My doctor called me and left a voicemail with the following results:
Prometheus blood test = neg for Crohn's and UC
Small Bowel Follow Through = unremarkable
He told me to call the office if I was still having issues, so I did, and he called me back and said:
My Dr now wants to give me a 10 day course of Xifaxan thinking that maybe I picked up some bug that I can't get rid of. My symptoms are still lower right quadrant pain moving from groin, to appendix region, to kidney area, and irregular bowel movements. Still no fever.
One thing I wanted to ask him but wasn't able to because we've been communicating through voicemails was, on the day I had my SBFT, I wasn't in any pain at all; is it possible that any inflammation they would have seen from Crohn's would be not apparent on a day I'm not in pain, or does it not work that way?
When the doctor (not my GI doc, but a hospital doc) was giving me the SBFT, he even remarked that "well if this is Crohn's, it certainly isn't a typical presentation." He then asked me if I had done any traveling recently, to which I said "no." He said "you haven't been to Mexico or Colorado?" I said "nope, I've been here in the cold Chicago winter the whole time."
It seems he thought based on my symptoms maybe I'd picked something up?
I can understand Mexico, but what's in Colorado?
So anyway when I called the dr back I was asking about bacterial and parasite tests (stool tests?) and he suggested the Xifaxan. Is it weird to start a course of antibiotics without doing tests first? He said if I still have symptoms after that we'll do a capsule endoscopy (the camera pill).
So here are all my tests and results so far:
- Multiple hernia tests = all negative
- CT scan = mild terminal ileum thickening, increase in number but not size of lymph nodes (normal I'm told)
- Colonoscopy = relatively unremarkable, one biopsy had evidence of granuloma which is suggestive but not indicative of Crohn's
- Upper endoscopy = I have a hiatal hernia
- Prometheus blood test = neg for Crohn's and UC
- SBFT = unremarkable
- Thyroid blood test = thyroid function normal
- Liver sedimentation blood test = liver sedimentation normal