Grrr people that ruin it for the rest of us

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FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/30/2009 6:49 PM (GMT -7)   
I work across the street from a huge building w/ a food court and 3 stall public bathroom on the first floor.  I have on a few ocassions used that bathroom on my way to work.  I know my bathroom is just across the street but it is also up a flight of stairs, etc.  The other building is so big that this bathroom is almost half a city block closer from my parking space.  Anyway,  I rarely use it so no huge deal.
 
Today I went over there and ordered my lunch and decided I'd go take a quick pee before my food was ready.  I get there and the door is locked.  There is a sign on the door that it is for customers only and to see the security guard for the key.  This is a 12 story building! I go up one floor where the security office is and there is no one behind the desk.  I go back down and see the dude at the salad bar and he tells me to go find the porter.  What the heck is a porter and how will I know it is him? He flags down the porter who looks like a 16 year old kid.  I tell him I need the restroom key and he says "ok, lets go find the security guard."  Are you kidding me! Thank goodness this wasn't an emergency.  I could have gone back to my office, used the restroom, and been back by now.  Meanwhile my food arrives.  Finally the guard is giving the porter the key.
 
I say, is it possible that the restroom could just be left unlocked during the lunch rush since there are SO many people in here eating (including half of the local high school).  He says no.  And I say well "it kind of sucks for the patrons that really have to use the restroom."  He replys, "it would suck even more to walk in on someone main lining heroin."  Apparently they found some transients in there w/ needles stuck in their arms.  Hence the new policy.
 
Again, I am not making a huge deal out of is since "my" bathroom is still close by.  But, why couldn't each vendor in the food court carry a bathroom key?  Then the porter pulled me aside and said "the door never closes right anyway.  If the knob doesn't turn pull real hard and I bet it will open for you."  Ok thanks dude.  He let me in but what a waste of everyones time.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 1/30/2009 6:54 PM (GMT -7)   
So, they're going to make it more difficult for people who actually need to use the restroom due to the stupidity and abuse of a few? I'm sure there is an easier way to regulate who uses their precious restrooms other than locking it and making it nearly impossible to find the key.
And even during lunch hour...if they're going to continue with their new policy then at least keep a security guard near the bathroom during times of heavy people flow!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 15 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, multivitamin, humira every other week, and good probiotics.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Attempting a diet without refined sugars, high fat content, bleached or bromated flour, most dairy, red meat, and avoiding anything spicy like the plague. Also refuse to eat anything with trans fat or high fructose/corn syrup.
"He who has a why to live for can bear with almost any how."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 1/30/2009 7:27 PM (GMT -7)   
You make some good points, Fitzy. Can you write a letter to the food court manager / owner of the building?

You offer a practical solution to the problem, an *easy* practical solution, and your needs should be heeded.
Co-Moderator Crohn's Forum.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/30/2009 9:16 PM (GMT -7)   
One of the Doctor buildings my husband and I go to (mostly for his appointments, they are the main hub of our primary care Drs and house most of the specialist doctors of this medical group) has downstairs bathrooms in the lobby...but now you have to go into the main waiting room and ask a receptionist for a key!
I don't have TIME to ask for a key OR ride the elevator up one floor (possibly with other clients/patients) as I am desperately trying to hold back any gas or waste while trying to get to the 2nd floor bathroom.

I think the next time my husband has an appointment there, I am going to have to lodge a complaint and explain, with excruciating detail, why those bathrooms need to be open and checked regularly for cleanliness and appropriate supplies.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 5:22 AM (GMT -7)   
I guess the problem sounds like the door closures weren't working proper ...don't they have a maintenance man or woman hmmm .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/31/2009 7:02 AM (GMT -7)   
Well the problem wasn't actually the door closing. It was never locked before. What the porter was telling me was that if I really have to go and can't find the guy w/ the key to just "pull the door real hard." Lol.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 1/31/2009 7:43 AM (GMT -7)   
There are places in the "down-town"/"old town" neighborhood here that share one bathroom between 3 antique buildings.

My favorite place to eat lunch - you have to know a 4-key combo pad to get into the "communal" bathroom that the restaurant shares with a law firm, an art gallery, and another office. It's way down a creepy basement hallway too. And sometimes I get all the way down there to discover they changed the combo.

My favorite though, is the Diary Queen here - it is somehow NOT required by law to have a bathroom. I personally don't eat icecream, but a lot of people that DO need bathrooms ASAP. I used to work next door to the diary queen and people would come to us in a panic. I always felt so bad for them, mostly because I'M usually the one begging for access to a toilet! I wasn't supposed to allow people to use our employee bathroom because of the insurance policies (ie it wasn't handicap accessible or easy to get to), but that was one rule I never followed. When you gotta go, you gotta go. That should be universally understood and accepted!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
'cade stopped working in '08 and I've been scrambling ever since.
Noticing a real difference with a Gluten-Free diet.
Currently on:
Probiotics, Digestive Enzymes, and Prednisone
Soon to Start:
Cimzia, acacia fiber supplement, and L-Glutamine


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 1/31/2009 9:28 PM (GMT -7)   
Only one way to find out...poop right in front of the locked door. After a few times, i bet they dont lock the door anymore :)
SCD since 01, remission since 01, occasional Arby's breaks :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/31/2009 10:28 PM (GMT -7)   
Too funny!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 1/31/2009 10:43 PM (GMT -7)   
aoccc said...
Only one way to find out...poop right in front of the locked door.

