Does Crohn's ever get better?

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brinycbri
Regular Member


Date Joined Aug 2006
Total Posts : 64
   Posted 1/30/2009 11:20 AM (GMT -7)   
Seems like everytime I go to the doctor it's either the status quo or bad news..never good news or getting better. is this always the case?

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 1/30/2009 11:35 AM (GMT -7)   
I sure hope not :)

But i feel sometimes like i move one step forward and two steps back..
Now i am slowly getting better but it is very SLOW and i am waiting for my next Remicade infusion on feb 19..

Since i started to get sick in august 2007 and it has been downhill from there, i have been on steroids since November, took the last pill last Monday and now my D is slowly coming back :( it is like one long roller coaster ride :S
24 year old female

Diagonsed with Crohns disease in December 2008..

Medication - Asacol, Remicade, Entocort


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2009 2:14 PM (GMT -7)   
I have had this DD for over 33 years and I can tell you, yes it does get better. Its just a matter of finding the right med for you and getting your disease under control. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 1/30/2009 2:32 PM (GMT -7)   
Yes it does, with the right treatment. I've had years where I did very well and was in remission. Followed by times of flare up. It's a chronic disease so it never goes away forever, but you will have times of relief of it. Hope that comes soon.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/30/2009 3:22 PM (GMT -7)   
Hi Yes some things have gotten better for me but it was a long road, and took some time and a couple of operations. I know the feeling of wandering and taking one day at a time. I guess I can say though I'am in it for the long haul ..lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/30/2009 3:26 PM (GMT -7)   
I really think that it does. It feels so much like we're constantly slipping backward with not much more to do but wonder 'when?' and if our treatment and efforts are even working.
BUT, I think it could always be worse and that we just have to keep trying. Regardless of how difficult it is it still seems like small improvements are kind enough to find us here and there.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


gutless1der
New Member


Date Joined Jan 2009
Total Posts : 9
   Posted 2/2/2009 2:27 PM (GMT -7)   
it's kinda like that little girl in the nursery rhyme with the curl in the middle of her forehead: When she was good, she was really really good.  And when she was bad, she was terrible.

MsRockonBelly21
Regular Member


Date Joined Dec 2008
Total Posts : 42
   Posted 2/2/2009 3:38 PM (GMT -7)   

A few times I have been in remission. One time my doctor didn't believe it because I told him I felt great. I am in the middle of a flare up and my doc and the head doc don't know what to do sad I am on meds for anxiety and depression, but everyday I am trying to find at least 3 days that made me happy. So today

  • there was no line at walmart's pharmacy
  • I am not going to bathroom as much(been going round the clock last few days)
  • I didn't have road rage today smilewinkgrin

Don't judge a book by its movie.
 
In the past I have taken Asacol, 6mp, Prednisone(3x),  Remicade, Flagyl, Cipro, Phenergan, Colazal(think there was others).                       
 
I am on Metoprolol 50 mg for high blood pressure and heart beating too fast. On Citalopram 20 mg for my anxiety and depression. Started taking fish oil capsule 1200 mg for my high cholesterol. On Calcium 600 mg+ D 400 i.u.  pills. On Remicade 1,045 mg 
 
Diagnosed at age 14 in 2001, first started sick getting at age 13, Sept 2000. I am now 21


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/2/2009 3:46 PM (GMT -7)   
I'm doing better... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


annod
Veteran Member


Date Joined Apr 2004
Total Posts : 1052
   Posted 2/2/2009 6:53 PM (GMT -7)   
Hi :)  I remember being in the same spot about 5 years ago- I was so so sick and it went on and on.  I didn't think it would ever end.  Things did get better very very slowly and I was able to get back to work and have another beautiful baby boy!  I was extremely sick for 2 years and have been doing well for the last 3 years.  Everyday I am thankful things aren't as bad as they used to be and I understand that they can be again- but I KNOW now that I can make it through and I think positive thoughts helps a lot.

Donna


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 2/2/2009 7:46 PM (GMT -7)   

Better than what?   Not being a smart *** but really better than what?  I don't think that even if in remission we ever get back to normal....we are still a bit gun shy or nervous about what we eat or question every gurgle....

