Couple of things...

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/29/2009 12:47 PM (GMT -7)   
First off...I was hoping everyone could send prayers/meditate/send energy/whatever your flavor for my sort of aunt. She's relatively young...mid to late 30's and she has really bad rectal cancer and no insurance. There IS money with my uncle (they've got two kids together and live together and work together). Anyhow, she's become completely closed off and isn't talking to anyone on the phone and doesn't want to see anyone. She just found out and I think she needs to gain some acceptance of her condition because she needs to get started on treatment, if she can even do treatment. From what I've heard through the family grapevine, its really bad and has been there and growing for about two years.

Now, I'm on tramadol. Only been on it yesterday and today and I had the WORST migraine by last night and its still here today. I had some nausea from the medicine and I still have muscle pains from it. I'm waiting to talk to my doctor. Has anyone else experienced that kind of thing with tramadol? I won't know about what's wrong with my joints until April. That's when the rheumy is supposed to meet up with me.

Thanks for all your insight and help.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/29/2009 2:43 PM (GMT -7)   
Joie I will definetly keep your aunt in my prayers. That is so awful to be so sick and not have insurance. I am sure there has to be some way for someone so sick to get assistance.

And by the way, Tramadol tears up my guts something fierce. I didn't get the migraine like you did, but it does make me really pukey.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/30/2009 3:18 PM (GMT -7)   
Thanks Nanners. I'm trying to be realistic for my aunts sake. There's PLENTY they can do. My uncle HAS tons of money (if the bleeper would stop gambling it all into the casinos). I think she needs to talk to someone to help her get more positive about her situation. So WHAT if she has any type of ostomy. SHE told me a person lives past that (back when I was scared of ending up with one). Her mom died from it. I'm just hoping she can get some positive feelings going. I know she's got to be scared. I know what its like to be scared that its cancer. To be scared that I'm going to die by the time they figure out whatever the heck is wrong with you. I want to help her but I also want to give her the distance she may be needing right now.

Also...YEAH...I have insurance. I saw a doctor. I need to talk about seeing a shrink. I'm trying to give a quick update like ya'll care about my talkative butt :-P. I am feeling better now. The doctor changed the tramadol after I had such a bad headache for yesterday and the day before. It was awful. Light sensitive, sound sensitive, etc. Migraine city. I'm on hydrocodone now. So, I'm being careful with those. I actually remembered to order my pentasa early. The insurance will cover my pre-existing condition in October so that's when I'll have my first follow-up colonoscopy. Today I'm not freaked about how I'm going to deal with it all. I can move with minimal pain (yes, my knee and elbow and back still ache a bit fiercely). I'm not scared at this moment of what more my body will put me through. I do get scared sometimes of what the constant pain has done to my thinking sometimes. I was really scared of myself for a long time. I guess I'm lucky to have such good defense mechanisms in place from when I LAST had psychological counseling.

I'll still be around...I just wanted to thank everyone on here too. You all helped keep me alive and sane. Uh oh...I'm getting all teary-eyed...silly hormones. Thanks anyways everyone.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 1/30/2009 3:35 PM (GMT -7)   
Hi Joie1,

My prayers go out for your Aunt and your whole family! I hope she becomes more willing to accept help, comfort, and company from her friends and family. This disease is isolating enough without isolating yourself even more. Thanks for caring about her! And for you too -- I'm glad you were able to see a doctor and are feeling better. I pray this is just the beginning of you feeling great!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/30/2009 4:25 PM (GMT -7)   
Hi Joie sending out the good vibes and very glad you are able to get some help soon. Does your Aunt have crohn's too ? She is young and hope help will bring her some good.Let us know how she is doing.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

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