Peptamen nutritional drink-- want to try for free??

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Lousky19
Regular Member


Date Joined May 2006
Total Posts : 20
   Posted 1/25/2009 8:53 PM (GMT -7)   
Hi fellow Crohnies,

I was wondering if anyone wanted 3 cans of the nutritional supplement drink, Peptamen, which is made by Nestle. I was using a liquid diet for awhile to manage my Crohn's, and I had purchased these to try them. I didn't really like the taste, and I am using Humira now, so I no longer need them. But they are quite expensive (about $17 a can) so I didn't want them to go to waste. You can drink them or use them through tube feeding. They're complete nutrition and the kind I have is Vanilla Peptamen 1.5 (high protein). You can check out Nestle's website for info on it. If you're interested, you can email me at LCHPEZ19@yahoo.com and I'll send you 1 or all 3 of the cans to try.

Thanks,
Lisa

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/25/2009 9:10 PM (GMT -7)   
Glad to hear the Humira is working so well for you. Have you had any side effects? How long have you been on it?
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.


Lousky19
Regular Member


Date Joined May 2006
Total Posts : 20
   Posted 1/25/2009 9:48 PM (GMT -7)   
I have been on Humira for about 2 months... I actually just injected myself a few minutes ago! It's been working great for me so far. I hadn't been on a traditional Rx in about 6 years, managing with diet modifications and nutritional supplements, but I had a bad flare about a year ago that I just couldn't kick, & I was getting complications from a stricture in my small intestine. So, after trying Entocort, which didn't really work, I finally gave in and tried Humira despite my reservations about it and its possible side effects.

It has been night and day for me. I had all sorts of food sensitivities (bread, tomato, lettuce, mint, to name a few) before, but now I can eat anything! I've gained about 20 lbs since starting it, so now I am finally at a healthy weight (before I could hardly get to 100 lbs & I'm 5'4''). I haven't noticed any side effects yet. Honestly, I'm more concerned about the long term side effects like being at a higher risk for cancer or possibly getting TB b/c of the immune suppressing function of the Rx. But, I do think it's better than relying on prednisone. I was on steroids for over 3 years when I was first diagnosed, and consequently got osteoperosis at age 15. So I am very anti-prednisone at this point.

Let me know if you have any other questions about it!

Lisa
------------------------------------------------------------------------------------------
23 years old
Diagnosed at age 12
No surgeries; tried Prednisone, Immuran, CDP571, Remicade, Entocort, liquid diets, alternative therapies
Currently: Humira, supplemental nutrition

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/26/2009 2:19 PM (GMT -7)   
Very encouraging Lisa, thanks for posting.

Im on MTX, and it has helped somewhat, but if it doesn't start helping more I may have to go with Humira or possibly surgery. I'm trying to decide if I should do the surgery to try and avoid the biologics. Good luck!
Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 12.5mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

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