bye bye LDN, hello Cimzia?

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Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 1/21/2009 8:15 PM (GMT -6)   
So, the LDN isn't doing enough fast enough. I'm going to land in the ER before too long with this D, and I'm going INSANE from not being able to leave the house. I am so frustrated because it seemed to be working so well until I screwed up and started taking it with Benadryl... between that goof and going back to eating gluten I think I sealed my own fate on this one. I am SOOOO mad at myself right now.

Why do I always wait until I am crap out of luck to try new drugs and therapies? I could have started using fiber forever ago. I could have started the gluten free diet forever ago. Now I can't fix myself, and I'm p'd off about it. It's so easy when things are going well to forget about this disease, and then I end up here, at the end of a rope, and I can't do ANYTHING to help myself.

So, Cimzia it is. Remicade was a life saver for me for years. I guess he's hoping that the Cimzia will provide similar relief. I don't really care anymore. I just want something that works. I'm so sick of being sick right now that I'd dig up worms in the back yard and eat THOSE if I really thought they would help.

Thank for listening, guys.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
(miscarried at 13 weeks, now waiting to heal before trying again)
Stopped Humira August 22nd, 2008.
Went Gluten-Free, noticing some definite improvement.
Started LDN October 27th, and already LOVING IT.

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

Veteran Member

Date Joined Oct 2008
Total Posts : 1342
   Posted 1/21/2009 8:58 PM (GMT -6)   
I know what you mean, it took a long time for me to learn to be proactive about the disease BEFORE I ended up in big trouble. I'm 33 now, and finally took action. I started Humira last summer and it's really working for me, but I was worried about what happens when it stops working. That's why I started the SC diet. Maybe I can get myself in good enough shape that I won't have to worry about the Humira.

I hope the Cimzia works for you. I know I wouldn't hesitate to give it a shot if I had too. You can only take feeling cruddy for so long.

It's funny that you mentioned worms, because there was a research study awhile back (could still be going on) that had Crohn's patients ingesting some sort of worms :).

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 1/22/2009 8:59 AM (GMT -6)   
Hi Don't beat yourself up you took good care of yourself and you will get things going better again. The Cimzia will probably be good for you since Rem. worked so well hang in there and forget the yard worms they aren't quite the same... hugs... hugs... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still gail

New Member

Date Joined Jan 2009
Total Posts : 3
   Posted 1/22/2009 4:23 PM (GMT -6)   
I took Cimzia for several months and it seemed to relieve my symptoms for quite some time. But just like all the other medications, it stopped working for me. I hope you have better luck than me!
Diagnosed with Crohn's 7/2007. Tried Entocort, Humira, Remicade, Cimzia, and Imuran. GI recently suggested research studies.

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 1/22/2009 6:25 PM (GMT -6)   
I'm really hoping that if it works it will do so long enough for me to get my act together with more "natural" daily maintenance. I think right now I'm just blowing money on expensive alternative therapies that are only staying in my body for the blink of an eye. Maybe the cimzia will heal up my ulceration enough for me to have a healthy baby sometime soon too? One step at a time though, I know. One step at a time!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
'cade stopped working in '08 and I've been scrambling ever since.
Noticing a real difference with a Gluten-Free diet.
Currently on:
Probiotics, Digestive Enzymes, and Prednisone
Soon to Start:
Cimzia, acacia fiber supplement, and L-Glutamine

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