My NEW drug choices now are... (and just feeling defeated).

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 2/4/2009 1:10 PM (GMT -7)   
Tsyabri
Humira
Cimzia
Methotrexate

No mention of Imuran. I'm really feeling defeated right now and I caught some sort of infection as well. The antibiotic is only going to tear up my insides, but I don't know what else to do as I can barely swallow my throat is so sore...

Thanks for all the input over the last few days... I just need something to go my way sooner or later. I'm physically and mentally drained.

(All that aside, I've been eating better and looks like I have lost somewhere around 7-10 lbs on weight watchers in the past 5 weeks!)
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/4/2009 2:59 PM (GMT -7)   
(((Kaycie))) Honey you can't win for losing. If its not the Crohns its something else. I sure hope you get this Crohns figured out and this infection goes away soon.

Giant Hugs,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/4/2009 4:14 PM (GMT -7)   
Hey Kaycie Hope your infection clears soon and at least with Humira it is a weekly injestion and if you got sick with a nasty bug or something a person can put there shot off for awhile to recoup...lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/4/2009 10:16 PM (GMT -7)   
I'm on Humira (since July 2008), and find it quite helpful. Injections are only once every two weeks, unless you aren't responding or get worse. The only side effect I have is a red itchy spot at the site of the injection, and it goes away within a day or two.

IMHO, Tsyabri would be my choice of last resort. It sounds a lot scarier than the other biologics.

Whatever you choose, I hope it turns things around for you fast!

cbk
Regular Member


Date Joined Apr 2007
Total Posts : 134
   Posted 2/5/2009 4:59 AM (GMT -7)   
I agree with spooky about Tsyabri, and I would say the same about Cimzia. I myself am choosing to wait (maybe even a few years) before I opt for those drugs. I also failed Remicade but can't take Humira because of the neurological side effect. I'm on MTX, it worked great for about a year but the past few months the effectiveness has dwindled. They probably didn't suggest Imuran for you because its just not strong enough to do the job...it might just delay the inevitable. They used to prescribe Imuran or 6MP along with Remicade or Humira but recent evidence shows it doesn't make a difference...patients will develop an intolerance anyways or eventually need something else.

I'm not sure if they use Cipro to treat whatever infection you have, but thats a fairly gentle antibiotic.
22 Female, currently on MTX. Previously on Imuran, Remicade, Pentasa, etc. Ileocolic resection in 2006.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 2/5/2009 11:50 AM (GMT -7)   

So sorry you are having trouble. I am on humira now and it has changed my life. it replaced 3 other CD meds I was taking. I also take every other week and seem to be doing well.

I have a sinus infection and my GI told me I can go ahead and give myself the shot today on schedule. I think he figures if I skip the flare up would be worse than the sinus infection anyway.

Don't get discouraged it took me a while to get on the right medicine. I get barely any side effects so I am happy I made this choice.

good luck making yours

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

 

 


HanooN
Regular Member


Date Joined Dec 2008
Total Posts : 63
   Posted 2/5/2009 12:36 PM (GMT -7)   
I would say try Humira my doctor was about to put me in Humira until I was hospitalized and going through a surgery soon. But that would be my next choice after failing Rimicade amonth or so ago . Worth the shot hope that make you feel better. remember always have a hope that one day things will work for you. don't give up

good luck
Age: 28
Diagnosed with CD JAN, 08.
Meds: Prednisone(40mg), Pentasa (4mg), Hydrocodone, prilosec, Fish oil, Multivitamins untill(01/27)
Surgeries: Right now I'm at the Hospital (Hotel) waiting for my Abscesses to be drained then I will have a Laparoscopic Resection Surgery. I’m very excited.
New med's at the hospital: Flagyl (1500mg/Day), levaquin(500mg/Day),Hydrocortisone(300mg/Day) ,Lovenox(40mg/Day) for clotting, regular insulin, dilaudid as needed (1 mg/4 Hr's)
TPN with lipids at night.
------------------------------------------------------------------------------
Words are, of course, the most powerful drug used by mankind.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 2/5/2009 7:44 PM (GMT -7)   
Thanks for all the kind responses. You are all making me feel much better about a next step. I'm researching Humira now. I'm a-ok with giving my own shots as I went through in-vitro fertilization and had to give my own intramuscular and sub-q shots. So, I know a few tricks to prevent the burning and such.

More thoughts are certainly appreciated. I'm glad I'm not alone on being scared of Tsyabri.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 2/5/2009 11:32 PM (GMT -7)   
I'll give another pro-Humira experience smilewinkgrin. I was anemic for 15 some odd years. Even iron infusions didn't restore my ferritin levels. After a couple of months on Humira, my hemoglobin and ferritin levels shot up well into normal range. I also no longer have abdominal and back pain. If I recall correctly, it took up to a couple months for me to really see results.

Some people complain of joint pain while on Humira, but I've been lucky enough to avoid that potential side effect.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 2/6/2009 4:35 PM (GMT -7)   
spookyhurst - I certainly hope I don't get the joint pain because I suffer from that right now. All that aside, my hemoglobin levels are low and I'm constantly anemic, so that gives me some hope there.

More responses are certainly welcome. Though I'm in constant pain, I'm feeling better about having aother positive options besides surgery.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

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