Crohns and trying to get pregnant.

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Biz E Rindy
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/21/2009 2:14 PM (GMT -7)   
Hello all...I'm new here! But I'm excited to talk with you all. From what I've read you seem like just the kind of people I need to be able to share with. I'm 27 years old. I have a 3 year old little girl and shortly after whe was born I was diagnosed with crohns. So the past 3 years I have had been on all the meds and had all the tests. I am now off of everything but a double dose of remicade every 6 weeks. Other than advil i haven't even needed pain meds for about 5 months. It's been great and I feel good. But it seems that I'm getting the baby blues as is my husband. We are trying for our 2nd now. But I am very nervous about continueing on the Remicade. I am so afriad to get off of it and go through what I went through in the past yet again. But I want to have a happy, healthy baby like my first.
 
I'm just stumped on where to start. any advise would be great.
 
Also wondering should I seek out a high risk OBGYN or stick with the one I have. My first was delivered by a midwife but in a hospital. Is that still a good idea.
 
I'll check back with you all. we will be taking our home test in the next few days.
 
Thanks so much.

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/21/2009 2:40 PM (GMT -7)   
I just had my first and my Crohn's stayed in remission the whole time. I think the rule of thumb is to go into the pregnancy healthy, that's the best way to stay healthy throughout. Healthy Mom = healthy baby. Usually that means staying on some meds. I've never been on Remicade, but many moms here have while pregnant. Search though old posts and you'll find a lot of info (we've had a baby boom recently). I think there was a very recent about a small study of pregnant women on remicade that had good results.

I did not see a high risk OBGYN. I was in remission and had no probs w/ the Crohn's, so it was not necessary. I think women on Remicade do tend to see them. I'm actually planning to use a midwife next time as long as I'm as healthy then as I was this time.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 1/21/2009 2:57 PM (GMT -7)   
Our stories are very similar it sounds like..except I was very sick during my 1st pregnancy with my daughter who is now 3. At the time they had no idea and were limited on the testing because I was pregnant so I suffered ALOT!! I was in the hospital 6 or 7 times for a total of 30+ days from 11 weeks until delivery. It was NOT fun!! I was dx'd 3 months after delivering my daughter. Spent a year trying to get a med that would work. Finally started remicade which helped but my crohn's was already so bad that I had my first resection in July 2007. Went back on remicade in Oct 2007 as maintenance drug.
 
My 2nd daughter was born 9/9/08 and I stayed on remicade throughout my entire pregnancy. I had my first infusion at 7 weeks and my last at 31 weeks. My Ob wasn't as excited about me staying on it, but my GI felt there was no other option. She is perfectly healthy and the happiest baby I have ever seen. There are some vaccination restrictions if you have a treatment in the 3rd trimester but the only one that my daughter hasn't been able to get is the rototeq which is a new oral vaccination for roto-virus.   
 
Listen to your heart and trust your drs. What's best for mom is best for baby.
Goodluck and Take care!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/21/2009 4:48 PM (GMT -7)   
Just wanted to check to see if you've talked to you GI about taking Advil. It's normally a no no w/ Crohn's.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


Biz E Rindy
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/22/2009 12:19 AM (GMT -7)   
i have talked with him and i have had decent results with it. Tylenol doesn't work that well but advil has managed to help with the occasional headache. I just hate the thought of taking my ongoing prescription of Darvoset. Sometimes it makes my tummy upset but I have a pretty high pain tolerence...so sometimes I don't know things are bad until the are really bad. Usually i take PX strenth Ibprophen which the GI prescribed.

Biz E Rindy
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/22/2009 12:26 AM (GMT -7)   
Wow Chasity...sounds exactly the same.... I too had a very rotten pregnancy...I kept thinking something was wrong with the baby. but the midwife told me I was overreacting. the baby was fine...but I knew something was wrong. 6 months after she was born I was dx'd. I just hope and pray that baby 2 is as smart and perfect as Lynlee, my first. Tears appear when I think of how much of a blessing she has been. We want another so bad...but sometimes the fears just overwhelm me. I want to do everything right for baby #2. My husband is home from a work trip tonight and we plan to take a test in the morning. Fingers crossed it will be positive. but if not we know that it will happen when it is suppose to. thank you so much for sharing your story. until now i have never talked about my issues with anyone like this. It is refreshing to know that I am not alone.

thank you more than words can say.
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