Well, after much debate with the doctor as they said I "marganially" improved and my mom was sitting in the corner shaking her head. I have been at least an hour late for work for the last 6 weeks (since getting off steroids basically), I'm sleeping all the time, I hurt all the time, I'm on pretty much 5-6 narcotics per day, the bowel movements have slowed, but DUH doc it's because of the narcotics AND my regular GI gave me Levsin, which ALSO helps!
But, anyway, I got the open Label ABT-874. Not instant relief at this moment nor any signs of feeling better yet, but that's ok. I will receive 3 infusions of the 700 open lable ABT-874 and if I'm not any better they would keep me on it, if I am better, they would potentially take me off of it to see if I lapse. All that said if I'm NOT Better in 3 months, the doc will pull me from the study, most likely, and start something else. March it will mark nearly a year since this flare truly began. I'm just so frustrated and want to be in remission.
All that said, I've lose 4lbs on Weight Watchers! :) That is SLOWLY boosting my ego..
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08 - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old