Update on daughter

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pb4
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Date Joined Feb 2004
Total Posts : 20576
   Posted 2/1/2009 11:34 PM (GMT -7)   
We went on Friday for her consultation, the GI seemed very good, at least that's what I got from speaking with her, she was very informative with my daughter and myself and was equally disgusted that daughters family doc didn't refer her sooner with our family history especially.
 
She's getting in for a colonoscopy right away too (feb 12) poor kid has to do the colyte 4 L prep, I've never even done it before, I've always done the 45ml phospho, so I don't envy the girl for having to do the 4L jug of what I'm sure tastes like crap as well.
 
They're going to use a pediatric scope on her because my daughters very small framed (she's 5'3") little thing and the GI wants to make her as safe and comfortable as possible, she was good at sharing exactly what they'll be using to put her to sleep ( with the long list of those meds I couldn't remember the 2 she said she was going to use).
 
Bottom line is I feel very confident so far with this lady GI and as a mom that has made a world of difference so I'm just keeping fingers crossed they don't find an IBD or anything eles that's serious or hard to manage, but I'm sure that's more wishful hoping then reality on my part.
 
I'm hoping to be able to go into the room with her, but if not the GI already said she'd be taking biopsies and lots of pics throughout for us to see.
 
I'll be updating after her scope is done, by then she'll have gotten her blood results back too.
 
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


teddybearweiser
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Date Joined Oct 2004
Total Posts : 3042
   Posted 2/2/2009 4:26 AM (GMT -7)   
Hi pb4, I hope things go good for you daughter. My prayers will be with you and your daughter. that the colonoscopy goes good for her.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/2/2009 5:03 AM (GMT -7)   
Hi pb4 Hope things go good for her and at least you are pleased with her Dr. Keep us updated on her.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 2/2/2009 6:55 AM (GMT -7)   
Thanks for updating. Did you ask if you could go in with her? I would just be curious to see for myself as we have to go through these scopes ourselves.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/2/2009 7:08 AM (GMT -7)   
Hi pb4, I too will keep both of you in my prayers! I hope it all goes smoothly!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/2/2009 7:16 AM (GMT -7)   
I have my fingers, toes and anything else I can cross, crossed for her. Please do keep us posted on the results.

Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/2/2009 10:07 AM (GMT -7)   
I wish your daughter luck... *Especially drinking that stuff... meh*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/2/2009 12:37 PM (GMT -7)   
Thanks guys, it's greatly appreciated...I didn't ask the GI (forgot to ask her) but I asked the girl that sets the appointment up and she said they might let me go in with her, it just depends on the doc, so we'll see...it's awfully early, have to be there by 8am and it's a long ways away so we'd have to leave home at about 6:40 to be there by 8am during morning rush hour.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 2/2/2009 5:21 PM (GMT -7)   
Praying for you both and hope you get good news. My hubby was able to be with me at mine so I can't imagine why they wouldn't allow you as long as your daughter is ok with it. I found it very comforting knowing he would be there and he was able to tell about what they said and found since I couldn't remember having anything done. Love that versed!

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 2/2/2009 5:45 PM (GMT -7)   
GL PB! I'll certainly be thinking of you and your daughter....KUP on how she does. I pray it's not IBD either..
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/2/2009 6:41 PM (GMT -7)   
pb, just a word of advice on the 4L prep: get it all out of the fridge as soon as you start drinking bottle #1. For me, one of the really hard things with the 4L prep was that my body temperature would crash as I drank so much refrigerated liquid, and it would be very difficult to get warm again.

Don't leave the stuff unrefrigerated for 8 hours or anything like that; just try to get it out and almost to room temperature before you drink it.

I hope it all goes well. I don't envy you that long drive to the hospital - good thing you have the emergency loo in the back!

Ivy.
Co-Moderator Crohn's Forum.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/2/2009 7:07 PM (GMT -7)   
Prayers for your daughter and for yourself!  I hope they see what they need to see to help her.  She is fortunate to have you there!  Sometimes experience comes in handy.

Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/2/2009 11:17 PM (GMT -7)   
Thanks guys :)

True about the "experiance" thing FallColors, though I wish that neither my daughter or myself were having butt trouble experiances, but it is what it is I guess...

Will definitely update after her scope.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Margie11
Regular Member


Date Joined Aug 2008
Total Posts : 467
   Posted 2/2/2009 11:31 PM (GMT -7)   
My prayers are with you and your Daughter, Pb. I hope and pray it is something more managable than our lifestyles are. Do let us know.
              Never go faster than your guardian angel can fly!                  
     Be Patient And Tough, Someday This Pain Will Be Useful To You 
 
 Crohn's for life, symptoms included terrible joint and soft tissue pain, just met first cousin who suffers from Reactive Arthritis-explains sooo much. Great control on SCD (when I'm good) and I get by with a lotta help from my friends!
                                                Margie11


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/3/2009 12:32 PM (GMT -7)   
Thanks Margie11!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/3/2009 1:32 PM (GMT -7)   
I'll be keeping you both in my thoughts. I don't wish that prep on my worst enemy, much less a young girl. Just a tip from a young friend who recently had to do the clean out, his parents dryer is in front of the toilet. He put his lap top on the open dryer door. It helped him pass the time while sitting there. You could use a tray table or such, if she has a lap top. I thought it was genius. I never had a lap top when I've had to do the clean out.

Hope it all goes well and no IBD is found just some simple, curable thing to explain her problems. smilewinkgrin
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 2/3/2009 1:57 PM (GMT -7)   
All fingers , toes crossed , hopes and prayers and good thoughts for all to turn out ok. You know its just not right to have to drink that much stuff. We need a magic pill...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 2/3/2009 4:10 PM (GMT -7)   
Ivy, you must have a very cold fridge or somethin'... I've never noticed that happen to my body and I usually get cold pretty easily... *At any rate, I myself, prefer the drink cold... it's a little more bearable that way*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 2/3/2009 5:36 PM (GMT -7)   
Good Luck!

Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 2/3/2009 5:38 PM (GMT -7)   
wink Best wishes !

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/3/2009 7:50 PM (GMT -7)   
Great tip Zanne, thanks, I will pass it along to my daughter, although if she gets her usual stomach pains that she's been getting she may not be up to surfing the net while on the toilet, but still an excellent tip that I will pass along to her.

Ivy, it's actually my daughter and not me doing the prep for her colonoscopy although I wish I could do it for her, poor girl has been suffering enough (as we all know with this DD), but thanks for the tip, I'll be sure to tell her.

Thanks sniper, celey, MMM and snohare for your well wishes!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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