Crohn's disease thinking about going on Remicade

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Mary Tzagarakis
Regular Member


Date Joined Feb 2009
Total Posts : 25
   Posted 2/2/2009 6:19 PM (GMT -7)   
I have had crohns for 20 years, 1 resection with ostomy, i got toxicmegacolon after surgery therefore needed an ostomy. After all those problem, I went 10 years in remission without any medications...it was great. But it showed it's ugly head again, and this last year I had an abcess in my rectum, had that removed, not a big deal and then got a fissure with a sentinel pile. Had surgery for that...not too bad either. The doctors put me on Imuran 150 mg, Predisone with varies sometimes 5 mg to 20 mg. I am still have attacks, but mostly tired all the time so bad I can't get to work. Seems to be sick every 2 weeks. I can't go on like this. Wondering about Remicade and your experiences with them and I think that maybe my next step. What are the side effects of Remicade? On a good note i went to the acupuncturist this evening and it did really help.

Mary

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/2/2009 6:39 PM (GMT -7)   
Hi Mary the best thing to find out the side effects would be to google Remicade side effects... I did OK healing a small fistula with it but got sick as I have asthma... Found it hard on my lung system. Some here seem to do good with it though but some also have had bad sideeffects.In what way did the acupuncture help you, glad it did some help.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Mary Tzagarakis
Regular Member


Date Joined Feb 2009
Total Posts : 25
   Posted 2/2/2009 6:50 PM (GMT -7)   
Hi:

Well it stopped the pain basically so far, but remember it is only one day. My belly is still making noises but it is not hurting which is a bonus. I am wondering about the natural root, I have to check every avenue as I believe Remicade will be there next step....and I am concerned about Remicade.

Mary

The google on Remicade I have looked up, some good, some bad.
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