I can't eat dinner.

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78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/29/2009 8:03 PM (GMT -7)   
I haven't been able to eat a "proper" dinner in almost two weeks.  Maybe longer.
 
I compensate by eating at breakfast and lunch, because I am fine then, but come late afternoon and dinner-time...and I'm feeling major ookie.  I can make dinner for my husband, but I don't eat.  I maybe pick at it if I do fix a plate.  Sometimes, I can eat after 9 or 10pm, but not often.  I have tried snacks to keep my stomach from getting empty and rebelling, but it just doesn't seem to matter.  I have a very difficult time bringing myself to eat in the evenings.
 
A problem, is we have a 'go-to-hell' room.  It is basically another sitting-room with a TV so I can watch whatever I want and he can 'go-to-hell'.  It is not said in a mean-spirited way, it is a funny family joke for us.  Anyway, because of the GTH room, he hasn't noticed that I'm not eating.  He is away this week, out of state, training.  I had a girlfriend come over for dinner Tuesday night and she noticed I only ate a few bites of dinner, and she commented on it.  When my husband comes home, I think I will tell him of my difficulty and he will be able to help monitor the problem.  We may start eating at the table and not in front of seperate TVs, that way he can help encourage me.
 
I am holding steady at about 120#, but I think that is too thin and I would like to put on 5-10, but I am barely managing to not drop weight the way I am currently eating.  I do have phenergen (or something similar) but it knocks me to sleep before I can feel non-nauseated to eat.
 
Anyone have any suggestions?
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


patientspiders
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Date Joined Jul 2005
Total Posts : 733
   Posted 1/29/2009 8:32 PM (GMT -7)   
I'm going through similar eating issues myself. No fun. My husband tries so hard to get me to eat on a "normal" person schedule, but the simple fact is that sometimes it just isn't gonna happen.

I know it is a highly controversial subject, and I hope I don't break any rules by mentioning it... (medical mj is not allowed on the site)- in the hopes that it would get me to eat. It does. I haven't managed to gain any weight, but I have at least stabilized with my current routine so I'm not disintegrating anymore.


I believe there is a pharmaceutical version called something like "Marinol" maybe?

I wish I had a better suggestion, but I'm grasping at straws here myself! I bet you get just as mad when someone comments about your weight too... the "I wish I could be skinny like you" kind of comments. I hate those! I always want to tell them, "I wish I could EAT like you!". People take eating and the desire to eat for granted. Not me! When I get hungry, I REVEL in it because it means I feel pretty good. :-)

I hope you get to feeling better!

Post Edited By Moderator (MMMNAVY) : 1/30/2009 7:26:45 AM (GMT-7)


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/29/2009 8:43 PM (GMT -7)   
I hope I start to feel better, too.
Thanks for the suggestion.
heidi

Post Edited By Moderator (MMMNAVY) : 1/30/2009 7:27:29 AM (GMT-7)


patientspiders
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Date Joined Jul 2005
Total Posts : 733
   Posted 1/29/2009 9:43 PM (GMT -7)   
 I don't know about the Rx pill version

Post Edited By Moderator (MMMNAVY) : 1/30/2009 7:28:17 AM (GMT-7)


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/29/2009 11:23 PM (GMT -7)   
I was just re-reading this and got to thinking...
My CRF (chronic renal failure) cat had to be prescribed an appetite stimulant in addition to an initial anti-nausea injection just to get her over the hump and eating so she would feel better.
Is there an appetite stimulant for people? Besides prednisone? *laughs*
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2009 7:18 AM (GMT -7)   
Well another anti nausea med to look into is Zofran. This one takes away the nausea without making you drowsy.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/30/2009 7:34 AM (GMT -7)   
There is also a school of thought that you should it a dinner size meal at breakfast and a breakfast size meal at dinner. However I just carry around a jar of cream peanut butter and eat a spoonful here and there, which is also why I am probably280 lbs...LOL
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 1/30/2009 2:59 PM (GMT -7)   
Welllllll... I usually drink Ensure when I'm like that...which is every day. I buy tons of the stuff now. It's like a lifesaver for me. I don't feel hungry anymore. For MOST meals. When I DO feel hungry, I eat but I watch what and how much. Then I may not eat another full meal all day 'cause I'm not hungry but I know I should get more nutrients so I Ensure it away with two or three drinks. It's not great for everything but it does help keep my weight more level so it's not the difference of two or three pant sizes instead one-two pant sizes.

