I've tried every drug approved and used to treat Crohn's except Cimzia... I plan to start that as soon as the prior auth is approved.
What I do is keep my eye on clinical trials and use steroids.
I have no expectations of a cure anytime soon, but I am very hopeful about stem cells as a long term treatment.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night. Doing well with this so far. Dx Osteoporosis 10/08 waiting to start Forteo (pending approval)
--single mom to 11-yr-old girl