Dealing with strictures... Any tips??

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Julie1014
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Date Joined Oct 2005
Total Posts : 1245
   Posted 1/23/2009 2:53 PM (GMT -7)   
The past couple of days haven't been too good. cry   I usually have Crohn's constipation, so I take Miralax daily.  I also have a stricture, which has been giving me some problems the past couple of days.  I have frequency and urgency, but only go a little at a time.  Now I have some diarrhea and bloating.  I know I don't have a blockage because I am passing gas and stool.  My stomach is grumbling quite loudly, and I have a little nausea.  I am trying to do the Hydrocortisone enemas, but am having trouble retaining them.  I always stay away from sugar, but today I have just been drinking Gatorade and Ginger Ale to stay hydrated and so I don't get low blood sugar, and because I'm not hungry.  I know I shouldn't be consuming all of this sugar, but don't know what else to do.....
 
Does anyone have any recommendations/dietary suggestions?  Any advice would be greatly appreciated.  Thanks, and blessings to you all.
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 1/23/2009 3:20 PM (GMT -7)   
Julie,
I also have a stricture and I have been having the same symptoms the last few days as well as far as constipation, bloating, loud grumbling and nausea. I'd love some advice as well. I've also been eating very little, drinking tea, water or (I know it's a no, no) but today, some coffee. I've basically been living on chicken broth, Campbells homestyle chicken noodle soup (because the noodles are smaller) and a plain egg white omelet here or there. My husband says it's time for another scope...ooh I dread that. My last one was 3.5 to 4 years ago....It's definitely time.

Good luck Julie....hopefully we'll get some releif soon.
~Never officially diagnosed~
Appendectomy in 2001. Appendix perforated & gangrenous. Had pain off and on for 3 years prior. This is where all my trouble started.
Hospitalized in August 2005 with a bowel obstruction.
Colonoscopy showed definite colitis, SBFT showed narrowing of the Ileum and a possible fistula.
Both tests came back as consistent with CD.
2nd bowel obstruction February 2008. Got through it at home.
Currently not on CD meds. Following a low~residue diet and taking fish oil daily and Align probiotics daily.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/23/2009 3:25 PM (GMT -7)   
Thank you for letting me know I'm not alone in this. I just got done eating chicken noodle soup also......
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/23/2009 3:37 PM (GMT -7)   
Can you do Ensure or Boost, They have a bit more nutrition. When I have a partial blockage I try to stick to chicken broth and tea. The broth has lots of salt which I think helps balance the electrolytes. But that's just my non medical opinion. It makes me feel better when I get a bit light headed from not eating.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


cbk
Regular Member


Date Joined Apr 2007
Total Posts : 134
   Posted 1/23/2009 4:29 PM (GMT -7)   
This is going to sound weird, but massaging the area actually helps me. I can manipulate the area enough to help things pass through. Just lay flat on your back, breath in, and work it in a circular motion. It might hurt a little, but it will pass.
22 Female, currently on MTX. Previously on Imuran, Remicade, Pentasa, etc. Ileocolic resection in 2006.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/23/2009 4:37 PM (GMT -7)   
hope you are feeling better.

i am new to this crohn's stuff so can anyone tell me what stricture is?
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/23/2009 4:51 PM (GMT -7)   
A narrow area of intestine. It can be due to inflammation or scar tissue. Sometimes food can get stuck if the narrowing is severe and cause a blockage or a partial blockage. Signs of that would be nausea, bloating, no bowel movements or passing of gas, pain, and eventually vomiting. If this were to happen to you, you should call you doctor ASAP, or go to an ER. It can become life threatening quickly. Unfortunately, some of us have had to deal with this all too often and know how and what to do. Others with CD have never had to deal with a blockage, so please don't get ahead of yourself and worry needlessly.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/23/2009 5:04 PM (GMT -7)   
Zanne said...
A narrow area of intestine. It can be due to inflammation or scar tissue. Sometimes food can get stuck if the narrowing is severe and cause a blockage or a partial blockage. Signs of that would be nausea, bloating, no bowel movements or passing of gas, pain, and eventually vomiting. If this were to happen to you, you should call you doctor ASAP, or go to an ER. It can become life threatening quickly. Unfortunately, some of us have had to deal with this all too often and know how and what to do. Others with CD have never had to deal with a blockage, so please don't get ahead of yourself and worry needlessly.


Thanks i am not worried :) it is just good to know this stuff.
I feel like i know a lot about Crohn's but i am always learning something new, this is really a complicated disease :S
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/23/2009 5:53 PM (GMT -7)   
Hi I had some air passing but not much , and still had a wee bit of D when I had my blockages. Terrible gurgling and I could see the bowels moving when I had my second one. I found cream soups like chicken and mushroom mixed with water when cooking tasted good and I used to take the chicken and mushrooms out. Jello is good too. I did find that it helped with appetite. Ensure is good too .I wouldn't let those symnptoms go to long before seeking medical care. My last blockage I drank lots of gatorade .. it tasted good.. Hope you two feel better soon...lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 1/23/2009 7:16 PM (GMT -7)   
Zanne said...
Can you do Ensure or Boost, They have a bit more nutrition. When I have a partial blockage I try to stick to chicken broth and tea. The broth has lots of salt which I think helps balance the electrolytes. But that's just my non medical opinion. It makes me feel better when I get a bit light headed from not eating.