Though, I never gained back all the weight I had before last February when I got diagnosed and had TPN and a resection so just try to keep watch. Or eat bun sized meals five times a day.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/30/2009 3:18 PM (GMT -7)   
Hi I too am a good believer of ensure and boost for skipped meals. May I ask why you are not eating in the evening? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/30/2009 3:24 PM (GMT -7)   
I can't really help with the nausea except to try drinking ginger tea or organic ginger ale? But I can understand about not wanting to eat in the evening let alone a big meal. I agree with the others in drinking something like ensure or boost and/or eating small fist-sized meals throughout the day.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/30/2009 3:50 PM (GMT -7)   
Sorry you had to edit, Navy.

Just a quick heads-up about Ensure... they work great for a lot of people, but mind the ingredients. Most seem to have soy or lactose, both of which are no-no's for some of us, which is a shame with a drink like Ensure, but... just make sure you read the labels if you have any food sensitivities.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
'cade stopped working in '08 and I've been scrambling ever since.
Noticing a real difference with a Gluten-Free diet.
Currently on:
Probiotics, Digestive Enzymes, and Prednisone
Soon to Start:
Cimzia, acacia fiber supplement, and L-Glutamine


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/30/2009 8:21 PM (GMT -7)   
I have a similiar problem. I feel nausea in the evening and don't feel like eating a proper dinner. Sometimes I find breakfast foods sit better at night than meat/potatoes. I like the others suggestions about Boost or Ensure - Resource Fruit Beverage is also easily tolerated although it does not have as many calories.
Crohns almost 17 years. No surgeries. Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/30/2009 8:57 PM (GMT -7)   
gachrons said...
May I ask why you are not eating in the evening? lol gail

Nausea.  I like to eat, I just can't seem to bring myself to feel like eating in the evening because of nausea. 
 
Truthfully, I really think it is meat.  I am a firm carnivore (well, omnivore) but there was a period of time when meat was very unappealing to me and I wonder if that is coming back and having an affect, now.  Though, in the evening it is ALL foods, no matter what.  I am trying to have meat at my lunch-meal and that is working very well.  I think I will pick up some boost or ensure at the grocery, though, and give them a try in the evening. 
I think I could drink easier than chew/eat right now.
Heidi
 
*sorry for making you have to edit* redface
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 5:55 AM (GMT -7)   
Hi Hope this will be something that subsides as your injestions work instead of the pill form,sometimes meds can be hard on the stomach, pred. used to give me killer heartburn, and let us know how you find the drinks .I am still on the low residue diet after resection which is easy on the innards, I hope things will improve for you soon. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 1/31/2009 7:24 AM (GMT -7)   
no worries...
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 2/1/2009 9:56 AM (GMT -7)   
Are you taking any antibiotics right now? I noticed that when I was on a combo of Flagyl and Cipro, I stopped eating almost all together. I just hated food and nothing ever sounded good. Part of it was the nausea but part of it was just...bleh. I hope you find something because I know that it sucks.
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/1/2009 11:24 PM (GMT -7)   
Nope, no antibiotics. Just Tramadol for pain (hip), 1x/week MTX (Tues), Hycosomax(?) for keeping my guts from spasming and Promethezine for nausea.

I did better today, taking a HALF of a promethazine about a half hour before I wanted to eat dinner with friends at a SuperBowl party. I was able to eat about 3/4 of my bowl.
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/2/2009 8:08 AM (GMT -7)   
could be the MTX ....I am assuming it is the 25 mg shot?
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/2/2009 10:28 AM (GMT -7)   
Yeah. I figured it would be the MTX. The first 6wks of it, I had FAB results and NO nausea at all. Pills brought on side effects and lowered the positive response to the med with symptoms returning. Now, it seems I am slowly, so very slowly, regaining the ground I lost while taking 2mo of MTX pills and also having to deal with the side effects.

Could my MTX I get from my pharmacy be different than what the Oncologist's office had given me?
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/2/2009 5:47 PM (GMT -7)   
I had a really bad problem with pills. The injection made the difference to me...
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/2/2009 7:47 PM (GMT -7)   
MMMNAVY said...
I had a really bad problem with pills. The injection made the difference to me...

Yes, that was my experience, too.  However, I started with injections (6wks) and then went to oral pills (8wks) and began declining in medication effectiveness and symptoms returning.  I've now been on injections again for 8wks (tomorrow will be 9th injection) and I am very slowly regaining the ground I lost backsliding with the pills.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.

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