Maintenance Med's

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HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 1/21/2009 6:27 PM (GMT -7)   
Hi every one...........

Any one can tell me if maintenance Med's really help CD patients or not? and what these Med's are so I can ask my doctor?

Thanks in advance

Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(20mg), Pentasa (4mg) Remicade/monthly, Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind
Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(20mg), Pentasa (4mg) Remicade/monthly, Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/22/2009 6:54 AM (GMT -7)   
Hi There are many here who take meds and sometimes have to change them,I see you are on alot ,How are they working for you? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/22/2009 7:03 AM (GMT -7)   
One of the Moderators of this forum put together great information about meds used in Crohin's. To find it, go back to the list of posts. The second one from the very top is called "Crohn's Disease Resources" -- click on it. Then click on the third post called "Starting a new medication". Click on the last word in the post -- the word "here".
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 1/22/2009 8:42 AM (GMT -7)   
I'm on the Maintenance drug COLAZAL...well, the generic of Colazal.
 
My GI has told me Crohn's patients should ALWAYS be on a maintenance drug, no matter what other meds (like Prednisone) you're on.  Maintenance drugs are a must.  Will they cure you?  No.
Diagnosed in October, 2004 at age 32.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/22/2009 3:45 PM (GMT -7)   
I believe the Pentasa that you are taking is considered a maintenance med.....
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 1/22/2009 7:07 PM (GMT -7)   
Honestly Non of my Meds are working any more. Even remicade the one that use to work stop working for me since 3 months now I developed allergic reaction to it so I think I 'm going to Humira now. Still alive and I have a hope things one day will work for me.
Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/22/2009 8:07 PM (GMT -7)   
I'm sorry to hear that...I am on humira as well and it seems to be doing its job with a strict diet. I hope it works for you!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 1/23/2009 10:03 AM (GMT -7)   
Thanks for your input. I really do the same I 'm very concern bout food but still things seems to be not working good. I see it will some day. Hope is my Weapon.

thanks again and wish me luck with Humira
Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2009 8:54 AM (GMT -7)   
I am a firm believer in maintainence meds. I once enjoyed a long remission med free that ended with no flare, but an emergency resection. I only take Asacol as my maintainence med, and it works well for me. Hope the Humira does the trick for you.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 1/25/2009 11:40 AM (GMT -7)   
thanks a lot guys for all good and wonderful responses. I Wish Humira will work for me.

best of luck for every one in this forum.
Age:28
Diagnosed with CD in Jan, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins
Surgeries : NONE
..........................................
Words are, of course, the most powerful drug used by mankind


aragorn
Regular Member


Date Joined Jan 2009
Total Posts : 31
   Posted 1/27/2009 11:40 AM (GMT -7)   
The 4mg for Pentasa seems like a very low dose - I'd ask my doctor about that. It targets the small intestine. I'm prescribed four thousand mg per day. On my own, I also take omega 3 fish oil, bee propilis, and acedophilus.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/29/2009 5:35 AM (GMT -7)   
I take 3 pills of Asacol (400mg) twice a day.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/29/2009 7:31 AM (GMT -7)   
Wolfie be sure to continue on your Asacol after your resection. After my last resection the doc said I could stop taking the Asacol, I did, and immediately got sick. I went right back on them and started feeling better soon. Asacol is a very mild medication, so it is good as a maintainence med. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/29/2009 3:34 PM (GMT -7)   
Thank you Nanners, I will continue to take my Asacol. I don't want my disease to come back for a long time..
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