I cannot have either one of those as I am lactose intolerant.  Sometimes I'll drink a soy protein shake..that seems to help. I just purchase chocolate soy milk this evening. I was feeling a bit hungry but afraid to eat so I had a glass. For some reason, chocolate soymilk (or lactaid milk with chocolate syrup) seems to take the hunger pangs away. Jello is good too but that gets boring quick!
~Never officially diagnosed~
Appendectomy in 2001. Appendix perforated & gangrenous. Had pain off and on for 3 years prior. This is where all my trouble started.
Hospitalized in August 2005 with a bowel obstruction.
Colonoscopy showed definite colitis, SBFT showed narrowing of the Ileum and a possible fistula.
Both tests came back as consistent with CD.
2nd bowel obstruction February 2008. Got through it at home.
Currently not on CD meds. Following a low~residue diet and taking fish oil daily and Align probiotics daily.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/24/2009 3:08 AM (GMT -7)   
Thank you for all of the advice/suggestions! I just woke up so I'm not sure how the bowels are yet today.... Time will tell shortly, lol!
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/24/2009 7:24 AM (GMT -7)   
You may be able to do Carnation instant breakfast made with either soy or lactaid milk. At least then you would be getting some vit. and nutrion.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/24/2009 7:47 AM (GMT -7)   
Julie I always do well with Chicken Broth. Something in it always helps to settle my gut down when I am feeling nauseaous and weak. Another things that helps that Zanne recommended to me was some saltine crackers with just a little margarine/butter. Hope you get feeling better soon.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/24/2009 8:24 AM (GMT -7)   
To hydrate I sometimes do better with pedialyte than gatorade. I think it has less sugar or something.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 1/24/2009 8:30 AM (GMT -7)   
Julie1014 said...
Thank you for all of the advice/suggestions! I just woke up so I'm not sure how the bowels are yet today.... Time will tell shortly, lol!

I know what you mean, Julie. I woke up this morning feeling pretty good as well with little bloating. I had a scrambled egg, 1/2 english muffin with a little low sugar strawberry jam, a small sausage link (this could cause a problem later) and a glass of chocolate soy milk. We'll see how I feel in a couple of hours. My son has a basketball game this afternoon and there's nothing worse than sitting in those stands on the uncomfortable bleachers trying to suck in the painful bloat! Good luck to you!
~Never officially diagnosed~
Appendectomy in 2001. Appendix perforated & gangrenous. Had pain off and on for 3 years prior. This is where all my trouble started.
Hospitalized in August 2005 with a bowel obstruction.
Colonoscopy showed definite colitis, SBFT showed narrowing of the Ileum and a possible fistula.
Both tests came back as consistent with CD.
2nd bowel obstruction February 2008. Got through it at home.
Currently not on CD meds. Following a low~residue diet and taking fish oil daily and Align probiotics daily.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/24/2009 8:41 AM (GMT -7)   
Thanks again for all of the advice! I am drinking gatorade now because that is all I have in the house. I am going to go out later and get some of the foods everyone recommended. This morning has been "rabbit terds," lol! I have the urge to go, go a little, rest, go again, blah blah....

mom2carrington, I hope your breakfast stays down nicely and that you have a good day. Blessings to all!
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/27/2009 5:48 PM (GMT -7)   
Well, it seems as if the symptoms of the stricture aren't getting any better. I just purchased Carnation Instant Breakfast and some Lactaid milk. I think i'm going to give the bowels a break for a couple of days and just stick with liquids. Thanks again to everyone for the advice!
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 1/28/2009 12:06 AM (GMT -7)   
Oh Julie I feel for you, I am going through exactly the same thing. I had to have a ct scan today because of the stricture and just when they were almost done I started to throw up everywhere, I also have the constant urges and keep losing control of my bowel. I have been drinking a lot of sustagen to get some nutrition into me. But still feel like crap. Sorry Im not much help but hope you get better real soon. Take care and keep us posted

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 1/28/2009 3:29 AM (GMT -7)   
(((Andorable))) I am so sorry you are going through this. Strictures stink!! Is the liquid diet helping you? How are they going to treat you?
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 1/28/2009 5:56 AM (GMT -7)   
Hey Julie, yes your right it stinks big time. the liquid diet is helping to a point but im still not great. Had a ct scan today then colonoscope in 2 weeks having the prep via NG tube, my GI said depending on the cause of the stricture they may be able to fix it while doing the scope. If its active disease then out comes the rest of my colon and getting an ostomy. I am so scared but right now anything would be better than what I am dealing with, so thats what they are doing for me. I will keep you posted and please do the same.
((((((HUGS))))))
hope u feel better soon

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 1/28/2009 7:44 AM (GMT -7)   
Hi Julie,

Sorry to hear you are going through all of this. I am guessing your GI is going to preform a balloon dialation during your colonoscopy. This stretches the scar tissue and expands the narrowed area. I have had this done twice and it helped me alot. Better then having to have surgery.

Keep us posted.

Julia

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/29/2009 3:46 PM (GMT -7)   
I did not know that they could give the prep via NG tube. You mean no more drinking the Go-lytly crap?
Don't worry about surgery, there gonna yank that hunk of bad intestine out of me. Thank goodness, now it's time for the good times!!!
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