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cj2mama
New Member


Date Joined Dec 2008
Total Posts : 7
   Posted 1/27/2009 7:29 AM (GMT -7)   
hi im a 28yr old with crohns i have been sick for the past 1 1/2 yr's. i have been on alot of different meds and none of them have worked. i was on metho for about 4mo and it was working till i started to loose my hair and i was sleeping all day and night. being a single mom of a 4 and 6 yr old. sleeping all day is no good. unlike most of you who are loosing weight i put on 40lb in 3 mo. im so tired of crohns im ready to give up on meds and dr's. my BM is so hard i cant go or so watery i cant control it. please help

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/27/2009 7:32 AM (GMT -7)   
I am so sorry to hear that your Crohns is so out of control. I am wondering if some pred might help to quiet things down quickly.

I know some folks are having luck with the SCD or Makers Diet. Maybe adjusting your diet some will help too. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/27/2009 1:14 PM (GMT -7)   
Hi Have you had your B-12 checked as it helps me at times to perk up a little. I too think a short course of pred. might help ,I lost alot of hair but it grew back .Not aware of what meds you tried so not much help with that but there are times when we feel discouraged so your not alone there. I eventually had surgery which helped me .Has your Dr. recommended something for the constipation? Sometimes the stool don't come out and just water seems to get by it. Where is your crohn's located? I know little ones that age are busy people.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


cj2mama
New Member


Date Joined Dec 2008
Total Posts : 7
   Posted 1/27/2009 5:07 PM (GMT -7)   
i have tried entcort, humara,cipro, flagil, metotrexate and now they have me on azathioprine. i have scabs in my nose that started in oct 07' and the corner of my mouth has been cracked for just as long. all i want to do is sleep 24/7. my first doc hit a brick wall and sent me to a hospital 2hr away and that is where my new GI doc is. i only see her every 3mo.

sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/27/2009 5:21 PM (GMT -7)   
Wow. It sounds like you are going through so much! This disease is so hard, I cannot imagine going through all of this while also being a single mom with two young children! I hope that you give yourself credit for being able to be a mom with all of this going on. I wonder if perhaps surgery would be the best option for you right now. I know it would be hard to find childcare while healing from the surgery. Do you have any supports to help with the kids? I wonder if you could get a short term childcare subsidy while you heal, it might be worth contacting your local social services to find out. Depending on where you live, they may know of resources to help out.

Best of luck and I hope your Dr. is able to find something to help!
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