OT Did ya'll hear about that girl that died from septicemia? the model or something

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/24/2009 9:27 PM (GMT -7)   
cry   I feel so bad for her. And supposedly they septicemia is so bad and becomng more common in the United states! Im like
they better figure out how to stop it so people dont die or have to get their limbs amputated! shakehead

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Currently on Humira every 2wks, Pentasa, Entocort, Phenergan, Lomotil, Celexa, Lortab, Ambien, and new this week Zoloft.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/24/2009 9:43 PM (GMT -7)   
I did just a few hours ago actually. I feel terrible for her friends and family. I can't imagine either what it was like to hear 'we have to amputate.'
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/25/2009 6:20 AM (GMT -7)   
 


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/25/2009 9:28 AM (GMT -7)   
I know of two cases in my province in the last 10 years (I'm sure there have been more). One was a 21 year old woman who managed to live for about 45 days after entering hospital. During that time her hands, feet, nose were ambutated in an effort to stem the tide of the disease. Unfortunately she succumbed. I was on a committee reviewing the circumstances of her death and her treatment in hospital. It was agonizing as a lay person to read the details of her case and the anguish of the family she left behind.

In another case, the son of an acquaintance suffered a similar situation, but he has survived. The quadruple amputee lost much of his arms and legs, as well as parts of his nose and ears, is an inspiration for all with whom he comes in contact.

So it is possible to survive and there is quality life even after such a brutal and barbaric treatment.

But these cases serve as a warning for all of us not to ignore the signs and symptoms when our bodies start telling us something is wrong.

With these bacteriums and toxins, when things go wrong, they can go very wrong very quickly.
Belleenstein:

30+ years living with Crohn's.


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/25/2009 5:30 PM (GMT -7)   
They don't call them superbugs for nothing. eyes Apparently, in some cases the new "improved" superbug strains of old diseases, instead of needing 10 000 bacteria to cause infection, only need 20 - 30. That's pretty scary !

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1497
   Posted 1/25/2009 8:15 PM (GMT -7)   
It's when you read these kind of devastating stories, that you begin to question the purpose of life. Why would God make a beautiful young innocent girl suffer and die in such a horrible way. 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Initially, 9 weeks of Prednisone, currently taking 2000mgs of Pentasa.


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 1/25/2009 10:26 PM (GMT -7)   
I guess there are so many ways to look at things..it is dreadly terrible and devastating but I think that God understands because he had to give up his son too. And his son was special too. So I dont think God does mean things but may allow them to happen because he sees the bigger picture we do not.

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Dx'd w/Crohn's colitis in May05--spread to ileum & small intestine as of April08. Currently on Humira every 2wks, Pentasa, Entocort, Phenergan, Lomotil, Celexa, Lortab, Ambien, and new this week Zoloft.


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 1/26/2009 6:00 AM (GMT -7)   

Back in the day it was called Toxic Shock Syndrome....hard to detect before it strikes and almost nothing you can do once it does.

Our 26 yr old son...just two weeks ago called and said he gone into a walk-in clinic because he had some sort of under the skin infection in his nose and it would not go away.  The doctor there gave him script for Cipro and said see you later take care.  Our son and his wife do not have insurance (they are getting it now) so he did not think to try and get further help or a second opinion....after all it was just a small infection in his nose.  His mother and I talked him into to seeing our doctor, we paid, and they found a major abcess in his nose starting to get close to the cartilage.  They got very aggresive...treated with much stronger anti-b's, topical, injected and oral, hot compresses and flushing.  It appears that they caught in time but he will probably have scarring inside the nose from the big hole it made.

You just never know and you can not be too careful.


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old

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