How long does it take to get out of a flare?

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NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/23/2009 2:08 AM (GMT -7)   
How long does it take to get out of a flare? I guess I am having my first flare since I was diagnosed in 2005. I am not having any luck since September 2008. I am worried. Can some of you tell me how long it takes to get out of a flare?
26m - Dx January 2005
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/23/2009 3:00 AM (GMT -7)   
i have been in a flare since october, i started remicade two weeks ago and still flaring.
just waiting :S
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/23/2009 6:26 AM (GMT -7)   
I've been in a bad flare since Christmas. I'm now on pred and hoping that that will clear it up - I'm on an 8 week course.

I also take azathioprine, as the 5-ASAs just didn't keep me in remission. Have you discussed different maintenance medication with your doctor?
Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06


Currently taking 125mg azathioprine, 40mg prednisolone, multivitamin, probiotics and omega 3
 
Previously taken Entocort, Flagyl, Cipro, Pentasa


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/23/2009 7:06 AM (GMT -7)   
Earlier, I was given Azathioprine and Controloc, but I only used them for a month before stopping. They did not work.
26m - Dx January 2005
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/23/2009 9:41 AM (GMT -7)   
Kasper,

Do you regularly take 6mg of Entocort daily while in remission?
26m - Dx January 2005
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 1/23/2009 1:05 PM (GMT -7)   
It varies from person to person and from flare to flare.... Sometimes a flare can last a month.... or several months... It really just depends....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/23/2009 6:23 PM (GMT -7)   
How do you define flare? I have been out of remission for 7 years... does that mean I have been in a flare for seven years? I was sick for about 2 years, in complete remission (no symptoms at all) for two years, and I have been trying to get into remission again now for 7 years. Of course, some days/weeks/months are better than others. I am currently taking Immuran, Cortifaom, B12 and a multivitamin with iron. Any ideas about a) how to differentiate between flare and just normal life with crohns/colitis (apparently I have both, which I don't really understand...) and b) how to make your body go back into remission???
Thanks!

cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 1/23/2009 6:43 PM (GMT -7)   
This question is for everyone. when you have a "flare up"does it have to be severe or can it just be feeling bloated and uncomfortable after any food and tired. Or is that remission and just what you put up with day to day...i have had crohn's for 9 years and i'm still so confused, I just can't figure it out :-(
26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg


73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1494
   Posted 1/23/2009 8:02 PM (GMT -7)   
Like the previoius poster, I too have been trying to figure out exactly what constitutes a flare. Is it just active disease? 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/23/2009 9:43 PM (GMT -7)   
I would say it does mean 'active disease.' It's just that the level of activity varies so much and I think this is where the confusion begins...so probably say 'active' enough to affect your ability to function normally.
Still, I wonder sometimes too. I feel all right enough to go to school, eat, and sleep for the most part for example, BUT I still get cramps, can't eat certain things or suffer the consequences, still have to be careful about the level of my physical activity, and have other possibly Crohn's related problems(how we can ever tell?).

As for how long it takes to get out of one, I think it depends on the person really with the severity of their disease, the medication they take and how well the patient reacts to it, how careful the patient is with their diet and exercise regimen, and stress levels, as well as external influences. I really don't think we can put a universal number on this. Maybe not even an estimate either since some are in a flare for years and some for only a few weeks.

So much uncertainty about autoimmune diseases right now...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2009 8:30 AM (GMT -7)   
It varies from person to person. No two flares are ever alike. So I think this is going to be a next to impossible thing to provide a right answer for. JMHO
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 1/24/2009 8:59 AM (GMT -7)   
I flare "once a month" for about a week I feel lousy. I have dizzy spells with nausea on and off for a week. I'm going to get a Rx for Phenergan today--maybe that will help.
Other than that I'm fine with minimal D and pain.
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


CazUK
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/26/2009 5:07 AM (GMT -7)   
Hi, I would classify a flare as being incredibly dehabilitating. So, more cramping, pain and D than usual - to me, when it gets to the point when I feel too sick to go to work, that's when I need to see the doctor.

Unfortunately I don't think I've ever truly been in remission - even when I'm not 'flaring' I still have to watch what I eat and I often get very tired, and have D and abdominal pain. But if it's coming and going rather than constant then I can live with it!
Diagnosed with Crohn's disease in Sept 05 aged 24


Resection in Nov 06


Currently taking 125mg azathioprine, 40mg prednisolone, multivitamin, probiotics and omega 3
 
Previously taken Entocort, Flagyl, Cipro, Pentasa


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 1/26/2009 12:33 PM (GMT -7)   
I have been much sicker than usual for about 5-6 months now...I guess that would define a flare for me. I went from 223 lbs down to 200 back up to 212 and now i'm back down to 199 again. Bad pains in stomach, bleeding, tired all the time, mentally a mess...normal life style has come to a screeching halt. Haven't been out to dinner with friends, gone for drinks, scared to take 3.5 yr old daughter out alone without wife for fear i'll be dragging her to the bathroom over and over...AAAAHHHHHH!
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