numb hands and feet....any ideas?

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chrissy27
Regular Member


Date Joined Oct 2007
Total Posts : 67
   Posted 2/3/2009 11:59 AM (GMT -7)   
I just saw my pcp yesterday for a respiratory infection and as i was sitting there my hands and arms started tingling and went numb...and when i would relax my hands my ring and pinkie finger would curl up.  Saturday night my big toes went numb and burned.  I've been having some tingling in my hands, feet and legs over the last few months.   I asked the nurse practioner about it and now they want to do a work up on me.  Anyone have any ideas what this could be?   I was officially diagnosed with crohn' s in my colon almost two years ago and have been on remicade about a year and a half.  She mentioned it could possibly be a secondary auto immune disease..... sad
 
christina
28 yr old female, diagnosed with crohn's colitis with stricture of the colon april 2007, first fistula- october 07 :(  
joint pain and swelling
anxiety, depression
 
 
current medications:  Lialda 1.2g, remicade every 6wks, citalopram, ex-strength tylenol, multivitamin
 
 
But He said to me, "My grace is enough for you.  When you are weak, my power is made perfect in you." So I am very happy to brag about my weaknesses.  Then Christ's power can live in me.  For this reason I am happy when I have weaknesses, insults, hard times, sufferings, and all kinds of troubles for Christ.  Because when I am weak, then I am truly strong. 
2 Corinthians 12:9-10


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/3/2009 12:33 PM (GMT -7)   
Could be low B12?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 2/3/2009 2:40 PM (GMT -7)   
Have you been taking Flagyl??
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/3/2009 2:54 PM (GMT -7)   
Hi. I have had issues with this on and off for some time now. I think everyone thinks I'm nuts. I actually spent the night in the hospital about a year ago becasue my hands basically stopped working...All tests were normal, but I know I wasn't. From time to time my hands or feet go numb, as does my face and head. It's the strangest thing and not very comforting at all! B-12 has always been normal. Not on flagyl...no clue what it is- other than Crohn's often has very stange manifestations in the body.

sassy28
Regular Member


Date Joined Jan 2009
Total Posts : 64
   Posted 2/3/2009 3:26 PM (GMT -7)   
My Dad has Lupus and he gets this. His ring and pinky fingers have curled right up to his hand and and he actually cannot straighten them out. Obviously I am not a Dr., but reading your post reminded of that.

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 2/3/2009 5:34 PM (GMT -7)   
Worth noting that "normal" B12 is often not so - even a little on the low side but within "normal" ranges is known to be enough to make a big difference to energy levels and all other B12 related functions. Plenty of Crohnies here will testify to that !
The Mayo Clinic considers that the standard definition of normal B12 is wrong. Given that, peripheral neuropathy is something that sprang to my mind. Search the site for threads on that, I seem to remember it coming up before.
My thinking is, take some (non-oral) B12. If nothing changes, it wasn't that causing the problem, and you've taken one of the few things in the pharmacopia that has less risk of side effect than an aspirin. If things improve, whoopee, think of all the time, money and hassle you've saved. Not to mention permanent nerve damage.
If it is neurological, it may take a long time to get definite answers.

Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 2/3/2009 8:00 PM (GMT -7)   

Hi Chrissy27,

I would definitely check with your gastroenterologist about your numbness/tingling.  I'm not on Remicade, but just a super quick search on it indicates that you should notifiy your doctor immediately if you're on Remicade and experience these symptoms, as it's a rare but potentially serious side effect.  You can read more about this on such websites as drug.com and web.md.  I hope it's OK to post two of the websites below that mentioned numbness/tingling.

http://www.drugs.com/remicade.html

 
 
Good luck, and keep us posted, OK?
54 year old female;
 
Have had Crohn's of terminal ileum for over 9 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  Recently started Humira in December.


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 2/4/2009 3:47 AM (GMT -7)   

It could be the lialda, how long have you been on it?

Thanks

Carmen


chrissy27
Regular Member


Date Joined Oct 2007
Total Posts : 67
   Posted 2/4/2009 7:42 AM (GMT -7)   
I have been on the lialda for about a year and a half.  when the numbness started i also started having severe pain in my neck at the base of my skull.  I have an appointment with my gi today...so we'll see.....

28 yr old female, diagnosed with crohn's colitis with stricture of the colon april 2007, first fistula- october 07 :(  
joint pain and swelling
anxiety, depression
 
 
current medications:  Lialda 1.2g, remicade every 6wks, citalopram, ex-strength tylenol, multivitamin
 
 
But He said to me, "My grace is enough for you.  When you are weak, my power is made perfect in you." So I am very happy to brag about my weaknesses.  Then Christ's power can live in me.  For this reason I am happy when I have weaknesses, insults, hard times, sufferings, and all kinds of troubles for Christ.  Because when I am weak, then I am truly strong. 
2 Corinthians 12:9-10


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/4/2009 5:50 PM (GMT -7)   
Best Wishes going your way hope you get some answers. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 2/4/2009 11:30 PM (GMT -7)   
Sounds like it could be a B12 issue - this is a common problem for Crohn's patients. 
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