I am embarassed and ashamed to say...  I was trying to get from the parking garage to the hospital building for my GI Specialist appointment (remicade infusion) and I had to pull my pants down in the empty stairwell and poop in a corner.  redface   I knew I was going to be unable to hold it through an elevator ride with other people, then a 300' walk through the breezeway to the building...and then another 200' inside the building before I even reached the first bathrooms. 
That was the day I decided to make my surgery appointment, but the shame didn't stop there...
My last Remicade appt before surgery, I was stuck in traffic in the parking garage.  No where to pull over and stop to take care of things.  Cars ahead of me and behind me, I was trapped.  I grabbed the garbage bag and stuffed it under me, pulled my pants down to my knees, rucked my shirt up to my chest and covered my lap with a towel...and 'went'.  While I was stop/go driving through six levels of parking.  Trying to find a parking place.  When I finally found a spot, all I had to clean up with, was a towel and windex.  Windex HURTS tender areas.
heidi
 
PS... I keep a plastic bag lined bucket with a lid, a towel, a roll of TP and small package of baby-wipes in the backseat of my car.  I had to use it the other night driving to meet my husband in town.  Twice.  Luckily, it was dark and I pulled to the shoulder of the hwy with no streetlights.  I dread the day I must use my bucket in daylight in a populated area and I can find no quiet/unpopulated area to park and take care of things.  I live in FEAR OF SHAME that an officer will stop to check me and my vehicle and I'll have to roll the window down and explain what I am doing.
 
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 1/31/2009 10:49 PM (GMT -7)   
78 - my husband was an officer and they have seen it all. They check because they care. 99% of them would feel sorry, apologize and be on their way. Its that 1% you gotta worry about. Maybe you could bring a towel to wedge in your window like a curtain and put a sign on the window on the other side of the curtain "I'm ok, just getting sick - need privacy." I don't know if it would work but they might think twice before knocking.

When I worked corrections the kids had toilets in their rooms and I had to peek in windows every 15 minutes to make sure everyone was breathing. They were embarassed teenage boys w/ a female staff walking around. I let them make signs that said "bathroom" to cover their window - so long is it came back down quickly I didn't complain. If it was up too long I'd send a male staff to check on them (just in case they were harming themselves.)
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/1/2009 9:47 AM (GMT -7)   
Thanks Fitzy,
I've worked as a secretary at two Sheriff Offices, one jail and one CID, and most of the officers I worked with were friendly and compassionate, though they did tend to grow a bit jaded and skeptical the longer they stayed with The Job. I think it would just be me feeling horribly embarassed to be so "caught out" and have to explain to a stranger.
h
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 2/2/2009 9:30 AM (GMT -7)   

many states have laws that prohibit that kind of thing.  Public access to public restrooms....food establishments must provide reasonable access....that kind of thing. 

As IBS and other diseases such as crohns become more well known to the public ...and as the baby boomers age there will be more and more laws stopping what you have experienced.  You may want to look into what the laws are in your area and see how it applies.

To 78:  I feel for you...I had to give up my fishing boat because I just couldn't accept going in a bucket and worrying about other boats coming by me on the open deck sitting.....I have had occasion to "go" in some unconventional places (always certain to clean upand not expose others to my issue).  I do carry bags in the car and travel wipes along with TP in my glove compartment.

the worst for me was back in November when my wife was rushing me to ER with a major obstruction and yet I still had this massive urge to go....finally with no place to pull over to I had her stop along the side of the road....I dropped trou and sat  on the plastic bag lined trash can that I was using to throw up in...and just went.  Needless to say once I was admitted my poor wife had to go out wrap up the bag that had waste from both ends in it...and she even took it to the proper medical waste bin.  Gosh I love my wife!!!!!


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose one shot every week. Also nightly dose of mesalamine.
Surgery Nov 4th, 2008 removed 30 inches of small bowel.
 Crohns is currently active and has been since April of 2005
52 yrs old


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 2/2/2009 10:31 AM (GMT -7)   
Your wife sounds like a wonderful companion. I am lucky my husband is so understanding, too. My GI comments all the time on how she wishes more of her patients had spouses/partners like my husband. (and probably your wife, too)
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 2/2/2009 2:12 PM (GMT -7)   
I hate how this disease is making my lifes path for me. I would like to move back to the inner city but the junkies and alcoholics have made that just a dream for me. Most of the stores and gas stations put "out of order" signs on the doors to keep the junkies and drunks out. Ive gone to visit my mom and I havent found a gas station yet that has an open washroom. It scares the heck out of me. I should invest in a bucket. I stay out in the "boonies" because the lack of junkies and abundance of open washrooms. Its so sad that they have ruined it for me. My daughter lives in the city and I would love to be closer to her.
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