Pearl Jam's Mike McCready lobbies for restroom access

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Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 1/30/2009 5:53 PM (GMT -7)   
Here's a link to the article describing our fellow Crohnie's advocacy: http://www.mynw.com/?nid=11&sid=129593
 
Also, Mike McCready is currently on a local radio station describing living with Crohn's. This station has podcasts of their shows. If you want to hear Mike, use the link below to get to the podcasts in the format you like. He appeared on the Ron & Don Show, Friday, 30 Jan at 4:30pm PST.
http://www.mynw.com/?sid=64080&nid=154
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 1/30/2009 7:52 PM (GMT -7)   
Thanks for posting this, Ides. I was impressed by his willingness to speak so candidly about his illness... and then horrified when I read some of the comments other readers had posted. Shocking.
Co-Moderator Crohn's Forum.


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 1/30/2009 8:02 PM (GMT -7)   
Um, I'm pretty horrified by some of those comments as well. How is allowing us access to private restrooms any different than a company making handicapped parking spots? I'd like the people with who made those comments have an accident in public and/or go a week wearing diapers and THEN see how they like it. There is absolutely no empathy...
I'm thoroughly disgusted...

Hats off to Mike McCready for challenging views like theirs. I really appreciate what he's doing.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/30/2009 9:08 PM (GMT -7)   
I was saddened to read some of those comments. Some of us DO wear "diapers", but they are not a cure-all nor are them comfortable OR easy to disguise. Restaurants have bathrooms for the public, those should be fine...but buildings with "no public restroom", but you know they MUST have a restroom for their employees, like the banks, clothing stores, basically any building the public comes in to do business in, should allow sufferers to use their restrooms.
I shop in many stores, and luckily I have not been denied or had an accident that couldn't be hidden/cleaned up from.

Some of the people making those comments need to wear our disease and have to walk a mile to a bathroom to understand.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


Cyborg Ninja
Veteran Member


Date Joined Jan 2006
Total Posts : 660
   Posted 1/30/2009 9:16 PM (GMT -7)   
People are just ignorant. Those comments give me mixed feelings. I feel outrage but can't help but laugh at the stupidity sometimes. I also have mixed feelings about this bill. I do not live in Washington but I do have Crohn's. I believe that it would have been better to get the message out about the need of open restrooms for Crohnies to the public. Even if this bill passed, many businesses wouldn't even know about it and refuse admittance anyway. And then what, they get fined? What good does that do anyone? The hope is that eventually businesses will catch on and spread the word, which would've best been done through the media in the first place. I realize that much is being done to inform the public about Crohn's. But I do not believe in this legislation. I believe it only leads to more animosity and confusion on the side of those who do not understand, which is sad. Perhaps the best that can be done is to try to educate them.

There's a comment on that page that refers to Crohnies as a "special class of people." As if we're a special interest group who's going to take over America... starting with your restrooms. Moron.
Current DX: Graves' disease, Crohn's disease, gallstones, scoliosis, syringomyelia

Post Edited (Cyborg Ninja) : 1/30/2009 9:19:28 PM (GMT-7)


Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 1/31/2009 1:25 AM (GMT -7)   
I think it's awesome that he got up there and told his story, in hopes to help us all.

The comments made me sick though. Just shows that there too many clueless heartless people.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/31/2009 2:19 AM (GMT -7)   
Good for Mike McCready.
I had thought of lobbying or something
when I had three years of terrible IBS.
Good for him.
I haven't read the comments but can imagine.
Subway sandwiches never has restrooms.
I don't know if they're all over the US.
Pamela

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/31/2009 3:17 AM (GMT -7)   
I think business should be fined a high amount then $100.00 fine. I think it should be more like a thousand.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 4:21 AM (GMT -7)   
Hi Ides thanks for the posting. I will state the obvious here and that is the lack of humanness when it comes to some peoples ideas of how people should get rid of body contents. . Public wash rooms are a must where people are going in public and the C&C society should be fighting for these rights. It shows that society is a little of needing to upgrade it's standards ,we are not living in the cave man days of long ago. Like any change or rights it takes getting used to .

