I was diagnosed with crohns at the beginning of the year, mainly because I was having problem eating most foods and due lots of diaorhea was having problems keeping my weight on. My ulcers are mainly in the small intestine where all the food is absorbed. I also had a lot of chest infections and ear problems. I had an ulcer on my leg which wouldn't heal (6 months trying)and was assumed to be a pyoderma gangrenosis, which is associated with crohns,
I had a lot of chest infections also. Now weigh only 35 Kgs and my goal wieght is at least 50kg. I found none of the crohns medications helped me exept prednisone which most doctors don't like you on full time as it can damage your pancreas.
I recently found a lump on my back which has been confirmed as T cell lymphoma and it turns out the ulcer on my leg was also lymphoma.
I have tested positive for common variable immune deficiency, can also look this up as CMV. The drugs I am being given to help is ganciclovir and intragam The intragam is to improve my IgG levels which are lower than they should be. This is improving the gastro problems although it will probably take a long time to get on top of it all, just starting the eat slowly as I recently had a campholorbactor infection also.
So definitely worth checking out the IgG levels and also whether you have common variable immune deficiency. I still have to do the chemo for the lymphoma but at least I have the other drugs to assist the whole process.
Hope this helps for some of you suffering out there.