Suboxone for chronic pain

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Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 1/28/2009 10:21 PM (GMT -7)   
My doc told me the other day on our visit that I am defiantly a "Chronic pain" patient (which we always knew, but somehow was more confirmed to him now) and that my body is addicted to, and really in need of, pain medicine, but  that I am NOT an addict. I didn't understand how that was possible, so he explained that we all have "opioid sencors" in our brains, and mine are like way out of control to the point where when I don't take something for pain that I am experiencing, it responds by sending signals to my body for MORE pain and more and more! He says it also has to do with my Crohns/IBD. There is no cure for it according to him except by actually giving me opioids (which I was never on before) and he thinks it would help me tremendously with my anxiety, pain,and even my GI! The name of the opioid is "Suboxone" and is generally used for addicts but he explained that that is not what they are using it for on me. It is, afterall, a pain medicine.
I'm so confused and scared. I told him I would do research and get back to him, and that also I wanted to maybe wait and get off the prednisone before starting it - should I choose to. I always thought that the flu-like pain and symptoms I experience were/are from the Pred, and that once I'm off of it it'll go away. He disagrees with that. I mean do I really want to be on opioids the ret of my life and then get addicted to that and never be able to come off??
Then there is the other side of things..my day to day life of torture and not being able to do a thing because of the amount of pain and discomfort I am in until I take my Ultracet (Tylenol/Tramdol). If I don't take them every 6-8 hours I can't function from the pain! Its to the poinht where I find myself saying "If someone is giving me a medicine that takes my pain away, makes me happy and calm, doesn't have sideffects, will not effect my liver (like taking too much of Tylenol eventually will), AND possibly make my crohns/IBD better, THEN JUST GIVE IT TO ME I'LL TAKE IT!!!" The doc says he can hardly believe all the AMAZING results hes seen on chrinic pain patients on this med in all those aspects!
I need some insight guys. Have any of you heard of all this before? How about of Suboxone? What do you think?? Please help!
 

Dx w/ UC 2000
J-pouch surgeries in 2002 - colon removed except for last tiny part of sigmoid & rectum which keep inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 2mg);
Currently battleing: Auto-immune disorders: Crohns-Colitis/IBD & Crohns-related arthritis; anxiety disorder; mild asthma (chronic bronch); & sideffects from Pred :(
Remicade once ever 4 weeks
Prednisone, Cymbalta, Klonapin, Famotadine, QVAR, Ultram/Tramadol

Jessi


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 1/28/2009 11:36 PM (GMT -7)   
suboxone is a pretty potent opiod. it will probably help out the pain but like any narcotic you are going to build tolerance to it and then fairly quickly. basically when the doc is just going to prescribe you pain meds all the time, to me that seems they are throwing in the towel and are not able to solve your root problem. I see you have had jpouch surgery and you have a portion of your rectum and sigmoid that keep inflaming. Are they the reasons you are still miserable and sick alot of the times? If so, is it an option to hack them out as well? IMO there should be other options to research, second opinions for treatment before going the constant pain med route because as you say, once you start them, tolerance goes up and its very difficult to stop them and to complicate matters further, your originating pain still exists.

Vin
History: UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum.  Also had previous inflammation in terminal ileum.
Currently: Coming out of flare -9/19/08 - now|Salmonella - 11/15/08 - 11-29-08|Panic Disorder - 6/25/08 - now|Lyme Disease - 12/09/08 - now|Dysplastic Nevus Syndrome - 4 recent mod dysplasia moles excised, and many more to shave biopsy.
Drugs: prednisone 5 mg (tapering)|6mp 50 mg|lialda 4.8 mg|Paxil 50 mg|Klonopin .275 mg (tapering through water titration)|Trazodone 50 mg|Doxycycline 200 mg
 
 
 
 


Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 1/29/2009 1:07 AM (GMT -7)   
believe me Vin, I've been all around and back. There are no more answers. They can't even find WHY I'm experiencing the pain I currently have anymore! I thought it was from the Remicade infusions I take for crohns-related artrithis. Then I thought it was from the Pred. He doesn't believe its from either, and putting all pieces of my life together, I'm slowly starting to believe him.
No they canno't remove my rectum and sigmoid because they can never pinpoint where the inflamations come from anymore.
Thanks so much for the advice :)
Dx w/ UC 2000
J-pouch surgeries in 2002 - colon removed except for last tiny part of sigmoid & rectum which keep inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 2mg);
Currently battleing: Auto-immune disorders: Crohns-Colitis/IBD & Crohns-related arthritis; anxiety disorder; mild asthma (chronic bronch); & sideffects from Pred :(
Remicade once ever 4 weeks
Prednisone, Cymbalta, Klonapin, Famotadine, QVAR, Ultram/Tramadol

Jessi


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 1/29/2009 6:05 AM (GMT -7)   
I have a niece who was a OXY addict and she finally got help at a drug rehab facility. When she was released from the program they gave here Suboxone and we were told that it was used to help addicts by making them sick if they took Oxy again. Is this true? Or is it an addictive drug? I don't know now. I do know that Oxy is highly addictive.
I'm not a pill popper and even with a headache I don't take anything. I believe that one pill leads to another.I won't have that.
It's a tough choice for you,either try to live with the pain or take pain meds the rest of your life. I wonder if you stayed off the pain meds and over time the pain would just disappear? Might be something you ask the Doc about.

