is going on with you. I'm trying to get through university as well in addition to finding a job that won't make me keel over so...well, I'm hoping that you're able to find someone to get you better soon. There is absolutely no reason that you should go through this without a proper diagnosis and treatment. Let us know if you find anything?

And the h. pylori and bacterial overgrowth definitely COULD mean something. Do you take any probiotics? They make you bloated and gassy initially, BUT they are very good against the bad bacteria and for your intestinal health in general...they have helped me tremendously.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/20/2009 7:20 PM (GMT -7)   
LMills said...
I know what you mean...that's one of the 'great' things about certain illnesses like this is that you look normal so you MUST feel absolutely fine right? At least that's what people think and many doctors too unfortunately. There are many members on here who were told by their doctors that their illnesses were all in their heads.

There has to be a doctor near you that will be able to take what is going on seriously though...how many GI's have you gone to? And you might try asking some of the members here if they know a good one in your area if they live near you.

I just hate to hear that this is going on with you. I'm trying to get through university as well in addition to finding a job that won't make me keel over so...well, I'm hoping that you're able to find someone to get you better soon. There is absolutely no reason that you should go through this without a proper diagnosis and treatment. Let us know if you find anything?

And the h. pylori and bacterial overgrowth definitely COULD mean something. Do you take any probiotics? They make you bloated and gassy initially, BUT they are very good against the bad bacteria and for your intestinal health in general...they have helped me tremendously.

Yeh I have been told by a few specialists that I think im ill or im just depressed! Dunno how I can cause a discharge and a mouth constantly covered in ulcers. I have been to 4 different GI's. 2 good and 2 bad! I took probiotics for a while and didnt notice a change but maybe I didnt carry on for long enough, suppose there worth taking anyways.
 
Every test I have had done shows inflamation but my doc doesnt click that it could mean anything. At my docs they wouldnt let me change my doctor so I moved to my university doctors which hasnt really improved things. Everthing takes ages, results still not through from hospital tests done early december so im litrally just waiting around doing nothin about it as the docs is a waste of time coz they need hospital results to see what next step is and got no future appointments at present.
 
One of the GI's which was the best one I have seen said he couldnt be sure I had chrons but said i have a good chance of getting it in the future so must of been something in the endoscopy results which again showed inflamation and this h pylori thing

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/20/2009 9:32 PM (GMT -7)   
Wow...don't know what to say here except I have a friend who has mouth ulcers. Hers are now gone after adding a probiotic to her diet and eating a high-quality yogurt all the time. I have read where it says to actually hold the yogurt in your mouth for a bit to help the ulcers. Make sure your probiotic is strong enough--like at least 10-15 billion cfu per capsule! Also, you might consider eliminating all junk from your diet--especially sugar and possibly wheat... hard to do when at college, I know...

Anyone...? how does a yeast infection manifest itself in men? We know they can get them. Do they ever cause the kind of discharge from the penis that oggy22 is talking about?

Good luck to you! I'm sorry you're going through all this and I hope you get to the bottom of whatever is going on! In the mean time probiotics and yogurt couldn't hurt and they might just help!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/21/2009 5:18 AM (GMT -7)   
I am going to try the probiotics thats for sure! Deffo worth a try! As regard the yeast, I have looked into Candida? Anyone heard of it? I tried a wheat free diet for about 2 weeks last summer and then caved in! It was really difficult. The docs dont seem to think that it could possibly be this but its the only thing i have found really that links the symptoms with a discharge.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/21/2009 5:38 AM (GMT -7)   
an h pylori infection might explain some of your GI problems but I wonder if the discharge from your penis might be a fistula pushing thru your urinary tract some where
as to a yeast infection it usually manifests with tiny little red bumps on the penis and that is usually only after sexual contact, but since you have been on antibodics it could be something to get checked out (perhaps Dilfucan (perscription) might help?)
(every woman over the age of 12 has heard of candida if she has taken antibodics...ouch!)
you have not said if you are sexually active (maybe I missed it), if you are then you definately need to get checked out for sexual transmitted infections.
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/21/2009 5:42 AM (GMT -7)   
What is a fistula and would that be found from the camera down the penis I had done? I am sexually active with my girlfriend only of nearly 3 years. I have been tested for an STD 10 times and only ever been told its NSU because there is infection but they can never pinpoint it. My girlfriend has been checked 3 times just to make sure and has been clear on all 3 occasions.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/21/2009 6:05 AM (GMT -7)   
If it was a fistula then it should have been found by now.   Have you had a CT and an MRI done?  Have you done a barium swallow with an xray series?
Unfortunately it sounds like you might have to get worse before they figure out what you are sick with.

does she have a yeast infection?


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/21/2009 6:08 AM (GMT -7)   
No I havent had a CT or an MRI scan. I have had the barium swallow tho which was fine!

She has had a yeast infection at somepoint I think but i think she took something for it

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/21/2009 6:42 AM (GMT -7)   
ok you might think about getting checked out for a yeast infection (especially since you have taken antibodics, they can cause it)
Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


oggy22
Regular Member


Date Joined Jan 2009
Total Posts : 23
   Posted 1/21/2009 6:44 AM (GMT -7)   
How do you get checked for that? I have said this to my doctor and he has dismissed it.

