Need Advice on Pregnancy and Crohn's

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Jessica28
Regular Member


Date Joined Jan 2009
Total Posts : 21
   Posted 1/23/2009 9:28 PM (GMT -7)   
Hi all.  This is my first time on the site so I am getting the hang of things.  I could really use some advice on an issue I've been struggling with. 
I was diagnosed with Crohn's disease in March of 2007 - so it hasn't even been two years yet.  I went a year with no flares after getting the initial one under control but was on several drugs at one time or another - 6mp, pentasa, asacol, steroids...
I had another flare-up in March of last year...hurt like heck.  My doctor decided to put me on Humira.  I have been symptom free since then.  However, I am wanting to get pregnant and don't know what I should do about the Humira.  There's no proof it's safe, but I don't know what will happen to me or my baby if I have a flare up during pregnancy.  My doctor is into research and seems eager to put me on a registry for pregnant women on Humira so I fear his advice may be biased.    Any advice? 
Thank you,
Jessica

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/23/2009 9:59 PM (GMT -7)   
I think there a few members on these forums that have head healthy babies while on humira...surely they'll be along soon to tell you. My doctor wouldn't let me take humira when I was pregnant, but I was also in a really severe flare that ended up in hospitalization(interaction between flare and pregnancy) so I'm not sure what the deal was. I was just high risk..so if you're doing well then it sounds like it should be fine. But again, other members have better experience with this than I do.
How is the state of your Crohn's at the moment?
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/24/2009 8:28 AM (GMT -7)   
Yes there is at least one Mom, Stef17, who has recently had a Humira baby. Search through old posts and you can read about it. The general rule is that a healthy mom will have a healthy baby. Most complications come from flaring while pregnant or going into a pregnancy already in a flare. I just had my first. I was in remission before and stayed there. It was wonderful and she's perfect. I was only on Pentasa though.

We've had a baby boom lately, so there should be a lot of information in posts from the last few months.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 1/24/2009 8:37 AM (GMT -7)   
Here is one of many threads on the topic:

http://www.healingwell.com/community/default.aspx?f=17&m=1332838
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 1/24/2009 8:54 AM (GMT -7)   
Your doctor isn't biased just because he is into research. You should be glad he is into research! There are so many GIs that aren't or do not treat CD very much, so they aren't as equipped to treat CD or women with CD wanting to get pregnant. There is some great data out there on pregnancy and anti-tnf therapy. On the other hand, being on ANY medication goes against everything we think about being pregnant. No drugs equals healthy baby, right? Someone earlier mentioned a healthy mom equals a healthy baby. That is true. A flare is more dangerous to the baby than the medications you might be on (except Methotrexate).

This is a very personal decision and it will be hard--no matter what you decide! Just try not to stress your way into a flare.

Jessica28
Regular Member


Date Joined Jan 2009
Total Posts : 21
   Posted 1/24/2009 7:47 PM (GMT -7)   
Thanks everyone. I am terribly conflicted on what to do. It certainly helps to read what others have been through. I'm so glad I've found this site!
Jessica
 
28 years old, diagnosed with Crohn's  in March, 2007.  Currently taking Humira 2 X month

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