trying to find a little help

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jiff131
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/4/2009 10:17 AM (GMT -7)   
basically just looking to find out how and how long it took you guys to get diagnosed ive been going thru the symptoms for what i have come to believe is Gastroduodenal Crohn's disease and would really like to be able for a doctor to tell me if this is what is going on or not so i can begin some type of medication because i miss way to much work leaving this untreated

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/4/2009 10:24 AM (GMT -7)   
Usually it starts off with a Colonoscopy, but if you think your Crohns is up higher than can also do a Upper Endoscopy. Another good test is the pill camera, that one you swallow a camera pill and it takes pictures as it goes thru your system. I was one of the lucky ones and was diagnosed in only 3 weeks, sometimes it can take a longtime to diagnose. I wish you good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jiff131
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/4/2009 10:33 AM (GMT -7)   
ty , ive been going to doctors now for over 2 years doing different tests and scans resulting in nothing , mean while ive lost over 80 lbs(down to below 120lbs now) getting cramps and nausea at least 1-4 days a week some weeks and having these scabs form on my arms and legs

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 2/4/2009 11:07 AM (GMT -7)   
It took 2 years for me to be diagnosed with Crohn's after having been misdiagnosed with IBS by my family doctor. The disease had to get really bad before the family doctor saw it as something more than IBS. In the meantime, I suffered. It wasn't until I told my family doctor that my bowel movements were waking me up in the middle of the night. That's when I was referred to a GI.

The GI recognized my symptoms immediately to be IBD but just to be sure ran a battery of tests:

First came a Hemmocult to check for blood in the stool.

Second came an Upper GI with Small Bowel Follow Thru. Upper GI results came back fine; SBFT results showed some narrowing in the small intestine.

Next was a Abdominal CT Scan which showed inflammation in the large intesttine.

Based on these tests, my GI schedule me for an Upper Endoscopy, Colonoscopy and the blood test that shows the markers for Crohn's Disease.

Upper Endoscopy results came back fine. Colonoscopy results did not. Ulcers scattered throughout the large intestine. Blood work came back showing a 98.9% cause for Crohn's Diease.

So based on all those test results and the other "extra-intestinal" problems I was having, the GI diagnosed me with Crohn's.

So once I finally got myself to a GI, all the talking and tests took about 2 months. So if my family doctor had thought to send me to a GI sooner, I could have gotten started on the Crohn's meds about 2 years earlier. OR, I should also say, if I'd simply REQUESTED to be referred to a GI. WISHED I'd been more proactive.
Diagnosed in October, 2004 at age 32.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills, Chromium Picolinate
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/4/2009 11:30 AM (GMT -7)   
Hi Welcome to Healing Well .Have you had any bloodwork done ? What part ofyou did the scans check ,what kind did you have? Are you on any meds? I had a large abdominal abscess and was diagnosed with the colonscope within a few days. As you say you think your problem is higher up so the colonscope wouldn't show your problem .As far as your skin condition goes what is your Dr. saying is causing the problem? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 2/4/2009 11:38 AM (GMT -7)   
I was very sick for some times, but once i went to the hospital I was lucky to be diagnosed within one week by using the Colonscopy that showed i have moderate to Severe Crohns in my Ilium ( last Part of GI tract). some people take them a lot more time to be diagnosed right since the symptoms can be found in different diseases,such as IPS, UC.


best of luck, and always remember that you are not alone, and we are here to help if we could.
Age: 28
Diagnosed with CD JAN, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins untill(01/27)
Surgeries: Right now I'm at the Hospital (Hotel) waiting for my Abscesses to be drained then I will have a Laparoscopic Resection Surgery. I’m very excited.
New med's at the hospital: Flagyl (1500mg/Day), levaquin(500mg/Day),Hydrocortisone(300mg/Day) ,Lovenox(40mg/Day) for clotting, regular insulin, dilaudid as needed (1 mg/4 Hr's)
TPN with lipids at night.
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Words are, of course, the most powerful drug used by mankind.

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