[With Permission from Founder Peter Waite] University of Pennsylvania IBS/Crohn's Study

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New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/30/2009 9:43 AM (GMT -6)   
This post was approved by Founder Peter Waite Jan. 29, 2009 at 6:16 PM

Penn Research Study
Researchers at the University of Pennsylvania are looking for participants with either Irritable Bowel Syndrome or Crohn’s Disease to fill out a few questionnaires to help in the development of two new measures of GI symptoms and distress. If you have been diagnosed by a medical professional with one of these two conditions, we would be very appreciative if you could take a few minutes of your valuable time to visit our secure website and complete the questionnaires. Participation is completely anonymous – we don’t even need your e-mail address. There is no cost for participation, and the study should take about 20-30 minutes to complete. You must be at least 18 years of age, and not currently pregnant. If interested, please click the link below to find out more.


I made the link active. Thank you

Post Edited (NicoL) : 2/6/2009 11:03:40 PM (GMT-7)

Veteran Member

Date Joined Nov 2005
Total Posts : 1338
   Posted 1/30/2009 3:23 PM (GMT -6)   
Is there a reason the survey only asks about IBS even when people answer they have Crohn's and not IBS? It makes it hard to answer, since we have the symptoms but not as symptoms of IBS as questions ask.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 1/30/2009 4:45 PM (GMT -6)   
I was thinking that too. Either way, maybe if there were more studies done on how we actually feel during a week...maybe doctors and GIs would have a better appreciation of how sick and painful we really feel. Sometimes, it seems as if a lot of the GIs we all visit don't really understand. I see the words, "If the GI could live a week in my body." a lot. So here's hoping that this survey will lead to more and more surveys so there will be acknowledgement of how awful these diseases are.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 2/2/2009 9:42 AM (GMT -6)   
Since I have both IBS and Crohn's it is hard to determine if my symptoms are ibs or crohn's related.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (28) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 2/3/2009 8:40 AM (GMT -6)   
I found I could not answer this form on the way it was set up .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 2/3/2009 10:40 AM (GMT -6)   
I didn't have any problems, Gail. If it said IBS I didn't respond to that question. It lets you skip questions.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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