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actressandwriter
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/21/2009 8:48 PM (GMT -7)   
My name is emily and I am 16. I have crohns disease. I was diagnosed at 8 years of age.
It stopped bothering me for a while, but has recently come back ten times worse. Some days I cant go to school when I get a flare up, and I have passed out at school. I dont take medicine, and I dont believe in doing so.


Any natural ways of helping it?

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/21/2009 9:04 PM (GMT -7)   
Hello Actress! Welcome to the forum!

You will find a wonderful amount of insight and information from the good folks here. Many have had Crohn's dosease (CD) for many years, and have been through a lot and tried a lot of ways to help keep their disease under control. The goal is to keep the disease calm, which means keeping after it even when you don't have symptoms. Things could be brewing and damage could be happening that will eventually cause trouble. I suggest you read a lot of the posts that talk about diet, medications, etc.

Have you been to the doctor about your current flair??
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/21/2009 9:47 PM (GMT -7)   
There are natural remedies, but it's not terribly likely any of them will give you remission. Especially if your Crohn's is affecting you this way..any particular reason why medicine is not your way to go?
Bee propolis, peppermint tea, marshmallow root, aloe vera, and so forth are known for helping symptoms.
http://www.herbalremediesinfo.com/crohns-disease-overview.html
That has a lot of natural remedies.

One word of caution however: The risk with natural remedies is that many have not been tested properly and have the possibility of containing toxic compounds such as lead or mercury. You'll have to be very careful and do a lot of research before finding the right ones. And then certain ones like aloe vera for instance help some and greatly hurt others.

You might also try the SCD diet. Many patients have achieved remission through this and were able to stop their medication after a year or two on this(very strict!) diet. Most of us need our medication before and during it however to help get to remission.

I never believed in taking medicine either until I realized I'd be dead without it so, of course my opinions on it are a tad 'biased' in light of it all.
Just don't let it hurt you beyond repair. Remember that the ingredients in medication come from the natural world also and that many natural remedies are fully capable of giving adverse side effects if natural medicine is practiced improperly.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


actressandwriter
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/21/2009 10:09 PM (GMT -7)   
It is against my values. I have very little drug tolerance because of it, so im afraid if i take some now that it will hurt me more than help.
I am a multiple as well, i dont even take meds for that.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/21/2009 10:20 PM (GMT -7)   
hi emily. i went the natural route a few years ago and i am so glad i did! i am feeling great and i am off all my meds. i have had great success with this way of treating the disease and had basically no success and only minimal results when taking meds, and i took virtually of them and at high doses for long periods of time.

as for diet, i suggest the maker's diet or the scd. both are very good imho. but both are difficult and very strict, so you have to have a lot of will power and self discipline. but if you can pull it off, sticking to their regiments, imho you'll feel a lot better and it will be worth it. and over time it no longer becomes hard because it is a habit. you've built a new lifestyle of eating and thus it is a way of life and is no biggie.

i see an acupuncturist and chiropractor regularly, but i never felt it helped my crohns. however i do believe it aids my overall health and is something every one should do, crohns or not.

exercise is good too. being active strengthens your immune system and will also help you deal with depression and focus/channel your energy into something constructive.

vitamin D (get it in D3 form) and probiotics and omega 3 EFAs may help. digestive enzymes may be something to add as well.

i find that if i have a tummy ache, peppermint tea and ginger tea helps a lot. for flares the only relief i get is from fasting.

if you live anywhere near san diego, i have recently found a very good naturopathic doctor. he said he has very good results with crohn's patients. he does do phone consultations, but he is expensive and doesnt take insurance. so talk to your parents about this option and have them investigate it with you. if you are sick of taking meds and scared of the side effects and what they are probably doing to your body but you wont find out for like 20 years, then i highly recommend looking seriously into this guy or finding some one like him in your local area. here is his website: http://www.lajollawholehealth.com/

best of luck!!! i hope you find some answers here.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/22/2009 6:30 AM (GMT -7)   
Hi and welcome to Healing Well glad you joined us. You have had crohn's for a long time and I was wandering how you have managed these last 8 years. Some of us have been on different diets and I follow low residue easy to chew easy to digest foods. I take a B-12 shot too, and a multi vitamin,and calcium and vit D. Is your crohn's mild, moderate or severe. I am not on meds now but sure took them for awhile and have had two surgeries so far. I am feeling better but know that if things act up I will need more meds. Why are you passing out have you had recent bloodwork done?? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/22/2009 6:50 AM (GMT -7)   
Hi! Welcome to the forum! My son is about your age and is off meds. We give credit to the SCD and supplements. Passing out is not good, though!!! You must get to the bottom of that! Any idea what is causing it?

