I wonder why????

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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 1/21/2009 5:42 PM (GMT -7)   
I've always wondered why there is so many more topics and posts for both the Crohn's and the Ulcerative Colitis forums then the other.  eyes   I don't think that IBD is more common then the other diseases but I seem to know more people with them then the others except for diabetes.  My daughter's neighbor and best friend was just diagnosed with UC and a co-worker of mine also has Crohn's.
 
Does anybody have any ideas?
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/21/2009 6:00 PM (GMT -7)   
Hi I guess because it is the most interesting thing on the menu..a book of infinite problems that just don't go away like me...lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/21/2009 6:45 PM (GMT -7)   
Peter (Admin) says it's because the Crohn's and UC forums are some of the original boards at this site - the other forums were added later.

I think it's also because we find it harder to talk about our symptoms in the real world than, say, diabetics and asthmatics, so we have a greater need for online support.
Co-Moderator Crohn's Forum.


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 1/21/2009 6:50 PM (GMT -7)   
Add to this that every one here has a different story even if most of us have the same disease, it still differ from person to the other.
every one, especially newly diagnosed people needs to get information form people who has this disease for along time.
Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/21/2009 6:56 PM (GMT -7)   
Yes, if you ever want a seat on a bus, just start describing various Crohn's manifestations in detail. People will move away very quickly in case you are contagious. You will have your choice of seats! I've even freaked out med students and ER docs when talking about peri-rectal abscesses and fistulae.  I wasn't trying to, but as I was describing what I had I realized they were slowly backing out of my curtained area.  Weaklings!


Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/21/2009 8:29 PM (GMT -7)   
:-)
Co-Moderator Crohn's Forum.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/21/2009 9:10 PM (GMT -7)   
Actually this question is brought up on occassion....I think it has to do more with the fact that IBD still seems to be more of a taboo subject with talking about poops and stuff compared to the other conditions here at HW where those are not considered taboo to discuss abroad so us IBDers need each other to discuss our particular issues with since we are kinda tabooed against doing it with the general public....apparently it's still inappropriate to talk about poop in public.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 1/22/2009 5:34 AM (GMT -7)   
I agree with these responses. Though I am redundant in saying so, this place is the only place ouside of my doctor's office that I can openly communicate what's going on with my body. When this DD is brought up to everyday folks, most of the time they don't know what crohn's is, and in some cases folks will involuntarily move away thinking it's some communicable disease.

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 1/22/2009 6:18 AM (GMT -7)   
I lost just about every friend I have! My sister has Crohn's too, and every time I call her just to ask her a question she won't talk to me--it was then that I learned that this disease is different for everyone.
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 1/22/2009 10:16 AM (GMT -7)   
Cutie, I know how that goes with your sister. My daughter is the same way. Ever since she became an adult she hardly wanted to discuss it with me. But now that I've been diagnosed with it too, she is more open. She hasn't been under doctors care since she was 19-20. At least now I can tell her that she is slowly doing damage to her innards but at least not being on a maintenace med. She has weathered several flare-ups since then but still hasn't seen a doctor for it. All I can do is let her know I'm here if she ever needs me.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril

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