Crohn's and Migraines

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Jessica28
Regular Member


Date Joined Jan 2009
Total Posts : 21
   Posted 1/26/2009 9:26 AM (GMT -6)   
I was just wondering if anyone else with crohn's seemed to develop migraine's around the same time they were diagnosed wtih crohn's?  I now have to take three or four migraine pills a month.  All of my symptoms started at the same time my symptoms for crohn's started.  My doctor said they weren't related...but I believe their has to be some connection. 
Jessica
 
28 years old, diagnosed with Crohn's  in March, 2007.  Currently taking Humira 2 X month


athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 1/26/2009 10:38 AM (GMT -6)   

We have discussed this in the past, my migraines are much more debilitating than my Crohns.....  With Crohns, if I'm at work, I go to the bathroom and go back to my desk.  With migraines I cannot even function.  I am positive that my migraines are totally related with the medication I'm taking for Crohn's.  Doctor says no, but who cares...I'm convinced.  I never really suffered from headaches until I got diagnosed. 

What I do, is when I feel a migraine starting, I take a pill then, because if I let it continue, the pain is out of control, and I have to lay down in a dark room, and pray it will pass soon.  As you realise, having two small children in the house, it's not so easy.  I also get migraines if I sleep too much or if I don't sleep enough.  Go figure....  The sad thing is that the only medication that helps my migraines is a NCAID medicine, which is bad for my gut, but when I'm in pain, I don't really think about my gut. 


cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 1/26/2009 4:50 PM (GMT -6)   
Do you drink enough water? The water in D and just in your stool going all the time adds up and not even being dehydrated but just lacking in fluids is enough to give you a throbbing headache. If i'm not exercising I try to drink 1.5 ltrs of WATER a day. Other drinks like coffee, or anything with sugar is separate. Also things like prednisolone and other meds really seem to dry you out so its worth a try to bulk up your fluids for a week and see how you feel.
26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 100mg
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/26/2009 5:44 PM (GMT -6)   
I have had CD for upwards of 30 years but started having migraines about 4 years ago. What started them, I don't know? I think it probably is some combination of side effects of medication and age. But I take Topamax and it seems to do the trick. I did have a serious migraine this past fall that lasted for about 11 weeks. All my doctors thought it was a sinus infection, then they finally figured it out, but by then it was so entrenched that it was very hard to break. That was the only really horrible one and since then I haven't really had any migraines. So keep working with your doctors to find the right medication. I was on a couple of different medications and a couple of different doses before we found the right one. As for the 2 being connected, there are several people here who have migraines, but I don't think it is the norm.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 1/26/2009 7:59 PM (GMT -6)   
I started getting migraines soon after my problems started as well. I think there's a connection myself. Maxalt provides me good relief.
Live for today, for tomorrow you might just get hit by a semi.


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 1/26/2009 9:00 PM (GMT -6)   
I am a mirgraine and a Crhon's veteran. I have had migraines for 30 years and Crohns for about 22 years. My migraines used to rule my life. They started to subside after I had kids, but then my Crohn's kicked into full gear. I have found that my migraines seem worse when I change something in my life. For example, if I drink caffeine during the evening hours or if I indulge on caffeine because I feel I have no energy. I'll also get a migraine if I don't sleep the same amount of hours each night or if I nap during the day. Now I take Imitrex, Fioreset (sp?) and Phenergan at the onset of a migraine and can actually continue working for a few hours. Of course the next day I am useless and have D the entire day, but that is better than paying for an ER visit. I think I am actually out growing my migraines. I used to get them twice a month, but now I have gone 3 months without one. It is the longest I have ever gone without one and I just got over a flare. It is a mystery to me.



Elizabeth
dx'd with Crohns 1984, I was in remission for 12 years
Bowel Resection surgery 2006, Now on Pred. 20, and off Pentesa and Asacol to see how it goes


Jessica28
Regular Member


Date Joined Jan 2009
Total Posts : 21
   Posted 1/26/2009 9:34 PM (GMT -6)   
Elizabeth, I see you went 12 years without a flare. Did you think you were cured? Did you stop taking medicine?
Jessica
 
28 years old, diagnosed with Crohn's  in March, 2007.  Currently taking Humira 2 X month


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18002
   Posted 1/26/2009 11:33 PM (GMT -6)   
Thankfully, I've never had a migraine in my life, I've had the odd bad headache which have pretty much always been triggered by my menstral cycle, but no migraines thank goodness.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 1/27/2009 6:13 PM (GMT -6)   
Jessica,
I had stopped taking my meds and had occasional D but generally I felt healthy. I ended up in the hospital for severe abdominal pains 12 years later and no one thought it was related to my Crohn's so I was send home. Six months later it happened again and still I was sent home with pain killers this time. Then in 2001 right after my dad died I had a total blockage and ended up in the hospital for 10 days. That is when I finally started taking meds again. After five years of fight blockages I had a resection. I don't know if I would do it again because I am still having issues and just now coming off of Predisone again.

Elizabeth
dx'd with Crohns 1984, I was in remission for 12 years
Bowel Resection surgery 2006, Now on Pred. 20, and off Pentesa and Asacol to see how it goes


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 1/27/2009 6:35 PM (GMT -6)   
constant unrelenting migraines...

Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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