I ditto what CrazyHarry said about supplements: vitamin D3, probiotics, omega 3 EFAs, digestive enzymes.

By "multiple" do you mean schizophrenic? Sorry, not familiar with the term. If that's what it is, the above supplements, especially D3 and omega 3s have been shown to help.
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


actressandwriter
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/24/2009 3:25 AM (GMT -7)   
by multiple i mean i have DID

I passed out because of the pain. i dont take pain well. My blood pressure went up and i passed out.


Thank you guys so much, im gonna try some of that.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/24/2009 5:07 AM (GMT -7)   
Hi Still not sure what DID means. Have you seen a Dr. recently to rule out dehydration? It is important to keep fluids in the body .I don't think that you should let these warning signs pass by without doing something about it. I don't take pain well either and that 's when I went to emerg. and got some help. I know meds seem a bit friegtening at times but sometimes they are necessary. Please keep in touch and let us know how things are going. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2009 8:01 AM (GMT -7)   
Well I am someone who has had this disease for over 33 years and I can tell you (my personal opinion) that you are making some big mistakes. I personally believe that all Crohnies should take some type of maintainence med at all times. I believe (my opinion again) that you are doing some serious harm to your body. This is not a disease to take lightly, you could have some serious consequences by taking the approach you are now.

Yes you can try either the SCD or Makers Diet, but these diets are very restrictive and you must follow them to the letter. And they work for some, BUT, not all.

I once enjoyed a long remission med free, but paid a very heavy price because I ended up having a emergency resection. And believe me that was not fun at all. It was a very painful experience. While you are going on living your life the disease is still in there doing its damage with inflammation that heals then creates scar tissue which eventually blocks your intestines.

Please see your doctor soon, as I stated before, this is not a disease to mess with.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 1/24/2009 9:54 AM (GMT -7)   
Hi Actress and welcome to HW!

I know you said taking medicine is against your values, but I would encourage you to go ahead and see a dr. I was diagnosed with I was 24 and didn't want to take medicine either. It's not against my values, but I just don't like to take more than what I need. Does that make sense? But I learned that if I didn't take medicine, there was no way for me to even hope for remission.

Please learn all you can about this disease. This is something you will live with for the rest of your life, so do not ignore it. Also, find a good gastroenterologist.

Keep us posted.

sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/24/2009 5:49 PM (GMT -7)   
DID means dissociative identity disorder, also known as multiple personality disorder. It is often mistakenly referred to as schizophrenia, but in reality schizophrenia is a completely different disorder, it is very different from DID. My understanding is that DID is caused by extreme early childhood trauma, but there may be other causes that I am not aware of.

sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/24/2009 5:49 PM (GMT -7)   
DID means dissociative identity disorder, also known as multiple personality disorder. It is often mistakenly referred to as schizophrenia, but in reality schizophrenia is a completely different disorder, it is very different from DID. My understanding is that DID is caused by extreme early childhood trauma, but there may be other causes that I am not aware of.

sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/24/2009 5:49 PM (GMT -7)   
DID means dissociative identity disorder, also known as multiple personality disorder. It is often mistakenly referred to as schizophrenia, but in reality schizophrenia is a completely different disorder, it is very different from DID. My understanding is that DID is caused by extreme early childhood trauma, but there may be other causes that I am not aware of.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/25/2009 1:10 PM (GMT -7)   
Hi Thanks for explaining Sassy.