For me it is just a matter of degrees one way or the other....but I do not ever feel that I will be like I was before I got hit with this....and even when years before I knew I had it I can remember problems....and I know that I will never really enjoy the freedoms that so many other friends and family do...I will always want to know where the closest bathroom is....I think it becomes habit as much as it stems from actually being sick.

I had surgery in November and for a few weeks after thought ok I am almost fully cured....but it didn't last...I am better (there is that word again) but I am no where near healthy and normal.

I think the worst day i ever had with this darn disease is not one that involves pain, the big D or any of the other symptoms associated with crohns....but rather it was the day when I was truly fed up with all of it and asked my gastro about cutting it all out and giving me the bag....he told me that almost all his patients eventually asked or begged for the procedure...and he said if I had UC he would probably consider it...but since I had crohns the surgery and bag were not a sure cure...that it could and probably would pop up again else where in my system....it was that day that I finally knew I wasn't going to get better...i would just have better days and worse days.

 


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old


brinycbri
Regular Member


Date Joined Aug 2006
Total Posts : 64
   Posted 2/3/2009 7:18 AM (GMT -7)   
going to the doctor's for the followup after biopsy etc. Please wish me good look and pray for me :)

thanks all and I hope all is well with you.

Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 2/3/2009 7:42 PM (GMT -7)   

Hi Brinycbri,

That's a tough question to answer.  I haven't had the diagnosis that long, but from what I understand, Crohn's can bounce back and forth between remission and flares.  Everyone's disease reacts differently.

Of course there's no cure (yet), but it's also not considered to be a terminal disease.  I think that seeing your gastroenterologist on a regular basis; and following his/her instructions (whether it's relating to meds or foods) are two of the many things you can do for yourself.

By the way, have you received your results yet on your biopsy?  Good luck---I hope it's great news!!!


53 year old female;
 
Have had Crohn's of terminal ileum for over 8 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 2/5/2009 7:02 PM (GMT -7)   
I agree with isegoder. I know i'm not a veteran yet...I've only had crohn's for almost 2 years now and I was darn lucky that I hit remission pretty quick (7 months) granted i wasn't all the way better or back to "normal" till about a year later but I wasn't bedridden and asking God why I was cursed with this darn thing. Since then, i have flared up 2x. This past Labor day and yesterday. LOL. you kindda get used to it and just are thankful when the days are good. On the bad days you wallow and feel sorry for yourself and then you remember the good days and hope they come back again soon then you get better and forget you're sick and push yourself as far as you can go. it's a darn yoyo.

Good luck to you.... you will find ways around it to make it bearable.

-malakai
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds:
Asacol 3x day
Imuran 50MG 3 x day
Lamictal 125 MG/day for bioloar II


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 2/6/2009 9:47 AM (GMT -7)   
Since my diagosis in '82 I've had really bad times and I've had feeling normal times. Right now, according to my GI I have no disease activity (happy dance). This dd goes in cycles, unfortunately that varies from person to person.
 


miguelblanco
Regular Member


Date Joined Dec 2007
Total Posts : 131
   Posted 2/6/2009 2:16 PM (GMT -7)   
It can get better. My meds are working for me right now and life is closer to "normal" than its been since my diagnosis 2.5 years ago. So it can happen. We all hope things get better for you too! yeah
Type I Diabetes- 29 yrs. (MiniMed Insulin Pump)
Celiac Disease- 8 yrs.
Crohn's Disease- (Nov. '06)
Remicade (First Infusion 11/3/08) yeah


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/6/2009 6:54 PM (GMT -7)   
I just had a followup C-scope yesterday, seven years after my diagnosis. The results were unremarkable, the lesions were gone and a large area that was previously very yellow and narrowed, looks healthy and normal now . I still have arthritis pain, but now feel it may not be Crohn's related.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


The Boney King of Nowhere
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/6/2009 10:02 PM (GMT -7)   
as far as my experences have shown, this is pretty much the way it goes.
I was diagnosed with Crohn's disease when I was 14 years old, I am now 21.

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