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 1/21/2009 7:46 AM (GMT -7)   
since you cannot take the over the counter internal meds, I would just propose to the doc lets see if this (meaning a diflucan) is something that might help...
 
In all honesty I do not know what is wrong with you, and I am not an MD.  I think you might have to do some wait and see, something might be cooking and it might just not have declared fully itself yet.  Plus I think keep seeing the doc in the meantime...


Forum Co-moderator - Crohn's Disease
...I will find a way, or make one. -Philip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 1/21/2009 7:50:32 AM (GMT-7)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/21/2009 7:47 AM (GMT -7)   
Doctors do dismiss it. It's unfortunate. Probably because they prescribe antibiotics every day and antibiotics (and our lousy diet) are a leading cause.

Testing is not cut and dried. I suggest you google "Candida testing" and go from there, but I think you are on to something. Pardon the pun, but listen to your gut on this. You seem to have really great instincts and are doing a fabulous job of advocating for your own health here--something we all have to do at some point in our lives; no one else will do it for you!

As you read about testing for Candida, notice it is VERY VERY difficult to clear from the body. It seems even a round of Nystatin or Difulcan does not do the trick. Diet must be addressed and probiotics taken, and it still may take years. Never fear, though! Most of us probably have this to some degree or another! It is even considered a possible culprit in Crohn's. We've had lengthy discussions about it here in the past!

You might be better served to hook up with a naturopath, as they are more accepting of Candida overgrowth as a legitimate issue and may have tests (saliva or fecal) which are even more accurate. Just a thought. Also, I would recommend your girlfriend take a probiotic and eat yogurt, as well. Once prone to yeast infections, always prone, in my book. I've gone through periods in my life where just over-indulging in sweets (like through the holidays) can bring on a yeast infection.

Lastly, if you decide to address diet, check out the book "Breaking the Vicious Cycle" by Elaine Gottschall. This diet (the SCD--read my bio line at the bottom) has extensive free online resources (recipes!) and cook books written that are compliant. It is anti-Candida, as well. Many here follow this diet.
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


leangreencafe
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/21/2009 7:40 PM (GMT -7)   
Hi I'm new, but not new to Candida. I have a folder containing a questionnaire for Candida, and two docs with a lot of research and simple steps to follow. Since parasites, Candida, cancer, virus's and bacteria thrive on acidic environments, and we are great hosts, I always recommend folks rule out parasites, or clear the deck. Onelifeusa.com has Dr. Hulda Clarks' original parasite cleanse with instructions. Then to break down the protein walls of Candida without causing dieoff, when any fungal form can poof you with their 72 toxins, as they don't go silently into the night...I like Candex. It has probiotics and enzymes to digest proteins. Easy few days and that is done. Nystatin is toxic to the liver, as is any antifungal. Nystatin powder form has talc in it, which has been implicated in ovarian cancer. Candida also grows immune to it. The liquid form has sugar in it to feed the yeast.
Okay, now to change the acidic environment that they love....Alfalfa. Only the green leafy tops, organically grown. Ask me.
The tap root goes down 10-20 feet and picks up microminerals other plants just can't give us. It's called the King of Plants.
Innoculate with a probiotic that gets past the hydrochloric acid in the stomach, 100% into the colon. Yogurt and kefir is great, but you need this little devil every day to balance your gut, build back the immune and crowd out room where Candida can grow.
A multivitamin coated with folic acid, with 100% biotin that keeps the Candida from going into the fungal form, which is when the mycelium go through the intestinal walls, and all the culture's favorite foods like gluten-based and wheat begin to cause havoc as the molecules going into the body are attacked by the immune system.
Meds, birth control, steroids and cortisol from stress all acidify your innerds. Doctors say what the disease is does not matter, it is the acid environment that must go.
Don't think you can start eating Pacific-caught salmon, organic chicken, brown rice, veggies and hummus and then cheat without the little yeasties knowing. Diet and exercise help manage a balance of Candida. We all have it. It just gets overgrown, and if you can imagine the blood being the river, it can lodge in our organs. When conditions for fungus are present, then cancer and other disease also thrive. If you have to cheat, take alfalfa and exercise more that day. Lots of oxygen. If you crave sugar, the Candida and/or B vitamins are imbalanced, or you need to get a significant other. Don't take single high doses of B's, as that tips the apple cart, and can actually cause depletion.
If you visit one of my blogs, you can see the sheet called Medication-Induced Nutrient Deficiencies and other info.
Happy trails....
www.leangreencafe.blogspot.com
www.ladyofthelake-vernonialake.blogspot.com

ps. Prostate problems, psoriasis, skin fungal problems, yeast infections, IBS, sinus infections, all are Candida related....
One man had great success missing the fun of 12 prostate biopsies with an antioxidant product. I'll be glad to share his story.

leangreencafe
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/21/2009 7:45 PM (GMT -7)   
Paul---INSIST that the doctor does a culture. Thrush or Fungal infections are not helped by antibiotics, they help the stuff to grow. I get so IRRITATED by lazy medicine.
See my last post or visit my blog at www.leangreencafe.blogspot.com
Best to you. Beer has a high sugar content, and any Candida you had probably had a fiesta.
You're going to have to alkanize and take a probiotic, etc. There is a simple path to follow. You'll be fine.
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