The suggestion on people wearing diappers made me laugh as overfilled diappers spilling on floors can be quiet unsanitary and a health hazard... not to mention the nasty odours that would send most people into votmitting ...hmmm,open up them wash rooms people cause you gotta love it.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/31/2009 7:49 AM (GMT -7)   
Those comments really make me sick. I'm sure if any of those people had IBD, they'd be first in line to support restroom access; but since they don't, it's just a joke to them. Disgusting.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 1/31/2009 8:51 AM (GMT -7)   
Well, and you can't just recommend that anyone with IBD/IBS wear diapers when going in public for the rest of their lives. What about the fact that many call this the 'young people's disease?' Mike McCready was right when he said you can't do this to 13-20 somethings. Life is already awkward enough. And you know what? There would still be humiliation with diapers when we DID have an 'accident.' It's not like you can just walk around with it unnoticed.
The ignorance of people never ceases to amaze me, and shame on me because I never forget that it's there.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


crohnspatient13
Regular Member


Date Joined Jul 2008
Total Posts : 128
   Posted 1/31/2009 3:51 PM (GMT -7)   
upon reading this article i was tearing up from reading about someone who has more public influence than someone like me and is advocating for something i have felt so passionately about every since being diagnosed. I guess I understand why some people are disputing it because of privately owned buildings needing to open their doors, but I would even settle for just all businesses open to the public being required to have public restroom access. That's where most if not all of my problems and accidents occur is when i run into a shop store or such and am told, sorry no "public" restrooms. Even once in a Shaw's grocery store! So by the end of reading this I was as well tearing up because how offended I felt and how upset it was making me feel how people were in a sense mocking me and everyone else who suffers with these unmentionable, painful, embarrassing experiences. Obviously, if they think an adult diaper is the savior and answer to all of our problems, they have no idea what they are talking about!!!! I know when I have an accident, which happens quite often lately, unfortunately, an adult diaper can not silence the sounds or mask the smells (which no one wants to mention in public) but it's so much more than just crapping your pants! (excuse my french) but on one hand I am so happy and honored that I have a person like Mike from Pearl Jam speaking on my behalf but at the same time so hurt and infuriated that some people are so cynical and heartless that they can mock and make fun of a situation that, thank god, they don't have to deal with! UUGHHH sorry, but I had to vent, I hate people sometimes!
Dx'd with Crohn's December 2004
Previous Meds: 6MP, flagyl, cipro, cortisone enemas, prednisone, remicade (3 1/2 years).
Currently Meds: Humira 40mg/week, prednisone again 30mg/day and tapering, augmentin, proctofoam enemas, percoset as needed
Supplements: Iron, B-12, B-6, Calcium, Vitamin C, soon to try bee propolis


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/31/2009 11:35 PM (GMT -7)   
How about someone who has worn a diaper (I haven't) write a comment under the article about the smell and sounds so that others will be educated?
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/31/2009 5:22 PM (GMT -7)   
... and it's not just the smell, it's the pain. Retaining d when your entire anus and rectum are ulcerated is horribly painful. A nappy / diaper can't help us control the pain.

I
Co-Moderator Crohn's Forum.


sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 1/31/2009 6:37 PM (GMT -7)   
I don't know anyone with Crohn's (other than myself..) I have to say, it is so nice to chat with people who get it! I have been so humiliated due to this disease! Having an accident in public is so embarrassing and uncomfortable. I can't count how many times I have avoided going out in case I might have an accident! Thanks for getting it!

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 1/31/2009 8:23 PM (GMT -7)   
The comments don't surprise me at all. There will always be those who jump from "must allow access to restrooms in public buildings" to "they're going to make me let perfect strangers take a dump in my home!" And there will also be those who over-estimate the usefulness and practicality of adult diapers. It's something they've never had to think about before. I do admit the "special class of citizen" comment irritated me. We're asking for BATHROOM ACCESS. It's not like we're eating up your tax dollars or getting special treatment from traffic cops. We just need to take a crap, and would prefer not to do it in the middle of a store.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 1/31/2009 9:06 PM (GMT -7)   
Don't you guys know anything? There's GOLD in them there bathrooms. GOLD, I SAY! GOLD!

