Got a call from surgeon's office....

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Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 1/26/2009 7:28 PM (GMT -7)   
Just when I thought I was finished for awhile, I got a call from surgeon's office this morning saying my GI requested he see me and the appointment is on Wednesday. If I did not actually have a copy of the pathology from Jan 6th (no evidence of dysplasia or malignancy) or if they had done furher biopsies Jan 19th during my endoscopic ultrasound, I would be quite concerned that I have an appointment in 2 days? Two hours drive each way, fourth time this month.
I have a stricture in sigmoid colon and surgery has always been an option. Remicade was also an option but refused it because of what I'd read about it's effectiveness in treating scar tissue and other issues and considering how good I was feeling. Not against drugs if you are suffering.
 
The fact is though that I do not have any symptoms. I know two cases are not alike but my Crohn's has been referred to as 'non-typical', unsual and 'mildest case I've ever seen'. All in all, 6 GI's and 3 surgeons have viewed the stricture. They got through to the terminal ileum during my colonoscopy two weeks ago and everything else was fine. The GI doing the ultrasound said it showed deep scar tissue but the instrument they used was even bigger than the normal scope and they got through. Last year they had to use pediatric scope and gastroscope one time.
I know scar tissue will not go away by itself nor will medication take it away but surgery causes scar tissue too? And there has been constant inflammation at the stricture site. Will surgery take this away, at least temporarily? If I had a choice I would prefer surgery to long term use of powerful drugs. And yes, they cannot rule out cancer 100%.
 
Just speculation at this point, quess I don't have too many days to worry about it.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.


betita82
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 1/26/2009 11:50 PM (GMT -7)   
Back when I first started Remicade, my symptoms cleared up quickly and the next scope I had done looked "spectacular". I don't know that it necessarily got rid of any scar tissue, but the assisting told my mom it looked almost like a healthy colon. So maybe remicade can do it? I can't say for sure because Remicade stopped working for me after I'd been on it about 5 years (not uncommon). I've now switched to Humira, but feel a bit impatient towards it when comparing to how fast I got better with the remicade.

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 1/27/2009 1:22 AM (GMT -7)   
betita82, Did you stay on the Remicade even when things looked good? I was scheduled to have a Remicade infusion a year ago but long story short, new GI postponed it until further scope and
then it never happened. I never planned on being on it long term and later worried that stopping wasn't an option.
55 yr. old F dx. CD 07/07
Was on prednisone for three months but no medication for next 11 months.
 Started weekly methotrexate injections 09/22/08.


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 1/27/2009 3:40 AM (GMT -7)   
I was told by my doctor that Remicade doesn't really help with strictures...but then again we were talking about my terminal ileum stricture. I think that the overall opinion is that operation should always be the last resort, but I guess different doctors work differently. It's really great that you don't have a lot of symptoms but don't let it fool you. I've heard of people with no problems whatsoever and then they do an MRI and voila a lot of fistulas. Maybe you should wait and not have the operation now...just be careful that the inflammation doesn't extend itself.

That's just my opinion/experience/what I've heard from others.
21 yr. old with crohn colitis. First symptoms in June 2003, diagnosed in March 2004. Been in remission on mesalazine till June 2006 (actually till January) and then on steroids and Imuran. Currently taking Imuran and metronidazole (was taking ciprofloxacine for a month and then switched to metronidazole). No surgeries so far.


caroline_r
Regular Member


Date Joined Apr 2004
Total Posts : 94
   Posted 1/27/2009 3:43 AM (GMT -7)   
Oh, and I think that once you have the surgery it's more likely you'll have another one...I don't know. Does this help at all?
21 yr. old with crohn colitis. First symptoms in June 2003, diagnosed in March 2004. Been in remission on mesalazine till June 2006 (actually till January) and then on steroids and Imuran. Currently taking Imuran and metronidazole (was taking ciprofloxacine for a month and then switched to metronidazole). No surgeries so far.

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