The nurse called today, as I had called to inquire if there was anything of great concern with this. She felt that it was very likely from the Prednisone weaning. She said that it's common. I've never heard of this at all. I can remember the first time around for Prednisone, my daughter had developed some dependency, but that was marked by severe diarreah. They had to slow the wean down, and everything was fine. She has no symptoms like that this time. Does anyone have any imput on this at all? What would happen physiologically for the Prednisone to do that?
I'm sorry to hear how much your daughter has been through How is she doing now?
Thanks for asking. She seems to be doing okay. I will likely post an update on Monday, as that's when she goes back for testing to see if the abscess has healed up. She's finally done with taking Flagyl, which I think is what was making her so tired.