Back at work after total proctocolectomy!

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Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 1/26/2009 10:30 AM (GMT -7)   
Hi everyone,

I haven't been on the board in months, but I wanted to say I had surgery back in Nov. to remove my entire colon, and make my ileostomy permanent. The healing process was not simple, and even this morning, I have a bit of abdominal discomfort, but I am confident it was the best choice for me, and am now off all Crohn's disease medications, except for a bit of painkillers.

I will update you all more later, but I wanted to say hi, and thank you all for the support you gave when I was at my sickest.

- Nat aka Gladbag
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 1/26/2009 10:58 AM (GMT -7)   
Wow, Congratulations on getting through that. I appreciate you posting this, I'm looking at another surgery soon, and on my down days I wonder how long it will be until they take everything. I'm heartened to know that you feel that you made the right decision and that you are doing well.
diagnosed w/Crohn's 11/06. 34f with 2 boys, a lovable dog, and a wonderful husband. <S>150 mg Imuran</S>, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 1/26/2009 1:37 PM (GMT -7)   
Hi Gladbag,
Glad the surgery went well, sorry you are still in pain, hopefully that will pass soon for you. Keep posting as I know there are a few of us on here who were wondering how you were doing :)
Jo

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/26/2009 1:45 PM (GMT -7)   
Thanks for updating! Glad to hear the healing process is going well!

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/26/2009 2:42 PM (GMT -7)   
:-) A happy, healthy Crohnie ! Wow, that's nice to hear Gladbag, long may you lurk and never need to post ! smilewinkgrin
(You've never heard my karaoke ! turn)

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/26/2009 2:57 PM (GMT -7)   
Woo Hoo glad to hear the surgery is over and your are feeling better. Remember to take it easy for awhile, it takes alot longer than you think to recover from major surgery.

And please, whatever you do, don't get Sno singing:)
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/26/2009 5:41 PM (GMT -7)   
Hi So glad to see your post and hope you continue to improve been wandering how you are. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 1/26/2009 5:49 PM (GMT -7)   
turn turn turn turn
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/26/2009 6:29 PM (GMT -7)   
ROF**** turn

betita82
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 1/26/2009 11:58 PM (GMT -7)   
If you don't mind me asking, how old are you Glad Bag? I was recently told that as surgery options go, a permanent ileostomy is my only choice. Being 26, I'm not so sure I'm ready to submit to permanent baggage just yet. Although I must admit, the idea of never having to poo again doesn't sound like the worst thing in the world right now.

BuzyBum
Regular Member


Date Joined Feb 2004
Total Posts : 122
   Posted 1/27/2009 5:11 PM (GMT -7)   
I've been told surgery is my only option too but I'm holding out for now hoping the meds will put me back in remission, but I would be interested to hear how you are getting on with it, how painful the op was etc, scarring etc. Whether you thought it was the best decision and how you came to the that decision etc. I thnk you're really brave to go through with it, I wish I was as brave, but I can't until I know for sure there is no other option for me.

Good luck in the future with it, may it continue to improve your quality of life.
37yr old woman UK. Diagnosed with crohns in 95. Currently on 2400mg asacol, 100mg Azathioprine. Been on Remicade once which worked well for me, but they took me off it. Flared up again. Took Humira but it didn't seem to agree with me, but thinking it was now an infection rather than side effects from Humira. Now back on Remicade, had 3 infusions so far and no reactions as yet. Consultant wants me to have a colostomy bag fitted, I've refused and want to try as many options as possible. On Elemental 028 extra diet for 6 weeks.

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