Hi actressandwriter hope you are feeling somewhat better. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/25/2009 2:01 PM (GMT -7)   
Hi Sassy:

Are you being treated psychotherapeutically for your psychiatric problems? Your symptoms suggest that your crohn's disease is out of control. That is very worrying given your attitude towards medication and your concurrent pschiatric diagnosis. Is it possible that your refusal to access appropriate medical treatment is a symptom of the disordered thinking that can accompany dissociative identity disorder? There are often strong elements of self-abuse demonstrated by those suffering from this disorder. I am troubled by your post and hope you are receiving supportive professional healthcare for both your conditions.
Belleenstein:

30+ years living with Crohn's.


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 1/25/2009 4:02 PM (GMT -7)   
My story with this disease is that when i was 17 and in my last year of high school i started suffering from all the typical D spending hours in the toilets a day at school spending most of my life being embarrassed and trying to go stealthy and unnoticed by anyone into the toilet. This went on for 12 months with added depression weight loss and a pain in the butt (literally). When i started work out of school waitressing i missed a lot of work and wasn't in the best relationship so i spend my days fighting with my family, trying to get attention from my boyfriend and stressing about missing work yet again.

I was diagnosed after 4 operations on 2 mega sized peri-anal abscesses and went from 60kg to 43kg and was a bed ridden flagyl filled skeleton. I told my GI at the time i didn't want pregnisolone because i didn't like the drug with all its problems and was put on flagyl, messassal and remicade. After my near death experience with the infection that the doctors couldn't diagnose as an abscess I made some big changes in my life. The family that i faught with everyday the year before where at my side through the whole thing and i formed strong bonds with them and made up for lost time. I got rid of the useless boyfriend who i still madly loved at the time but knew it was the right thing for myself, quit my job and found one in an office where i wouldn't have to be on my feet all day.

When i was strong enough took up kickboxing and fell in love with it and did it 6 days a week. I refused any medication and committed to the changes i had made in my life, changed my diet to lactose and gluten free and I prayed every day. After my last remiciade treatment went into remission for 8 years with no medication. I think because i was in remission for so long I was in denial that i even had crohn's and wouldn't take any medication until a year ago it came back and i realized crohn's is a mystery and we don't know why it comes and goes, why it is bad or mild some days but you cant do it on your own. Today I am Married with the most amazing man who was and is(My Muay Thai Kickboxing Teacher) I have a son and am a proffessional fighter and have pushed my body to the ultimate in so many ways. My advise to you is that you can still be in charge and feel empowered by your disease and take medication because i feel that there are other factors like stress and diet and lifestyle that only you can control so why not just let the doctor take care of one side of it for you and medically fix what is wrong. It worked for me!
26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/25/2009 4:28 PM (GMT -7)   
An amazing story Cayer! Sorry you went through so much! It is good to hear from someone who had such a bad experience and has excelled in spite of it all. I am still recovering physically from my own very bad experiences over the last 2 years. No abscesses for seven months. Yea!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


newbie00
Regular Member


Date Joined Jan 2009
Total Posts : 26
   Posted 1/25/2009 6:10 PM (GMT -7)   
cayer said...
My story with this disease is that when i was 17 and in my last year of high school i started suffering from all the typical D spending hours in the toilets a day at school spending most of my life being embarrassed and trying to go stealthy and unnoticed by anyone into the toilet. This went on for 12 months with added depression weight loss and a pain in the butt (literally). When i started work out of school waitressing i missed a lot of work and wasn't in the best relationship so i spend my days fighting with my family, trying to get attention from my boyfriend and stressing about missing work yet again.

I was diagnosed after 4 operations on 2 mega sized peri-anal abscesses and went from 60kg to 43kg and was a bed ridden flagyl filled skeleton. I told my GI at the time i didn't want pregnisolone because i didn't like the drug with all its problems and was put on flagyl, messassal and remicade. After my near death experience with the infection that the doctors couldn't diagnose as an abscess I made some big changes in my life. The family that i faught with everyday the year before where at my side through the whole thing and i formed strong bonds with them and made up for lost time. I got rid of the useless boyfriend who i still madly loved at the time but knew it was the right thing for myself, quit my job and found one in an office where i wouldn't have to be on my feet all day.

