treatment with worms

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John Bridget
New Member

Date Joined Feb 2009
Total Posts : 2
   Posted 2/5/2009 10:37 AM (GMT -6)   
I just heard about a treatment which uses parasitic worms. Supposedly the things that attack the immune system resulting in Crohn's symptoms are meant to be the body's defense against parasites. The introduction of parasites gives them work to do which takes them away from attacking your body and causing Crohn's. Does anybody know anything about this?


Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 2/5/2009 10:52 AM (GMT -6)   
sounds fun.  never heard of this.  where did you come across it?

John Bridget
New Member

Date Joined Feb 2009
Total Posts : 2
   Posted 2/5/2009 10:58 AM (GMT -6)   
So I know wikipedia is an awful reference, but it's the nicest quick description of how people are currently using worms to treat disease ...

and here's one of the firms that sells them!

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 2/5/2009 3:01 PM (GMT -6)   
I've been doing a little research myself on these wormy buggers. This is the website that I found in my searches.

I'm anxious to hear if anyone has tried these yet? I'm having trouble finding "stories" of people's experiences with these worms.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
'cade stopped working in '08 and I've been scrambling ever since.
Noticing a real difference with a Gluten-Free diet.
Currently on:
Probiotics, Digestive Enzymes, and Prednisone
Soon to Start:
Cimzia, acacia fiber supplement, and L-Glutamine

Regular Member

Date Joined Apr 2004
Total Posts : 94
   Posted 2/5/2009 4:32 PM (GMT -6)   
I've heard about this. Supposedly it's done in Germany. I guess people get better trying it?? But the problem is that you can't really stop the worms from multiplying once they're in you and that is a problem?? Don't know. It's pretty radical (from what I've heard) and it takes a lot of courage to try it. The thing is that in Africa people normally have worms (not everybody obviously, but when you live in a tribe and all that it's basically a more normal life that the one we lead) and they don't have any problems. I guess the worms help them, kind of a symbiosis, but people living in Europe, the USA...or wherever don't normally have again, all I can say is that's it's pretty radical. But when you don't know what else to do I guess it would be worth a try??? hehe do I make any sense?

P.S. I haven't heard about this theory that worms give our immune system something to do. I wouldn't say that's the case.
21 yr. old with crohn colitis. Diagnosed in March 2004. No surgeries so far.

Post Edited (caroline_r) : 2/5/2009 2:37:44 PM (GMT-7)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 2/5/2009 5:05 PM (GMT -6)   
You can find more information in the new meds thread.

Scroll about halfway down; the threads are listed under "worms"

Sorry about the formatting. It seems to go wonky whenever we add more links.

Co-Moderator Crohn's Forum.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 2/5/2009 6:02 PM (GMT -6)   
Also search old posts for the word "Hookworm". There were quite a few posts on this topic a while back.

I've been monitoring the Yahoo hookworm group. Unfortunately, it may take nearly a year for the worms to really have a positive effect. In my opinion, there aren't enough people who have gotten worms that long ago to allow us to determine whether it really works. Looks like it may very well work for other autoimmune diseases like asthma and allergies. Check it out.
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Oct 2004
Total Posts : 2088
   Posted 2/5/2009 7:09 PM (GMT -6)   
When I joined the forum a few years back, the reason was this topic ! For some reason I was researching the Diet of Wurms ( a medieval ecclesiastical parliament in Germany) which back in the 13th Century decided on what now are obscure matters of theology but then were important life or death political matters. And there was the Crohns Forum mob, punning about a Crohnie who had a diet of worms... shocked From Ovamed in the Netherlands, by post, if I remember correctly. I think it was C2 (Crohnie2) that was trying it, and after a few months - about a year - she decided it was not working. Part of the issue was cost - it was not covered by insurance, and was costing £100s.
But the science is certainly sound - parasites have a superb armoury of anti-inflammatory substances (and their opposites), and in some cases are even known to control their hosts behaviour in major, life threatening ways. yeah
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