//>.>\\'... Honestly... It's awful that we even have to have legislation for this. If someone has to go, they should just let that person go. It's not like this is rocket science. //@.@\\'...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/31/2009 9:17 PM (GMT -7)   
I agree with bektold. And there is a difference between letting a person use the restroom in a private business and allowing perfect strangers to enter private LIVING QUARTERS. Generally, businesses you know, want people to come in. Hence, the business. Like Mike McCready, I would stop shopping at a place who refused emergency access to me or anyone else until they started doing the humane thing.

You know Celey...sometimes I would say toilet paper is worth more than gold haha...so maybe!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 1/31/2009 9:42 PM (GMT -7)   
What disgusting comments. Yeah, like a diaper will hold all that's going to be coming out. Come on people. Not to mention the fact that this does work in other states just fine; it's not rocket science.

Good for him!

crohnspatient13
Regular Member


Date Joined Jul 2008
Total Posts : 128
   Posted 1/31/2009 11:09 PM (GMT -7)   
to lighten the mood though, the cave-man reference made me think: either they let us go inside like civilized humans or they can make public defecation legal! hahaha one way or another, we're gonna have to go somewhere!
Dx'd with Crohn's December 2004
Previous Meds: 6MP, flagyl, cipro, cortisone enemas, prednisone, remicade (3 1/2 years).
Currently Meds: Humira 40mg/week, prednisone again 30mg/day and tapering, augmentin, proctofoam enemas, percoset as needed
Supplements: Iron, B-12, B-6, Calcium, Vitamin C, soon to try bee propolis


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 1/31/2009 11:42 PM (GMT -7)   
bektold said...
The comments don't surprise me at all. There will always be those who jump from "must allow access to restrooms in public buildings" to "they're going to make me let perfect strangers take a dump in my home!" And there will also be those who over-estimate the usefulness and practicality of adult diapers. It's something they've never had to think about before. I do admit the "special class of citizen" comment irritated me. We're asking for BATHROOM ACCESS. It's not like we're eating up your tax dollars or getting special treatment from traffic cops. We just need to take a crap, and would prefer not to do it in the middle of a store.
LOL Maybe that's what we should do then, right in the middle of the store. It really makes me think less of the human race, why do people lack compassion so much these days? Heart breaking that anyone could think that way of another human that is suffering from anything.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/1/2009 5:45 AM (GMT -7)   
Not to mention the fact here that sitting in aload of sh.. would do to a person's privates but is that what it takes to live in a world that looks down on people, when did we become less human, and health is health .Washrooms are an important part of living a healthy and stressfree life not only for us but for everyone..what would happen if there were no washrooms for even the people that do not have body content issues... would they just hold it all day.. no they would sh.. there pants ..lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/1/2009 9:42 AM (GMT -7)   
gachrons said...
...to live in a world that looks down on people, when did we become less human, and health is health.
Washrooms are an important part of living a healthy and stressfree life not only for us but for everyone..what would happen if there were no washrooms for even the people that do not have body content issues...
I hesitate to bring this up, but this reminded me of the scene in "Driving Miss Daisy" when she and her driver were taking a roadtrip and he needed to "make water" and there were no public places he could access.  sad
It makes me think that now, just a tiny bit, I understand a little bit better how other people had been treated, exactly how wrong that was and how much the times have changed for the better.
Maybe it will happen for us, too.
heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 2/1/2009 7:16 PM (GMT -7)   
Thanks for posting this Ides.
What a great guy to come out and tell it how it is, kudos to him for all the honesty, especially mentioning his accidents. Its hard enough to mention we have accidents to non crohnies let alone be famous and publisize this to everyone.
As for the rude comments, everyone else summed those type of people for what they are.
Jo

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 2/1/2009 8:04 PM (GMT -7)   
The lack of education, awareness, and common decency doesn't suprise me anymore. All I could do is sit there and shake my head as I read the article.

Have you all gone to the link on Crohn'sAndMe.com? You can look up your congressperson and send them a letter to get support for the restroom act in your state. It also shows which states have passed the act and which are pending. Here's the address. I can't get it to turn into a link right now, will try again later.

http://crohnsandme.com/thescoop/advocacy/

http://crohnsandme.com/thescoop/advocacy/tracker.asp
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