When i was strong enough took up kickboxing and fell in love with it and did it 6 days a week. I refused any medication and committed to the changes i had made in my life, changed my diet to lactose and gluten free and I prayed every day. After my last remiciade treatment went into remission for 8 years with no medication. I think because i was in remission for so long I was in denial that i even had crohn's and wouldn't take any medication until a year ago it came back and i realized crohn's is a mystery and we don't know why it comes and goes, why it is bad or mild some days but you cant do it on your own. Today I am Married with the most amazing man who was and is(My Muay Thai Kickboxing Teacher) I have a son and am a proffessional fighter and have pushed my body to the ultimate in so many ways. My advise to you is that you can still be in charge and feel empowered by your disease and take medication because i feel that there are other factors like stress and diet and lifestyle that only you can control so why not just let the doctor take care of one side of it for you and medically fix what is wrong. It worked for me!

Awesome story!  I used to train at a Muay Thai/BJJ gym years ago :D

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/25/2009 6:23 PM (GMT -7)   
eyes Cayer, I can't help but feel you should change your screen name to "kicka*s" ! wink
Actressand writer, I feel for you. I wish I had been diagnosed at your age.
It is worth noting that the line between natural and synthetic drugs with Crohns is a bit blurred. For example methotrexate is just a slightly different form of a naturally occurring substance - a spice if I remember correctly - some cynics might suggest that it was tweaked just so that the drugs company could patent it and make a profit - I'm sure I couldn't comment ! wink (Given that we have coexisted with the spice for thousands of years, and put it in our food, I know which one I consider more likely to be devoid of serious side-effects.)
Equally, Humira and Remicade (if I remember correctly, and my memory is bad, plus I've not been on meds for ages, so I am ready to be corrected) are just antibodies. Made using mice or bacteria, admittedly, but nonetheless, an organic substance in the same way that insulin (or sugar) is. It can be made by nature, or it can be made by man in a laboratory; the substance produced is the same, Mother Nature is just much more efficient at it. Granted, your body does not happen to make these ones naturally, (unlike many thousands of antibodies) but then you could say the same of any bacteria, virus or protozoan that your body is in contact with - some will have bad effects, some good, some mixed.
Asacol is just a manmade version of a naturally occurring substance, as are steroids.
Natural in medicine may mean good, bad or indifferent; Mother Nature is not any more kindly disposed towards us than a corrupt drug manufacturer or an incompetent legislator, she just has more time to weed out her victim population. eyes As Paracelsus famously put it, "All is poison, the dosage is everything".
Having said that, I myself have tended to be much better off going down the organic, (salicylate-rich), gluten and dairy-free, probiotic (natural/synthetic yoghurt ?) road.
If you want to find out what is making you ill foodwise, I suggest strongly that you try an elimination diet. It will be difficult, but illuminating ! I suspect that I am not alone in finding that foods fall into three categories; always bad for me, always okay to eat, can eat sometimes but too much or at the wrong time is bad.
rolleyes It's all clear as mud, isn't it ? !
(But we give excellent advice on which toilet paper brands to buy ! smilewinkgrin )

actressandwriter
New Member


Date Joined Jan 2009
Total Posts : 4
   Posted 1/25/2009 9:05 PM (GMT -7)   
no its not a thing from that, everyone is different. No one is corrupt here. i am greatly offended by your post belleenstein.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/25/2009 9:26 PM (GMT -7)   
I think there's been a misunderstanding here...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 1/26/2009 1:35 AM (GMT -7)   
I think what I learn't most from this disease is that when you are stuck in bed or in front of the tv because your too tired or in too much pain, you can still dream about what you want to do in life. I used this to put my life into action when i was sick and then used it when I was pregnant.

The day i fell pregnant i knew i wanted to fight for the first time so I didn't give in to the typical mum excuses, three months after my bubs was born i had my first fight and WON! after 3 more fights and (being undefeated) I was struck down again from the Crohn's for a year and while I was still sick i was presented with an opportunity to fight for a state title and I came back and faught...I won't lie I didn't win but while everyone was telling me that I faught the best I ever had and better luck next time; all I was thinking was "you all have no idea what it took for me to train for this fight, I won" I swear i'm not a hippy ha ha but the mind is amazing and sometimes when our body is useless it's all we have got!
26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams.

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