So it should be fitting that I come back to this forum to talk about one of the more disgusting issues of our disease. I have Severe CD in both large and small intestines, Celiac's Disease, gastroparesis, and IBS. In September, surprise of all surprises, I found out I was pregnant and was taken off all my meds (including my 8.5 mg/kg Remicade every 4 weeks). We lost the baby at 10 weeks, and I didn't get back on my Remicade until early December when my grandfather (whom I was extremely close to) passed away. We bought a new home in November, and a new car in December. I was pretty sure that if a Flare-up were to find me, it would be now.
So in the last 4 weeks my joints have gotten worse, hair has fallen out, fevers, D is about 7-8 times a day when I eat, and Sunday night I started vomiting...EVERYTHING. My GI ran a Sed Rate, CBC, and Basic Metabolic Comp. Panel on Monday and I was so dehydrated that I got stuck 3 times and finally they had to draw the blood with a syringe as it just wasn't coming out. I saw the Rhem this morning who stated my joints look- visually, fine. So he's wondering if either the Remicade isn't working anymore, or if I need to go through the Loading Dosage again.
But I noticed several days ago that there was a distinct discharge from my vagina and a lot of pain around the opening of urination (what is that- the ureathreal opening?-all those years of Pre-Med...down the drain). I can't find any type of opening, but I do feel a rather large area of (pus? tissue?) something that hurts very badly inside the inner labia. Does that make any sense to anyone? I've never had a complication like this before, and am only somewhat aware of what a vaginal fistula is, and this doesn't seem to be in that area.
Any advice you could give would be wonderful! My GI's nurse seems very worried. She called me to say I needed to be seen right away (before I told her I suspected maybe a fistula) and that the labs came back but the Dr wants to talk to me about them. I can only assume that means they aren't normal- which is fine, since that explains the symptons (I've always had normal labs- even when my colon was full of ulcers).