Good luck and I wish you the best!

Jessi21
Regular Member


Date Joined Sep 2008
Total Posts : 57
   Posted 1/29/2009 8:16 PM (GMT -7)   
I just had a remicade infusion today and of course the pain is even more than the usual with all the pain from that as well. I complained about my pain to them and asked them about their opinion on this situation. Well my doc hadn't heard of suboxone, but said but said my pain was defiantly NOT from the Pred as I was only on 1mg and that is practicaly nothing in er words. So within this week I'm going to finish up the Pred and see what happens. In my heart, I already know the answer though :(
I've come too far to give up all meds now (besides I've tried that once before and I was miserable). My body just needs the meds. Its is indeed an extremely tough choice as you say, but I've been dealing with this pain for over 6 months now with nothing but Ultracet for it to function on a daily basis. I'm just exhausted from this pain and ready to rid of it. I don't know...
Dx w/ UC 2000
J-pouch surgeries in 2002 - colon removed except for last tiny part of sigmoid & rectum which keep inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 2mg);
Currently battleing: Auto-immune disorders: Crohns-Colitis/IBD & Crohns-related arthritis; anxiety disorder; mild asthma (chronic bronch); & sideffects from Pred :(
Remicade once ever 4 weeks
Prednisone, Cymbalta, Klonapin, Famotadine, QVAR, Ultram/Tramadol

Jessi


Moriarity
New Member


Date Joined Nov 2011
Total Posts : 1
   Posted 11/12/2011 10:27 AM (GMT -7)   
Pretty old thread so bumping it is something I do hesitantly. I only do so on the chance that someone googles suboxonne and Crohns as I did and comes across this post and because there seems to be some misinformation in the repliy(es).

Suboxonne is not an opiate like oxy's, vicodin's, morphine, etc...In fact it will not even show up on the standard drug tests of today. For a great number of years suboxonne's only use was for the treatment of opiate addiction. I think more and more today it can and is being prescribed and used for pain management.

I have the unfortunate double edged sword of being both an addict (heroin) and someone recently diagnosed with Crohns. I would like to think that the years of abuse were caused by self medicating for the then undetected Crohns but I simply cannot honestly say that I think that is completely accurate.

Anyway, back on point. Due to having both diseases (and yes I do believe addiction to be a disease and not a moral deficiency.) I have been on Suboxonne before (for the addiction aspect) and was somewhat surprised that Suboxonne is what the Dr. has prescribed me for pain management. He told me that even without the addiction aspect, he often suggests Suboxonne to Crohn's patients because of the way it is taken into the system. That is, it is either a piece of film, or a pill, that is put under the tongue and melts. The person keeps it there for about 10 minutes (after which it can be swallowed or spit out but becomes neutral anywhere other than the mouth) so that it can be absorbed into the system through the walls of ones mouth. He said this was good because it is one less thing that can irritate my stomach and possibly cause inflammations like pills can easily do.

Basically, from what I understand, is that suboxonne 'tricks' the brain receptors that are use to having opiates, the same ones that go crazy when the opiate use stops and causes the withdrawal. These are the same receptors that deal with pain, so the suboxonne too, works to manage pain. I have heard and read that quitting suboxonne can cause withdrawal symptoms but it has never happened to me when I have stopped using it and I have felt completely 'normal' (whatever that is). Don't take what I wrote about how it works as gospel though, I'm sure that there are better and more technical explanations that can be found so please research them.

The one negative aspect, I believe, is that people assume that anyone on suboxonne is an addict. For example, my ex with whom I do not get along with well at all and constantly have custody issues with over our children assumed that I had relapsed when she found out I was on suboxonne again and no amount of showing her diagnosis or other documentation seems to have changed her mind. It is also very often compared to or confused as a type of Methadone, which is completely inaccurate in my view as methadone is nothing more than liquid heroin and works the same way as any other opiate, which Suboxonne does not.

In closing, for anyone in desperate need of pain management of Crohns who might want to avoid heavy narcotics, and what they might do to ones stomach, I highly suggest looking into suboxonne as an option. One does not get "high" from it or really even feel it. Although someone who has never taken any type of pain meds probably would for a couple days while their body adjusts, it simply lets me live as normal of a life as possible without having to get "high" or continuously take pills that tear my stomach apart.

Post Edited (Moriarity) : 11/12/2011 9:38:00 AM (GMT-7)

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