As much as I can't stand it, prednisone saved the day... again

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wrbeachbum
Regular Member


Date Joined May 2006
Total Posts : 47
   Posted 1/25/2009 8:01 PM (GMT -6)   
I got desperate and put myself back on prednisone and within a day my symptoms were alleviating.  I have been on for just over a week now and I feel so much better as far a the crohn's is concerned.  I cannot stand the side affects of the prednisone though so I will try to wean myself already.  I hope it has been enough to do some healing.  For me, this time, it really did work if you are willing to take it.
 
My face is now puffy, I am eating like a pig and buzzing around the house like I on drugs (which I guess I am).  BUT I am not rushing to the bathroom and the bloating is gone.  A trade off, I guess.
 
 
Trying my best!


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/25/2009 10:56 PM (GMT -6)   
I have to agree with Kasper on the testing especially. I'll be asking for one next Monday.

I hear you though...it's a shame prednisone can't be long term without that worry.
I hope you're able to feel better as you wean down :) I know mine is making me a monster!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


wrbeachbum
Regular Member


Date Joined May 2006
Total Posts : 47
   Posted 1/27/2009 10:56 PM (GMT -6)   

So far so good,

I started at 40 mg of prednisone and took that for a couple of days and then went straight into the wean by reducing by 1 tablet every couple of days.  I am almost off now and so far still feeling well.  It was a really short run of prednisone but I am hopeful that it will have been enough.  I can stand it for a few weeks but when it is for months at a time I really, really hate the drug.  Can't stand the rushey feeling you get and all the other lovely stuff.  I am so hopeful my newest Remicade infusion will kick in also and that will keep me well.

Thanks for letting me vent!

 


Trying my best!


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 1/28/2009 7:14 PM (GMT -6)   
The worst side affect for me is that my legs feel like rubber and I am exhausted. I can handle the weepies and mood swings, but not being able to stand up for any length of time drives me nuts. Even when I am on 50 mg I never get the urge to clean or do chores like most people.

Predisone and I have a love hate relationship like most people.I am glad you are feeling better.

Elizabeth
dx'd with Crohns 1984, I was in remission for 12 years
Bowel Resection surgery 2006, Now on Pred. 20, and off Pentesa and Asacol to see how it goes


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/29/2009 7:27 AM (GMT -6)   
I like that I get the energy boost, but I hate all the bad side effects of it.
I've been off for a month now and I'm starting to flare with the "D" now.
I thought about a quick burst of Pred. but I have surgery coming in a 2 weeks and they want me off Pred for 2 weeks. I hope I can make it..

Prednisone: The Dr Heckel/Mr Hyde drug..

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 1/29/2009 9:36 AM (GMT -6)   
I consider Prednisone one of the necessary evils for us Crohnies. Yes it has side effects, but its the best med to quickly quiet a flare down. Hope you continue feeling well after you wean. I have had success taking it for only 10 days, hope your quick burst does the trick.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 1/29/2009 10:53 AM (GMT -6)   
We should write a petition for a version of prednisone without all the bad effects.
26m - Dx January 2005
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg

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