I really can't give you too much help, but there are alot of people here that can. I'm sure you'll get some good advice. The one thing I would say is, that you need to get to a good Gastroenterologist. It sounds to me like you are not getting the type of treatment you need.
Just wanted to say Hi and welcome from a fellow Canadian. I was diagnosed with Crohn's in '07 at the age of 55.
I hope someone can answer your questions and you get the help you need.