An Update on Me

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MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 1/27/2009 9:04 PM (GMT -7)   
Finally got an appointment with the g.i. today(haven't seen doc since Nov). Appointment was for 1 pm, so I got there at 12:34. I had to get lables and that took 30 minutes. Didn't get in the room till after 3:30. I read and then took a nap on the table. Came in after 4:30. He left for a looooong time(he was consulating with the head doc). For some reason he seemed "off" today. He laugh a little too much today(at things I didn't find funny).  I didn't walk out the office until 5:33(they close at 4:30). That is the fourth time that has happen. I am always sleepy and tired. It takes me over ah hour to get there and over a hour to get home.  Catscan I took in Dec look normal(inflamation in the colon is a bit better). Bloodwork was good. Still not feeling good and I also just got over a bug. They still don't know if I need surgery. They might increase my Remicade. Might get Remicade every 6 weeks, then every month if it is needed. Talking about steriods again(I actually stopped breathing) and different medicines. He asked about my mental state(little late on that). He also talked about adding more antidepressants or increasing the current one. Getting a psychiatrist(is he calling me crazy?) I am not going to lie, at one point I stopped listening. So I am still just on Remicade.  I was waiting for the head doctor to come in and say "Once again we're stump. See your next month, same time, same place". Of course he didn't. If I am lucky, I might have my answer about surgery by the end of the year. I was thinking about throwing a temper tantrum in the middle of the floor, but I figure they might commit to the mental disable floor of the hospital.  At one point I didn't care about my crohns. I went two years without treatment(only had 2 er visits). I am frustrated to the point of stopping treatment. I just want to get to that happy place.  Even though I am angry, I smiled when a past by a house that was all decked for Mardi Gras. Hope I feel better and have an off day to go to a parade. 


Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 20 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 21

Post Edited (MsRockonBelly21) : 1/27/2009 9:08:51 PM (GMT-7)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 1/28/2009 8:37 AM (GMT -7)   
I hear you on those long unfruitful doctor visits. I did lots of those until they did a camera scope. Have you had one ? My crohns is in some places that are not accessible with a normal scope and thats how they finally found it. Hope you get some help soon.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/28/2009 4:53 PM (GMT -7)   
Hi Sounds like you put a full long day in and hope you get to the parade it is nice to get to enjoy ourselves sometimes. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/28/2009 5:51 PM (GMT -7)   
You're ill and you don't know what to do or what is coming next. You have no idea whether or not your doctor is going to sort things out or not. eyes No much wonder you are depressed and anxious ! I don't think you're crazy (you stopped listening to your doctor didn't you - call me a cynic, but that sounds to me like a valid coping mechanism smilewinkgrin ) but let's face it, what psychiatrists really do is teach us how to cope with otherwise intolerable mental or emotional burdens.
yeahYes, you can vent here, but sometimes there is really no alternative as good as talking to someone face to face and getting things expressed in detail. So, maybe that was a good idea, regardless of which other therapies you end up with. (I'll freely admit, all psychiatrists did for me was listen and prescribe antidepressants - but they helped enormously, just when I couldn't manage by myself.)
Keep on seeing the little things that are good in life, like that Mardi Gras house, and childrens laughter. wink
Let us know how you are getting on....remember, we are here for you.

MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 1/29/2009 10:20 PM (GMT -7)   

Today I feel good today :-)   I'm made because I'm missing a video game. Don't you hate when objects grow legs and go missing? smilewinkgrin I feel better since I talked to my mom and sisters. I never had or heard of a camera scope. I will asked about it when I go back in few months. I think I have a Remicade appointment next week or so, lost dose was in the middle of December. The last time I went to a parade was 2 years ago and I had a lot of fun(first time seeing the Budweiser horses). Just watching the beautiful floats passing at night blasting hard rock is awesome!!! yeah I was a bad girl last week and had paraline cheesecake King cake. I found the baby, so I buy the next one(want blueberry cream cheese). I don't know I was so weired shocked ut when he suggested a psychiatrist(maybe because it was something I wanted to purse in college). I am over the shock and it is a type of therapy I participate in. My 2 year old nephew/"employer" locked me out the house(mom was in the house with him) tonight. I knocked on the screen door and said "Let me in". He walked to the door, looked at me and ask "Who is it?" I was looking for my video game underneath the bed. He ran and told his mom(my sister) I was laying down. While underneath I found some stuff and put it on top on my bed and he told me to "Clean it up". He is always the one who keeps me laughing until he throws something or bite one of his siblings.


Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 20 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 21


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 1/30/2009 6:42 AM (GMT -7)   
Sounds like you are getting the small stuff properly appreciated all right, kiddo ! smilewinkgrin
Over the years, you will find that you forget the bad bits, but remember things like seeing those horses for the first time. And kids - they are a treasure ! yeah
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