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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/24/2009 7:40 PM (GMT -7)   
I took my bimonthly injection about 30 minutes ago, waited the ten seconds wondering how I didn't feel anything, pulled the pen up, and lo and behold! Half a broken syringe was sticking out of my leg with the medicine still in it.

I tried calling humira but they're closed, and I called my pharmacy to see if they could replace it which they said normally they would but that there were some 'issues' lately so I would have to wait and call back Monday. SO, I thought well, I'll just call in my prescription for my next two pens, but it needs doctor's authorization the automated voice tells me...

I'm stuck basically. I wouldn't mind too much except humira does seem to peter out before the two weeks are up. The only benefit I can see to this is that a friend was over recently and, we had no idea until the night after he left, had bronchitis so I could be avoiding something pretty bad here.

I'm just wondering if this has happened to anyone else? I figured it would be easier to replace something like this...then again, it is the weekend. Kind of a shame that medical problems don't take that break along with the rest of the medical community...or the help desk rather. Goodness knows what it's like to be a doctor on the weekend.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/24/2009 8:09 PM (GMT -7)   
Hi LMills,

I agree. The timing of medical problems is often inconvenient at best. I've had 3 abscesses and two were on holiday weekends!

Did you get any of the Humira into you?? I think the Humira people are the ones to call because it sounds like a defective pen. I hope they replace it ASAP so you can keep on your schedule.

Take care!
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/24/2009 8:47 PM (GMT -7)   
It doesn't look like any was injected..it's just sitting beneath the rubber stopper.

I'll just call them again tomorrow and hope something more can be done than 'let's wait and see.'

Abscesses on holidays...agh that sounds fun. :(
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/24/2009 9:29 PM (GMT -7)   
aw sorry that happened to you, Ive been lucky and mine have all worked really good...hope you get some more soon! lord knows it always seems to be running out towards the 2 weeks

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Currently on Humira every 2wks, Pentasa, Entocort, Phenergan, Lomotil, Celexa, Lortab, Ambien, and new this week Zoloft.


LA ROUGE
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/24/2009 9:57 PM (GMT -7)   
I often believe no one -- particularly, doctors have a clue what to do with us. I took Remicade for 7 years and sincerely do not believe it works any longer. The doctor suggested a double dose, and the Hospital said no way. I've taken Humira, Pregnisone, Pentasa, Imuran 100 mg, Bentyl of course, 5MP, 6MP, and too many others to remember. I was great on Remicade for so long, I thought I'd always be okay. What a joke to myself that was. The Gastro just gave me a Probiotic, Florastor, last week, and Imuran. I have not been out of the house in over 18 months, the time of this current flare, except to go to the doctor (s) and hospital. I am very depressed, and just don't know what to do at this point. I have to wear diapers because I just never know. I am losing weight as I basically can't eat anything, anyway, so I eat very little -- and drink a lot of water. I have not had Remicade in 7 months and Humira for a long time before the Remicade. I have been to the Cleveland Clinic, and four times to the Mayo Clinic in Rochester, MN. I have had 16 inches removed from my intestine and some carcinoids, and also a so-called simple operation that was when they go through your belly button -- and I can't remember the name of it. I'm sorry, I am just very depressed and just can't think of the name of that procedure. Sorry.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/24/2009 10:03 PM (GMT -7)   
La rouge-I'm so sorry this is happening to you...I never know what to say when has tried so many different things to no avail. Have your doctors anywhere been able to suggest ANYTHING plausible? I feel like something could be done but it's always a matter of if and when concerning our current state and doctor. Though, the doctor seems like an even bigger 'if' because it sounds like so many don't have enough training to deal with these diseases.
Keep posting and rant all you want if you ever feel the need...I know that low feeling when it seems like all you do with yourself is sleep in the same place everyday and pray you get to the bathroom in time regardless of the fact that it is only a few feet away. And don't even get me started on the weight loss and inability to eat or drink even water sometimes..
I hope the new medication starts working for you..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/24/2009 10:17 PM (GMT -7)   
You haven't left your house in a year and a half? Is another surgery an option?
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/24/2009 10:24 PM (GMT -7)   
We're on the same schedule LMills! I took my Humira shot today as well, and the spot on my thigh is a bit itchy tonight. You're braver than I am though, because I have my mom give me the shot while I hide my head in a pillow. How sad is that turn.

LAROUGE, is Cimzia an option for you? Or maybe a research study for a new drug? I've been lucky in that I can maintain my weight pretty good. I hover around 100 pounds most of the time. While underweight, it's at least not scary underweight. Whenever I would drop under 95 pounds, I would drink Scandishakes. They taste very good, are easy to slurp down, and give about 600 calories per packet. There were times I felt they were the only thing keeping me from withering away. I also just started taking some enzymes which are supposed to help absorption of nutrients.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/24/2009 10:35 PM (GMT -7)   
I'm glad to hear yours worked!! Haha..I wish I could hide my head under a pillow and let someone else do it though..but my fiance gets even more frightened than me. I wish you could have seen his face tonight when it was broken. Poor thing, but I can't help but laugh >_>
Good grief you stay even smaller than I do though...I generally stay between 105-115 and then worry more when I am in the 90's. I've never heard of scandishakes, but they sound for you like what ensure was for me. I seriously think I would have wasted away but for those. They were the only calories I could get in..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 1/24/2009 11:52 PM (GMT -7)   
Scandishakes are a gazillion times tastier than Ensure! A doctor recommend them to me when I was in the hospital once. The calories are mostly from fat, so they made one creamy delicious milkshake. I'd be slurping it down, get to the bottom, and be so sad that it was gone tongue. I just sold my last case of them on ebay since they're not allowed with SCD shakehead.

I should weight myself to make sure I haven't gotten below 100. My stomach has shrunk, but it was always fat and way out of proportion with the rest of my body. I've read gluten sensitivity can make you're stomach look fat, so maybe that's always been my problem.

I hope you can get your shot tomorrow! It does always seem like these things happen on the weekend. Murphy's Law.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/25/2009 1:55 AM (GMT -7)   
LMills, that's horrible. I've nothing to say, beyond how shocked and sorry I am.

You must be panting for it - like you, I peter out in my second week and *really* need it by the time it's due.

Much sympathy.

I.
Co-Moderator Crohn's Forum.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/25/2009 7:08 AM (GMT -7)   
The shakes we need when we're flaring are always SCD illegal..I have about 4 cases of ensure still sitting in my 'dining' room area, but I think they were causing problems because of all the sugar anyway.

And thanks Ivy...I wish it didn't wear off like that! I'm already noticing a small difference today. I hope it's not just in my head and I'm causing, but the old symptoms are already bothering me e.g. praying to get the restroom in time.

The things we ask for hah..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."

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