Remicade - Worse then better?

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dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 1/31/2009 10:46 AM (GMT -7)   
Hi: I just started Remicade and had my second infusion on Thursday. I haven't noticed any improvement whatsoever. I know it can take up to 5 infusions. My question is... does anyone feel worse right after the infusion. For the 2-3 days after both my infusions, I swear my bm's have doubled, then it seems to go back to normal. Oh, and believe me, normal isn't so great. Have other people experienced this?
39 years old female, Dx'd 2000 Crohn's Colitis in entire colon
Allergic to Asacol/Pentasa/6MP/Immuran and many others
Past meds that worked: Cipro, Prednisone
Just stopped Humira 1/1/09
Starting Remicade 1/15/09

Daily: Folic Acid, Vitamin C, Fergon Iron Supplement, Omega 3, Multi-Vitamin


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 1/31/2009 3:40 PM (GMT -7)   
Hi When I was on Rem. it seemed my bowels would move good for awhile too ,actually I would go sometimes during the treatment or right after. Is your pain decreasing? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 1/31/2009 4:20 PM (GMT -7)   
Sorry to bust in on your thread here...I've never been on Remicade so I can't speak about it. However, since you're talking about Remicade, can you tell me how often Remicade infusions are given and how long the infusions take each time?

I've heard 2 hours per infusion but I've also heard some people go every week and some people go every 3 weeks to a month. Does that have to do with the dosage amount your doctor prescribes?
Diagnosed in October, 2004 at age 32.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/31/2009 5:54 PM (GMT -7)   
No one should be going every week for an infusion! They range from 4-8 weeks usually. The first 3 infusions are at weeks 0, 2, and 6. Then you usually go to every 8 weeks after that. I go every 8 weeks. My dr. said that she would increase my dose before she moved my infusions closer together. Then when that isnt working anymore she'll start moving the infusions closer together.

I was on 60 bg of pred when I started remicade so I can't say when it started working unfortunately. Hang in there dietcoke.

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 1/31/2009 7:36 PM (GMT -7)   

I have my infusion every 6 weeks.  From the time I arrive to the time I walk out the door it takes about three and a half hours.  The actual infusion may only take about two hours, but they don't start mixing until after you get there and weigh in, and then they take a little time when it's done to be sure you're OK.

From the beginning I saw an immediate difference after my infusion.  I used to feel a little tired afterwards, but that isn't so bad any more.  I've never had the achey, flu-like symptoms that some have.  For the last two infusions I've had a little bit of bleeding in the days after, though.  I was particularly disappointing to see that blood today, since I had my infusion on Thursday and started a short course of Pred today for my Rheumatologist.

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